Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 Take care of yourself Rose. I am a caregiver & I am finding out just how much this illness affects us all. MattSubject: from RoseTo: neurosarcoidosis , nsmods Date: Friday, April 23, 2010, 10:24 PM Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully- -mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now. Ramblin' RoseModerator Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2010 Report Share Posted April 23, 2010 welcome back Rose. We have missed you but understand. I get the emotional drain also and to think we can just suck it up is wrong. Deal with it would be better. Anyway take care and take it slow we are here for you just as you have been for us. Jackie from Rose Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully--mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now. Ramblin' RoseModerator Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 Dear Rose, It is SO good to see you posting!! I have worried about you and sent you messages, but no answer.........I am SO happy to see you here. Rose, none of us (including me and Tracie) are well enough to be on here all the time....you know that. Periodically, we ALL have to have "down" times and that is to be expected and accepted. Do not worry about how much time you can be on here to help..........just be on here when you can. We DO miss you and need you and your knowledge and support. I am sure I am speaking for everyone when I say that we all miss you, your knowledge, and your comments. You are right - monitoring the list is emotionally draining, but yet it is satisfying to know you are trying to help people. It is especially hard if you have problems at home -- I have found that out the last few months. However, you all know that I am not perfect and although I try to do what I can, as part owner, I know I cannot do it all. I need help; Tracie need help; we ALL need help. That is why we are here. You are important to this group and we miss you. Welcome back as much as you can be here. When you feel overloaded, BACK OFF and regroup. We all have to do that. So.......WELCOME HOME, ROSE!!!! We have missed you. Lots of love and hugs, Hugs,DarleneNS Co-Owner/Moderator from Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Hi Rose I sound to me like you are going though what I like to call a me slump. Where you have given so much you just don't have any more to give right now. It's okay maybe you need to recieve a little while to biuld you back up. From: Rose <mamadogrose@ hotmail.com>Subject: from RoseTo: neurosarcoidosis@ yahoogroups. com, nsmods (AT) yahoogroups (DOT) comDate: Friday, April 23, 2010, 10:24 PM Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully- -mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now. Ramblin' RoseModerator Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2010 Report Share Posted April 26, 2010 Thanks, Sandy. I just feel bad because my slump has lasted so long, not just a little bit. Today I'm worn out because of participating in a fundraiser for Humane Society yesterday. We went around the Indpls. Speedway, which is 2-1/2 miles, plus a long way to & from the car because I forgot my handicapped placard. I rode a scooter, but it still took a lot out of me! It was worth it to spend the afternoon with my son; I don't see him as much as I'd like (but what mom does?!?). Thanks again. Ramblin' RoseModerator To: Neurosarcoidosis From: sdecquir@...Date: Mon, 26 Apr 2010 16:12:59 -0700Subject: Re: from Rose Hi Rose I sound to me like you are going though what I like to call a me slump. Where you have given so much you just don't have any more to give right now. It's okay maybe you need to recieve a little while to biuld you back up. From: Rose <mamadogrose@ hotmail.com>Subject: from RoseTo: neurosarcoidosis@ yahoogroups. com, nsmods (AT) yahoogroups (DOT) comDate: Friday, April 23, 2010, 10:24 PM Hi to everybody, especially the newbies (new to me; I guess some of you have been here quite awhile). For those who don't know me, I'm supposed to be one of the moderators. For the past few months, I have been absent from the list. Before that I would periodically go AWOL. I feel bad, because physically I'm doing pretty well. I've just been struggling-- not very successfully- -mentally, emotionally, spiritually. These last few months I've started to reactivate myself, so to speak, but would then remember how many times I've done that before, only to slip-slide away again. So I told myself that I wouldn't return until I had it together & could commit to being a full-fledged moderator. But I've never gotten it together. I met with my counsellor this week & talked about it. She suggested that I just do what I can, without making any specific commitments. That's what I'd like to do. I know how much everyone else is struggling, and God bless Tracie, she needs & deserves more folks to share the burden. So rather than continue this all or nothing behavior, I'm hoping you all (especially the other moderators) will accept what I can give, for now & who knows how long. Some of you may be saying, "Just suck it up," and I don't blame you. I did suck it up & do what I had to do for so many years; I guess my suck it up-per burned out. But this group was such a blessing & lifesaver for me that I want to give back. I have knowledge & experience to share, things to learn from others & I miss the support & camaraderie (sp?) of the group. I'll get on when I can; sometimes I go days without even using the computer or even thinking about email, etc. Then I'll find I can kick it in gear, get on Facebook or something, take my dogs or grandkids somewhere, whatever. The problem with the group is the emotional drain. Most days I just feel emotionally empty. I've never experienced this degree of emptiness before; don't know why or how to improve the situation. All my usual coping strategies aren't helping. Maybe it's some kind of challenge or test. Whatever, I hope this makes sense to y'all, and if it doesn't make sense, please just accept that I'm doing as well as I can right now. Ramblin' RoseModerator Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more. Quote Link to comment Share on other sites More sharing options...
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