Re: notice from Special Foods, response to Bergenholtz

[Guest guest]

I second that. I just went through the posts of 8/7/01 and could not

find anything from a . It does us no good to be told some bakery

somewhere is under some type of investigation. To me it is too vague

and completely wrong to mention it at all unless you have real

details that can be backed up. All it does is add a state of panic

and makes consumers mistrust the entire food industry even more than

we already do. Furthermore it makes me mistrust Special Foods even

more because they are stating this information without backing it up

in the slightest and they have a financial stake in seeing us panic

and hopefully flock them.

Lori

> *

> I just wish instead of beating around the bush someone would say

who this

> bakery is or where it is located as I buy bakery bread and now am

> concerned. If it was posted before I must have missed it, someone

please

> tell us at least what state this bakery is in.

> on Long Island New York

> *

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[Guest guest]

Helping a child to avoid the awful consequences of mistakenly eating wheat

is my motive. I can not think of anything much worse for a child than

parents giving up because their child did not improve, when the child would

have.

Regarding a profit or sales motive, this is not our motive. We are not

pursuing or promoting general food sales, and haven't for several months.

Our core foods, so effective for autistic children and highly allergic

individuals in general, are available now only by physician referral, and

only for individuals enrolling in our comprehensive intervention program.

This program includes a commitment to complete diet change, rigorous

environmental changes and guidance from scientists. It is the combination of

rigorous diet, environmental change and guidance, that we recommend and find

highly effective.

Most parents start with the GFCF approach first and consider our approach

after reaching a plateau, and realizing that for their child, food-related

problems extend far beyond problems with gluten and casein, and generally

they can tell that the child has some environmental sensitivities as well.

In other words, we offer a comprehensive intervention program that is highly

effective for autism, and are not interested in general food sales. Most of

you are satisfied with your diets and food sources, and we think this is

great. Although our seed-based products can be purchased, we are not

promoting this because this is not the set of foods we've found to be the

most highly effective. Our core foods - the tropical root crops in

extremely pure form - are no longer available over the counter.

Our web site is being changed to reflect this.

Most of you use replacement foods for gluten and casein in diets that

otherwise are 'relatively' unchanged (relatively unchanged by our standards,

that is). Our foods are really not intended to be used this way.

Returning to motive, since the time I was so desperately frightened for my

own child's life, my primary motive has been to find the most rapid,

effective solution possible, for persons suffering from food allergies and

chemical sensitivities in general, including autistic children. This is my

motivation.

Re: notice from Special Foods, response to

Bergenholtz

I still think the only thing you are concerned about is what corner of the

ever-growing market you can get. ... If you can't take the heat get out of

the list-serve kitchen.

-Phyllis

[Guest guest]

Sorry to beat a dead horse here,but I have been behind on my emails

due to illness. I must say that I have called myself Special Foods

and received very valuable and informative information WITH

verification of their products. I do not feel they were knocking any

company, they were just stating something they found to be true,maybe

it was worded a little off.

As far as them trying to drum up business by slamming another

companies products, I doubt it.

I personally know of an internet gluten free company that CLAIMS

their products to be free of specific other ingredients and I have

found them NOT free of the specific items noted....my point...did the

company do it on purpose to drum up more business, I doubt it, I feel

it was a miscommunication from the supplier. Please all, remember,

even the small companies are generally in this for the good of

us,maybe because they have experienced what we have personally or

maybe because another loved has, whatever the reason, I am willing to

bet, all intentions are for the best. I hope there are no more name

calling and slapping of nasty statements, this group and these

companies are ALL great....in my opinion only.

If I have taken any of these posts out of context, please excuse the

interruption.

Sincerely,

Debbie

> Dear Phyllis;

>

> Every word of the warning we issued is true. Our company is known

for the

> high quality and calibre of our products, and known for being

trustworthy.

>

> I hope you will understand that it takes a great amount of concern

and

> caring to weather this barrage for the sake of trying to warn about

a real

> problem that presents a real danger to sensitive people,

particularly to

> autistic children. It is hard enough for parents to avoid every

speck of

> gluten in the diet, without having to worry about a problem such as

this.

>

> It is appropriate to mention it here, because although it is rarely

> mentioned, the bakery which is the subject of our warning has been

mentioned

> on this site in the last year.

>

> Although people who have run across this bakery generally know

immediately

> who we mean (see for example the 8/7/01 message from ), we get

the

> message that this is confusing to others. We will review this

message to

> make it clearer.

>

> I would hope that in the future should you have a question about

us, that

> you would call us directly. We will be able to answer your

questions, and

> have the data to back up what we say. Apparently this has come up

in the

> past as well, this is a shame, since this confusion could have been

> addressed long ago had we been contacted directly. This would have

avoided

> misunderstanding and avoided flaming and slamming.

>

> Part of the confusion stems from mixing patent related issues into

this

> warning. Unique aspects of this bakery make this an easy way to

identify it.

> That's our reason, but it obviously has created a diversion which

was

> unintended.

>

> We hold many patents on gluten-free foods; the patent rights are

widespread,

> far reaching and comprehensive. The patents give us the rights to

make the

> statements we do. Should any of you actually be interested, the

website of

> the US Patent and Trademark Office contains a search engine for the

patent

> literature, and if you search under my last name, Slimak, as

inventor and

> search for all years, you will receive a list for the US, but not

for the

> many other countries all around the world in which I hold patents

as well.

> You can read the US cases online.

>

> The issues questioned by many on this list are generally the stuff

of

> licensing agreements and royalties, etc. I suggest that they are

not topics

> for this list, but for the rather dry legal world, which is where

they

> belong. We are pursuing our rights there. But should someone want

to decide

> whether they think our rights are as we say they are, well go

straight to

> the source, the patent office files, and read online for

yourselves; then

> get a legal opinion.

>

> Special Foods

> Slimak, President

>

> These statements are slanderous and libelous:

>

> >>Makes me not trust Special foods.com. If they lie about that,

who's to say

> they are not lying about their own products to sell them.<<

>

> > Ditto this from me. The claim is bogus and proves ANYONE can

claim

> anything > on the internet so beware.

> > Jay at Miss Roben's

> >