Re: Re: Hope this question isn't too personal

[Guest guest]

Thanks.... For now we haven't gotten rid of them. I keep telling her that she can help me learn how to use them. I just hate to see her giving up on the things she enjoyed so muchmattSubject: Re: Hope this question isn't too personalTo: Neurosarcoidosis Date: Friday, September 4, 2009, 9:53 AM

Matt,

I agree with Connie. I do stained glass/mosaics. The stuff just sits

there until I have a good day and can give it a try. Even if I never

finish I feel happy just having attempted something I used to be able to

do on a normal, regular basis.

Terri G.

>

>

> From: Darlene arney@...

> Subject: Re: Hope this question isn't too personal

> To: Neurosarcoidosis@ yahoogroups. com

> Date: Friday, August 28, 2009, 7:22 AM

>

>

>

>

> Hi ,

> I am working two days a week but it is a special

> situation-- I help my daughter and son-in-law with their

> trailer sales. I type the titles and file folders for them.

> HOWEVER, I am allowed to come and go as I please --

> if I do not feel like working, I don't go.........and if I get

> too tired during the day, I just go home. I could NOT do

> that anywhere else, so.......... .no, I could not hold a job

> for anyone else. It gives me a little money to help with

> meds and I am able to help them. I could never hold

> down a full-time job. I also keep my youngest grandchild

> two days a week when I feel like it. She goes to childcare

> but we had such a time getting her, that I wanted to keep

> her and hubby and I have really enjoyed it. She is a miracle

> baby..... There again, I am able to keep her AS I FEEL

> LIKE IT AND AM ABLE. I really hate to have to give up

> my working years but I am slowly but surely adapting to it.

> I am lucky to be alive with my history, and I know it. So I

> do not push it. Hope this helps a little bit....:-)

> Hugs,

> Darlene

> NS Co-Owner/Moderator

>

> Hope this question isn't too personal

>

> >I was just wondering if anyone is managing to still work?

> > I am so exhausted I find it hard to do simple things. If I push

> > myself, my leg starts to drag. I hate it and feel worthless not

> > working. Would anyone mind sharing?

> >

> >

> >

> >

> >

> > ------------ --------- --------- ------

> >

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> > The Neurosarcoidosis Community

> >

> >

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[Guest guest]

I used to sew a lot. However now that I can't, it just seem to hard. I got on line and learned to make the big bows. During April of this year I had enough Purple bows made up that I gave out about 20 and had my friends to display them outside their houses. I have already staerted making them for next year. I can buy a big roll of ribbon for 6.00 and it makes about five. If I feel like it I may make 5 or it might be a month before I make any. I just haven't firured out how to put Sarcoidosis wareness on them to where it will last through the rain. The bows held up well the whole month.

From: mosaicgirl1 <mosaicgirl1@ yahoo.com>Subject: Re: Hope this question isn't too personalTo: Neurosarcoidosis@ yahoogroups. comDate: Friday, September 4, 2009, 9:53 AM

Matt,I agree with Connie. I do stained glass/mosaics. The stuff just sitsthere until I have a good day and can give it a try. Even if I neverfinish I feel happy just having attempted something I used to be able todo on a normal, regular basis.Terri G.>>> Subject: Re: Hope this question isn't too personal> To: Neurosarcoidosis@ yahoogroups. com> Date: Friday, August 28, 2009, 7:22 AM>>>>> Hi ,> I am working two days a week but it is a special> situation-- I help my daughter and son-in-law with their> trailer sales. I type the titles and file folders for them.> HOWEVER, I am allowed to come and go as I please --> if I do not feel like working, I don't go.........and if I get> too tired during the day, I just go home. I could NOT do> that anywhere else, so.......... .no, I could not hold a job> for anyone else. It gives me a little money to help with> meds and I am able to help them. I could never hold> down a full-time job. I also keep my youngest

grandchild> two days a week when I feel like it. She goes to childcare> but we had such a time getting her, that I wanted to keep> her and hubby and I have really enjoyed it. She is a miracle> baby..... There again, I am able to keep her AS I FEEL> LIKE IT AND AM ABLE. I really hate to have to give up> my working years but I am slowly but surely adapting to it.> I am lucky to be alive with my history, and I know it. So I> do not push it. Hope this helps a little bit....:-)> Hugs,> Darlene> NS Co-Owner/Moderator>> Hope this question isn't too personal>> >I was just wondering if anyone is managing to still

work?> > I am so exhausted I find it hard to do simple things. If I push> > myself, my leg starts to drag. I hate it and feel worthless not> > working. Would anyone mind sharing?> >> > > >> >> >> > ------------ --------- --------- ------> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> >> > CHATROOM LINK: http://www.sarcbudd ies.com -- Open all the time.....> >> > Message Archives:-> > http://groups. yahoo.com/ group/Neurosarco idosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups. yahoo.com/ group/Neurosarco idosis/database> >> >

[Guest guest]

They have this wonderful Iron on material that you can print on your home printer. You can make it any size you wish and then with a little modgepodge it makes it water proof . I have used it a number of times for my children's houses. Names ect. You just print what you want. Choose a font, size and go to it.

I would love to purchase one of your Ribbons if you so choose to sell me one. Let me know. You can email me at my home addy.

Just so you know I am an avid crafter and sewer so I do know it works.

Jackie

Hope this question isn't too personal>> >I was just wondering if anyone is managing to still work?> > I am so exhausted I find it hard to do simple things. If I push> > myself, my leg starts to drag. I hate it and feel worthless not> > working. Would anyone mind sharing?> >> > > >> >> >> > ------------ --------- --------- ------> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> >> > CHATROOM LINK: http://www.sarcbudd ies.com -- Open all the time.....> >> > Message Archives:-> > http://groups. yahoo.com/ group/Neurosarco idosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups. yahoo.com/ group/Neurosarco idosis/database> >> >

[Guest guest]

This may be a really dumb idea, but have you ever tried stensiling on the the ribbon using a can of (usually 1.00) outside spray paint. Don't know if it would work, but it's cheap if it doesn't....Connie

From: mosaicgirl1 <mosaicgirl1@ yahoo.com>Subject: Re: Hope this question isn't too personalTo: Neurosarcoidosis@ yahoogroups. comDate: Friday, September 4, 2009, 9:53 AM

Matt,I agree with Connie. I do stained glass/mosaics. The stuff just sitsthere until I have a good day and can give it a try. Even if I neverfinish I feel happy just having attempted something I used to be able todo on a normal, regular basis.Terri G.>>> Subject: Re: Hope this question isn't too personal> To: Neurosarcoidosis@ yahoogroups. com> Date: Friday, August 28, 2009, 7:22 AM>>>>> Hi ,> I am working two days a week but it is a special> situation-- I help my daughter and son-in-law with their> trailer sales. I type the titles and file folders for them.> HOWEVER, I am allowed to come and go as I please --> if I do not feel like working, I don't go.........and if I get> too tired during the day, I just go home. I could NOT do> that anywhere else, so.......... .no, I could not hold a job> for anyone else. It gives me a little money to help with> meds and I am able to help them. I could never hold> down a full-time job. I also keep my youngest

grandchild> two days a week when I feel like it. She goes to childcare> but we had such a time getting her, that I wanted to keep> her and hubby and I have really enjoyed it. She is a miracle> baby..... There again, I am able to keep her AS I FEEL> LIKE IT AND AM ABLE. I really hate to have to give up> my working years but I am slowly but surely adapting to it.> I am lucky to be alive with my history, and I know it. So I> do not push it. Hope this helps a little bit....:-)> Hugs,> Darlene> NS Co-Owner/Moderator>> Hope this question isn't too personal>> >I was just wondering if anyone is managing to still

work?> > I am so exhausted I find it hard to do simple things. If I push> > myself, my leg starts to drag. I hate it and feel worthless not> > working. Would anyone mind sharing?> >> > > >> >> >> > ------------ --------- --------- ------> >> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> > The Neurosarcoidosis Community> >> >> > CHATROOM LINK: http://www.sarcbudd ies.com -- Open all the time.....> >> > Message Archives:-> > http://groups. yahoo.com/ group/Neurosarco idosis/messages> >> > Members Database:-> > Listings of locations, phone numbers, and instant messengers.> > http://groups. yahoo.com/ group/Neurosarco idosis/database> >> >