Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Terri, I hope you find some kind of treatment that works. When you said the rheumy is going to "let you have" the injection of Prednisone.. like that's a treat to have. I do not remember did you try Imuran? or Cellcept ? lots of hugs and blessings Hey Guys,Is the thyroid suseptible to sarcoid. I am still having lots ofnegative blood tests and MRI's but the vitamin D and thyroid are off. Iam starting up with this new rheumatologist and my first visit shebrought up the fact that one idiot thought it was in my head and alsosaid that I looked healthy as a horse. Doesn't bode well for me doesit?I am trying not to get upset; I am seeing her next week. She doesn'tknow that I know the MRI's just showed arthritis. Another doc let itslip (they were not aware I had not received the results yet) during avisit. She is going to let me have a prednisone IM injection but shewill discuss treatment with me next week.Please say a prayer for me that there will be some type of resolution. I have accepted the fact that I will not be able to get Cytoxan anymorebut there has got to be something out there for me. I had evenentertained the idea during the cytoxan treatment that I may be able togo back to work or to school. That is out now....Well, thanks for listening guys. I really appreciate it.Terri G. Looking for spoilers and reviews on the new TV season? Get AOL's ultimate guide to fall TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 , I did try Imuran. I had a very low white count and my lft's were going up so I had to come off. The new rheumy did talk a little about cellcept. The injection will be stop gap. I do worry about the effects on my bones with the steriods since I have been on it off and on for so long. I had a bone scan last year and even though it was normal, I did have some loss in the hips. Thanks so much for caring. I am seeing my therapist tomorrow and I am glad. I am so upset with what is going on that I could just scream. I just can't go through this crap again. Terri G. > > Terri, > I hope you find some kind of treatment that works. When you said the rheumy is going to " let you have " the injection of Prednisone.. like that's a treat to have. > I do not remember did you try Imuran? or Cellcept ? > lots of hugs and blessings > > > > > > In a message dated 09/17/08 18:07:29 Eastern Daylight Time, mosaicgirl1@... writes: > > Hey Guys, > > Is the thyroid suseptible to sarcoid. I am still having lots of > negative blood tests and MRI's but the vitamin D and thyroid are off. I > am starting up with this new rheumatologist and my first visit she > brought up the fact that one idiot thought it was in my head and also > said that I looked healthy as a horse. Doesn't bode well for me does > it? > > I am trying not to get upset; I am seeing her next week. She doesn't > know that I know the MRI's just showed arthritis. Another doc let it > slip (they were not aware I had not received the results yet) during a > visit. She is going to let me have a prednisone IM injection but she > will discuss treatment with me next week. > > Please say a prayer for me that there will be some type of resolution. > I have accepted the fact that I will not be able to get Cytoxan anymore > but there has got to be something out there for me. I had even > entertained the idea during the cytoxan treatment that I may be able to > go back to work or to school. That is out now.... > > Well, thanks for listening guys. I really appreciate it. > > Terri G. > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.