Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 At 06:20 PM 3/9/2010, you wrote: I feel awesome and so validated that the Dr. was so impressed with my results. Oh...and I'm barely anemic anymore, just slightly below normal! Congratulations! And glad we were able to help! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2010 Report Share Posted March 9, 2010 You don't want to be in Arizona right now, because it's been cloudy and rainy for days! We've gotten more rain in the first two months of the year then we did all of last year, and all of the reservoirs are full (definitely a good thing). But I want my sunshine back! Holly Crohn's SCD 12/01/08 > > Wow. Sounds like you founds something that works for you. It makes me wonder about myself. I crave sunlight like I'm thirsty. I live near Seattle and most days (except maybe a handful every month) this time of year there are think clouds overhead. You can't see shadows from things, and the lights inside the house are often brighter than the light coming from outside. I have been taking Vitamin D for a couple years. Along with some other things it helped my hair grow back. But I wonder how much better my body would heal in sunlight? I was going to go to Arizona to visit a friend this year, but with being sick, I haven't had a break from school since I was diagnosed last June. All my work ends up taking longer so I have no days off by the time I make up work from previous quarter/etc. I miss sunshine sooo much! I had this feeling like if I could just get somewhere sunny I could heal, but then, I am too weak to take care of myself right now, so I'll have to wait to test that theory. Congrats on getting yourself on the road to recovery! > > Kat > 27 > UC since June '09 > SCD since Feb '10 > Prednison 5mg, rhodiola rosea, iron, other suppliments, probiotics Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 Marilyn, I don't know if it's possible, but the week of March 20, could I not get emails from the blog? Marla P. dustman8625@... I feel awesome and so validated that the Dr. was so impressed with my results. Oh...and I'm barely anemic anymore, just slightly below normal!Congratulations! And glad we were able to help! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2010 Report Share Posted March 10, 2010 At 12:35 PM 3/10/2010, you wrote: I don't know if it's possible, but the week of March 20, could I not get emails from the blog? Marla, Go to the group's main page. Click on " Edit my membership " and scroll down. You can change it to " Read from Web " for that week, and then change it back when you are ready to get emails again. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 At 10:18 AM 3/11/2010, you wrote: I didn't think tiny bits of things would be a big deal, but I recently reacted to (I think) a new brand of iron suppliment that my doc says is most easily absorbed, but which has both spirulina and soy products. I guess a little bit does go a long way! Or that I have an intollerance I suppose. Both spirulina and soy are SCD illegal. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 LOL, well, I really shouldn't complain. Arizona is great most of the time (you can't knock 300 days of sunshine a year). And the sun has finally been located and restored to its rightful place! It's even supposed to get to the 80's this week :-) Holly Crohn's SCD 12/01/08 > > > > You don't want to be in Arizona right now, because it's been cloudy and rainy for days! We've gotten more rain in the first two months of the year then we did all of last year, and all of the reservoirs are full (definitely a good thing). But I want my sunshine back! > > > > Holly > > Crohn's > > SCD 12/01/08 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Amelia, I will check with my doctor and see if I can get some studies online - it would be great to share this. If I get any info I'll post it with DHEA in the title so everyone can find it. Kat > > Kat, > > That is pretty interesting about the DHEA! So would you say that the amount of DHEA required is equal to the Prednisone being taken? If you have any literature/studies links, I would be interested in reading them. If not, no worries, just curious--would like to know for a future 'just in case' scenario. > > Amelia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? Ack! Too many questions. Thanks everyone for helping me figure this out! Kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Good to hear. I wouldn't want my future home to become more Seattle-like! In weather anyway. Too many beautiful hikes to miss out on. Although your thunderstorms in the summer are spectacular...I love big skies. Think sunny thoughts for me! :-D Kat > > > > > > You don't want to be in Arizona right now, because it's been cloudy and rainy for days! We've gotten more rain in the first two months of the year then we did all of last year, and all of the reservoirs are full (definitely a good thing). But I want my sunshine back! > > > > > > Holly > > > Crohn's > > > SCD 12/01/08 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 I would definitely suck it up and take the shot, and not have to worry about it! I am sure the shot would better absorb the iron than a damaged gut. > > > > Kat, Iron supplements feed bad bacteria. Perhaps that is why you reacted. > > > > > > I've been taking iron supplements since December due to the continued bleeding. It has been believed by both my gastroenterologist and my naturopath that started me on SCD that the risk of feeding the bad bacteria was less than the risk of letting me get more anemic, especially since I am symptomatic of anemia even when the numbers are fairly high but not normal - fainting, fatigue, all that. > > I keep thinking I should stop taking the supplements, but I am still losing a little blood every day. I am eating beef, I can tolerate beef liver, but I don't know that the amount of iron in those would make up for what I am losing in my stool. The treatment plan was to keep me on the iron supplements until my anemia was totally gone (just got some ferretin levels to get up at this point - all else normal!), then stop the supplements. > > Do you think this is possibly a more harmful way to go? My thinking is that the faster I can kill off the bacteria the better, even if it means I have to get an iron shot - I have heard people get those - I'm a little afraid of the pain, but I can deal with it. I am worried about prolonging the battle in my guts and causing more harm. I would rather lose a little iron intake personally and instead stop bleeding, but feel weird going against what my doctor recommended, and looking at my record, the bleeding probably won't stop anyway, at least for some time. If the bacteria are not getting too much carbs anymore, will the iron really make a difference? > > Ack! Too many questions. Thanks everyone for helping me figure this out! > > Kat > Quote Link to comment Share on other sites More sharing options...
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