Re: Vertigo

[Guest guest]

Marla,

Guess I should of added that I have an appointment with Univeristy of

Texas South West in Dallas, Texas on Apr.8 2009. Made the appintment

over 6 months ago. UTSW has highest success rate in treating and

control this monster. I am hopeful that will be able to change Drs at

that time. Also I have only been aware of Sarcoidosis for 1 year now.

But looking over my history and listening to people online here. I

think I may had it for alot longer then that. Because several times

over last 15 I have been misdiagnose with Hep. B and everytime the

tested for Hep. B I came up clean and there was no further testing or

diagnose. I am truthfully Blessed to have so mild of case compare to

others at time it just in my brain, and if I get it under control. I

will be able to do what I love and be a Master Auto Tech for Mercedes-

Benz again.

Marla thank you for your comments and may you have many blessed and

pain free days.

Greg

> > >

> > >

> > > >Hi everyone, I have been in the hospital again, due to severe

> > vertigo.

> > > Has anyone had a problem with this? It is devestating. i can

barely

> > > stand let alone move without turning or even looking right. It

> > started

> > > so suddenly and set off an adrenal crisis, i was so sick I did

not

> > eat

> > > for days. I am receiving vestibular therapy and it is going very

> > well.

> > > It has been nice to read the check-in posts. I had the hardest

time

> > > sending mine it kept coming back as an attachment but I had not

> > thought

> > > I had attached but of course my niece came over and straightened

> > out

> > > for me. Thoughts and prayers to all your sarc friend Anne

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Greg, my vertigo is different. It occurs when I look up (keeps me from changing ceiling light bulbs!) and if I lie flat. It used to occur whenever I turned to my right side or just turned my head, like at the dentist. But over the past couple of years, that's improved. Now it's mostly just when I look up. It started back in 1999 with the first attack on my 8th cranial nerve; lost much of my hearing in the right ear, developed tinnitis & vertigo. I've gotten used to the tinnitis, although I never thought I would; I thought it would drive me crazy. The vertigo was severe at first & Antivert helped, but gradually lessened. When the sarc hit the left nerve, I just had the hearing loss, but no tinnitis or vertigo. Weird, huh? The other thing that happens with the vertigo is nystagmus, where my eyes zip back & forth. Really freaks people out. I keep wanting to take my video camera to a neurology appt & have him trigger a good bout of vertigo, then video the eye trick.

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