New Intro/Questions

[Guest guest]

Hi,

I'm new here. I'm , DH is Mark. Our 2 boys are Austin (8yo, Aspergers,

Homeschooled) and Ty (4yo NT). We just found out yesterday that Austin is

allergic to casein, gluten, and egg whites. So....here I am! We live in San

, Texas. We have been on the Feingold diet (no artificial colors,

flavors, preservatives) for about 1 year so we are not new to reading labels,

etc.

I've been trying to get a handle on this new diet but there is so much

information! Is there a central organization that researches products and puts

out a food list similar to the Feingold Association? Here are some of my other

questions:

1) If a person is allergic to casein, can they still eat butter?

2) Is there a list anywhere of acceptable foods available at common fast food

restaurants like Mc's, 's, etc?

3) Is there anyone in my area (San , TX) that can let me know what

they've found out about local restaurants, especially Taco Cabana and Luby's?

(Feel free to e-mail me privately for this.)

4) What do you do when you go somewhere that says " no outside food or beverages "

when you know there's probably nothing safe to eat there? I was thinking about

carrying around a copy of his allergy testing or a prescription or something (or

just sneak the food in).

5) Is there a list of ingredients where gluten/casein can be hidden (like

modified food starch, whey, barley malt extract) that you just have to " know "

what that is.

6) Is chocolate OK? What about cocoa butter?

7) I'm just imagining myself trying to explain this diet to a waiter or waitress

in a crowded, noisy restaurant. Do you just avoid this situation completely or

is there an easy way to ask for what you want?

8) What about that product called Seren-Aid (or something like that)? Is it

effective and worth purchasing?

Well, that is enough for now! I'm looking forward to learning from this list.

Thanks in advance,

[Guest guest]

www.gfcfdiet.com has most of the lists and information you requested. as for

fast food each chain has their own web site where you can look at the

ingredients . But so far all I have really found is fries and a hamburger

patty{no bun} from mcdonalds. most of the other s fast food chain either

add somthing to the frys or the fry them with somthing we cant have which

then makes it unacceptable. And I just read here this morning somtimes they

clean all the oil vats at night filter them together and then re use next

day-so who knows what was fried in that oil-but so far for us no bad

reactons to mcdonalds frys. Lis aF

New Intro/Questions

> Hi,

>

> I'm new here. I'm , DH is Mark. Our 2 boys are Austin (8yo,

Aspergers, Homeschooled) and Ty (4yo NT). We just found out yesterday that

Austin is allergic to casein, gluten, and egg whites. So....here I am! We

live in San , Texas. We have been on the Feingold diet (no

artificial colors, flavors, preservatives) for about 1 year so we are not

new to reading labels, etc.

>

> I've been trying to get a handle on this new diet but there is so much

information! Is there a central organization that researches products and

puts out a food list similar to the Feingold Association? Here are some of

my other questions:

>

> 1) If a person is allergic to casein, can they still eat butter?

>

> 2) Is there a list anywhere of acceptable foods available at common fast

food restaurants like Mc's, 's, etc?

>

> 3) Is there anyone in my area (San , TX) that can let me know what

they've found out about local restaurants, especially Taco Cabana and

Luby's? (Feel free to e-mail me privately for this.)

>

> 4) What do you do when you go somewhere that says " no outside food or

beverages " when you know there's probably nothing safe to eat there? I was

thinking about carrying around a copy of his allergy testing or a

prescription or something (or just sneak the food in).

>

> 5) Is there a list of ingredients where gluten/casein can be hidden (like

modified food starch, whey, barley malt extract) that you just have to

" know " what that is.

>

> 6) Is chocolate OK? What about cocoa butter?

>

> 7) I'm just imagining myself trying to explain this diet to a waiter or

waitress in a crowded, noisy restaurant. Do you just avoid this situation

completely or is there an easy way to ask for what you want?

>

> 8) What about that product called Seren-Aid (or something like that)? Is

it effective and worth purchasing?

>

> Well, that is enough for now! I'm looking forward to learning from this

list. Thanks in advance,

>

>

>

>

>

[Guest guest]

Hi -

Welcome - I have answered your questions below....

> > 1) If a person is allergic to casein, can they still eat butter?

NOPE - No whey dude...

> >

> > 2) Is there a list anywhere of acceptable foods available at

common fast

> food restaurants like Mc's, 's, etc?

www.GFCFdiet.com - is extremely helpful. We go to Mcs and get

french fries and hamburgers with just the patty (no pickle, ketchup

or anything on it) and my son like this. You must check that your

local Mac's abides by the Macs standard and uses a

separate fryer for the nuggets and the fries... otherwise the fries

are contaminated. We don't do Burger King or s because they

don't separate their friers.

> > 4) What do you do when you go somewhere that says " no outside

food or

> beverages " when you know there's probably nothing safe to eat

there? I was

> thinking about carrying around a copy of his allergy testing or a

> prescription or something (or just sneak the food in).

I bring in my food regardless of any sign. We haven't had a problem

yet - and if we do I can use the old - " Do you want the liability of

my son going into shock and being rushed to the ER? " I don't bother

to explain the whole autism/brain/gut connection - I just say (as

A says) " My son is 911 allergic to gluten and casein " nobody

will argue with that - and if they do, I wouldn't want to go there.

> >

> > 5) Is there a list of ingredients where gluten/casein can be

hidden (like

> modified food starch, whey, barley malt extract) that you just have

to

> " know " what that is.

> >

> > 6) Is chocolate OK? What about cocoa butter?

cocoa butter is ok - but you need to check the other ingredients -

there are sometimes issues with vanila extract depending on if there

is alcohol in it and what type of alcohol... check GFCFdiet.com

> >

> > 7) I'm just imagining myself trying to explain this diet to a

waiter or

> waitress in a crowded, noisy restaurant. Do you just avoid this

situation

> completely or is there an easy way to ask for what you want?

We (or should I say my " Bronx Boy " hubby) are not shy - we ask lots

of questions, but we usually bring our own food.

> >

> > 8) What about that product called Seren-Aid (or something like

that)? Is

> it effective and worth purchasing?

We are using Kirkman's Enzymeaid - which is similar to SerenAid - I

think this product is worth getting. We have a patter of regression

following a dietary infraction. It usually takes my son 3 weeks to

get over it and " come back " to us. The Enzymeaid makes this time

frame shorter - maybe a week total, which is much more doable. Also,

we have started supplimenting twice a day with Enzymeaid and have

seen improvements with this practice. We are working with Dr Jerry

Kartzinel and Dr Jeff Bradstreet in Florida at the Good News Doctor

Foundation - he has a ton of experience with Autistic kids - web site

www.gnd.org (I think)

Hope that was helpful.

I am not always on this list, but I pop in from time to time. I have

been doing the diet since January 2000 - so, I guess I'm a veteran.

You can email me directly if you have any questions.

Moira

moira@...

Mom to Vico (4 ASD) and Culzean (almost 15 months)