update from neuro visit yesterday.

[Guest guest]

Hello everyone , I hope this finds everyone in a pain free time.

well my neuro dr showed me my blood tests and my wbc is 1.0 and he is very worried because of my spinal tap results and now my wbc like that. He said we are stuck between a rock and a hard place. I have been having blk out spells along with all the other symtoms and he said he can't increase the immuspresion drugs at all at this point. He said i need to wear a mask when i go out in public.

so today the nurse is coming to start my IV again for steriod IV at home for a week. than by mouth after that.

He pulled my licence for 3 months he said with the blk outs he does not want me driving.

i have to have a catscan of my chest and another lung function test . He said the chance of the lesions in the lymph nodes in the chest. I have to have loads of blood work done again.

But this is my update, I wish everyone well and pain free days and i will keep intouch as i can.

love you all

Many Blessings A.

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[Guest guest]

,

My heart goe out to you. I know for me, to not be able to drive would be devasting. You are one strong woman, and I so admire your tenacity.

I'll see what I can find on why wbc drops the way it has and figure out what you can do to raise it back up.

With love,

Tracie

Subject: update from neuro visit yesterday.To: neurosarcoidosis Date: Tuesday, March 31, 2009, 12:12 PM

Hello everyone , I hope this finds everyone in a pain free time.

well my neuro dr showed me my blood tests and my wbc is 1.0 and he is very worried because of my spinal tap results and now my wbc like that. He said we are stuck between a rock and a hard place. I have been having blk out spells along with all the other symtoms and he said he can't increase the immuspresion drugs at all at this point. He said i need to wear a mask when i go out in public.

so today the nurse is coming to start my IV again for steriod IV at home for a week. than by mouth after that.

He pulled my licence for 3 months he said with the blk outs he does not want me driving.

i have to have a catscan of my chest and another lung function test . He said the chance of the lesions in the lymph nodes in the chest. I have to have loads of blood work done again.

But this is my update, I wish everyone well and pain free days and i will keep intouch as i can.

love you all

Many Blessings A.

Need a job? Find employment help in your area.

[Guest guest]

, I am sorry you are dealing with so much, know you are in my prayers always. Marla

 

Hello everyone , I hope this finds everyone in a pain free time.

well my neuro dr showed me my blood tests and my wbc is 1.0 and he is very worried because of my spinal tap results and now my wbc like that. He said we are stuck between a rock and a hard place. I have been having blk out spells along with all the other symtoms and he said he can't increase the immuspresion drugs at all at this point. He said i need to wear a mask when i go out in public.

so today the nurse is coming to start my IV again for steriod IV at home for a week. than by mouth after that.

He pulled my licence for 3 months he said with the blk outs he does not want me driving.

i have to have a catscan of my chest and another lung function test . He said the chance of the lesions in the lymph nodes in the chest. I have to have loads of blood work done again.

But this is my update, I wish everyone well and pain free days and i will keep intouch as i can.

love you all

Many Blessings A.

Need a job? Find employment help in your area.