Re: Atypical club feet????

[Guest guest]

I, too, suspected that my son's foot was atypical/complex (he was born

on Nov. 3 LCF). I emailed a few pictures of his foot to Dr. Ponseti

and he seemed to think that based on what he could see, the foot was

complex. However, it's hard to determine from pictures alone since you

can't check the flexibility. My son's doctor who is POnseti certified

checked his foot and believed that even though it was on the severe

side of the spectrum, it was not atypical/complex since it wasn't very

stiff.

>

> was born on October 27 with bilateral club feet. She is in

the

> casting phase and is doing well. I was wondering how I would know

if

> her feet are " atypical club feet " or not? I have heard that term

and

> do not know. Her doctor has not said that they are atypical and has

> described them as " on the better side of moderate " as club feet go.

> She has good flexibility (dorsiflexion) and is responding well to

> casting. I would post a picture but am not sure how to put it into

the

> body of this email. (I am high-tech challenged!)

>

> Carol and , born 10-27-05, bcf, serial casting stage

>

[Guest guest]

Thanks for clearing it up, Faith. I'm too new at this and don't want

to give misleading info. I thought a lot of it had to do with the

flexibility of the foot.

> >

> > was born on October 27 with bilateral club feet. She is

in

> the

> > casting phase and is doing well. I was wondering how I would

know

> if

> > her feet are " atypical club feet " or not? I have heard that

term

> and

> > do not know. Her doctor has not said that they are atypical and

has

> > described them as " on the better side of moderate " as club feet

go.

> > She has good flexibility (dorsiflexion) and is responding well

to

> > casting. I would post a picture but am not sure how to put it

into

> the

> > body of this email. (I am high-tech challenged!)

> >

> > Carol and , born 10-27-05, bcf, serial casting stage

> >

>

>

>

>

>

>

>

>

[Guest guest]

Hi Carole,

This site dosen't let you send pics so Kori started the clubfootpic

site so we could all share pics of our little cuties. Here is the link

to join

http://health.groups.yahoo.com/group/CFPics/

& Grace

>

[Guest guest]

I am so embarassed every time my site it posted because it isnt up-to-

date lol I have finally found my paper file for it, tho, and hope

to start working on getting it all up-to-date, including getting

fresh info out of Iowa, soon! *does happy dance*

As it happens, alot of things that may seem like they would be a part

of complex/atypical clubfoot, are not necessarily. Kai's foot was

severe in deformity, moderate in flexibility, yet corrects quite

easily ... it just either does something funky in the process or wont

stay.

Faith is right, tho, there are some things that point to a complex

foot. The one thing to remember is that not all of these feet slip

their casts. I don't know why, but Kai never did. He also only

slipped out of the Markells once or twice, but they just did nothing

for him.

Angel

> >

> > was born on October 27 with bilateral club feet. She is

in

> the

> > casting phase and is doing well. I was wondering how I would

know

> if

> > her feet are " atypical club feet " or not? I have heard that term

> and

> > do not know. Her doctor has not said that they are atypical and

has

> > described them as " on the better side of moderate " as club feet

go.

> > She has good flexibility (dorsiflexion) and is responding well to

> > casting. I would post a picture but am not sure how to put it

into

> the

> > body of this email. (I am high-tech challenged!)

> >

> > Carol and , born 10-27-05, bcf, serial casting stage

> >

>

>

>

>

>

>

>

>

[Guest guest]

Angle,

Have you ever heard of Noonan's syndrome...NOT that I think Kai has

it!, but quite a few of the things mentioned in your mess. are common

with this syndrome. As I understand, you can have quite a 'mild' case

of it?? I will attach a link for you to check out. A few of the mom's

kids have been diagnosed with it on a kidney support site I belong to

and one child has a very mild case...IQ tested in the high range, you

really couldn't tell to look at him that he has it - I guess unless

you really knew what you were looking for. Just thought you may want

to check it out...

http://www.emedicine.com/ped/topic1616.htm

& Grace

> > >

> > > was born on October 27 with bilateral club feet. She

is

> in

> > the

> > > casting phase and is doing well. I was wondering how I would

> know

> > if

> > > her feet are " atypical club feet " or not? I have heard that

term

> > and

> > > do not know. Her doctor has not said that they are atypical

and

> has

> > > described them as " on the better side of moderate " as club

feet

> go.

> > > She has good flexibility (dorsiflexion) and is responding

well to

> > > casting. I would post a picture but am not sure how to put it

> into

> > the

> > > body of this email. (I am high-tech challenged!)

> > >

> > > Carol and , born 10-27-05, bcf, serial casting stage

> > >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Oh I didn't take it the wrong way. This whole thing is a new

learning experience for me too so I appreciate everyone's info.

> > >

> > > was born on October 27 with bilateral club feet. She

is

> in

> > the

> > > casting phase and is doing well. I was wondering how I would

> know

> > if

> > > her feet are " atypical club feet " or not? I have heard that

> term

> > and

> > > do not know. Her doctor has not said that they are atypical

and

> has

> > > described them as " on the better side of moderate " as club

feet

> go.

> > > She has good flexibility (dorsiflexion) and is responding well

> to

> > > casting. I would post a picture but am not sure how to put it

> into

> > the

> > > body of this email. (I am high-tech challenged!)

> > >

> > > Carol and , born 10-27-05, bcf, serial casting stage

> > >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi

My daughter is 30 mo and has been in mitchells since 18mo. She had

skinny and flexible feet.and sever B clubfeet. my husband is a photo

nut and took pics. of her feet during the whole process. Even looking

back at the photos now that she developed 'atypical' we or her doctor

did not see anything unusuall until after the tenenotomy. She may be

a different presentation than normal because she has other issues;

hypotonia. I thought I would share her slightly different

presentation. Her feet are beautiful and well corected now.

best wishes

and Sadie

>

> Oh I didn't take it the wrong way. This whole thing is a new

> learning experience for me too so I appreciate everyone's info.

>

>

> > > >

> > > > was born on October 27 with bilateral club feet. She

> is

> > in

> > > the

> > > > casting phase and is doing well. I was wondering how I would

> > know

> > > if

> > > > her feet are " atypical club feet " or not? I have heard that

> > term

> > > and

> > > > do not know. Her doctor has not said that they are atypical

> and

> > has

> > > > described them as " on the better side of moderate " as club

> feet

> > go.

> > > > She has good flexibility (dorsiflexion) and is responding

well

> > to

> > > > casting. I would post a picture but am not sure how to put it

> > into

> > > the

> > > > body of this email. (I am high-tech challenged!)

> > > >

> > > > Carol and , born 10-27-05, bcf, serial casting stage

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Atypical or Complex clubfoot comprises ONE OR MORE of the things you

listed, and they may or may not be present at birth, but will be

become obvious after the tenotomy if the foot was not treated in the

right order for an atypical foot. The key to an atypical clubfoot is

that it either has an overt (obvious) or hidden major difference from

your average clubfoot. If it is the basic make-up of the tendons, it

may not be obvious at birth, but at some time in treatment it will

become obvious because the foot will respond to treatment differently

than expected.

Complex clubfoot can be caused by an underlying syndrome (like

Noonan's, Marfan's, Down's), or because it is secondary to another

condition (such as spina bifida or arthrogryposis). It could also be

a local fetal development issue, like neurological dammage (this

could possibly fall under syndromal too). As often as not, it would

be called idiopathic because no one knows why. Lastly, it can be

caused by poor correction technique.

There is more than one kind of complex clubfoot, too. It appears

right now that the most common is the plantaris type that causes the

high arch, chubby foot, etc. However, I know that there was at least

one person on here who's child had complex clubfoot that was NOT

plantaris type (and ?? Not real positive).

Hope that clears it up a bit.

Angel

> > > > > > > > >

> > > > > > > > > was born on October 27 with bilateral club

> > > feet.

> > > > She

> > > > > > is

> > > > > > > in

> > > > > > > > the

> > > > > > > > > casting phase and is doing well. I was wondering

> how

> > I

> > > > would

> > > > > > > know

> > > > > > > > if

> > > > > > > > > her feet are " atypical club feet " or not? I have

> > heard

> > > > that

> > > > > > > term

> > > > > > > > and

> > > > > > > > > do not know. Her doctor has not said that they

are

> > > > atypical

> > > > > > and

> > > > > > > has

> > > > > > > > > described them as " on the better side of

moderate "

> as

> > > club

> > > > > > feet

> > > > > > > go.

> > > > > > > > > She has good flexibility (dorsiflexion) and is

> > > responding

> > > > > well

> > > > > > > to

> > > > > > > > > casting. I would post a picture but am not sure

how

> > to

> > > put

> > > > it

> > > > > > > into

> > > > > > > > the

> > > > > > > > > body of this email. (I am high-tech challenged!)

> > > > > > > > >

> > > > > > > > > Carol and , born 10-27-05, bcf, serial

> casting

> > > stage

> > > > > > > > >

> > > > > > > >

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