Re: Short Term/Long Term Menory and Sarcoid

[Guest guest]

,

First good day and may you be blessed. Now I also have Neurosarcoidosis

with the swiss memory but also balance issues. Doing surprisingly well lately.

Ok what type of job do you have and are you on Prednisone? The reason I ask is I

tried to go back to work once and had a major flare up and had issues with

relating with co-workers due to the Prednisone side effects. I am working to

change Meds and get on Humira and off Prednisone. I am a Master Tech for

Mercedes-Benz. The will not let me come back to work again until I prove my

memory and balance has improved. Can you imagne forgeting to put oil back into a

motor or forgetting to torque the wheel bolts. That could cost a life. So I

guess it depends on your job and what you have to do. If you are on Prednisone

do you any anger issues, are you short temper? I am all of these right now tho I

think I am doing a good job of controling it right now. I hope you can go back

work cause I am going stir carzy here. well the end of this month I will find

out if Humira is working and if I can start weaning off Prednisone. I do

wish you luck and blessings on going back to work.Just be sure of your memory

and co worker interaction.

Greg aka Krumdawg

" Has anyone seen where I put my........? "

>

> It seems like some doctor visits are good and bad. Seems like some days they

listen and other days they don't. My long term memory seem to be fairly intact,

where as my short term memory is Swiss cheese. I am going to try to go back to

work at the end of the month, but sort of not sure how my boss and co workers

will look at me. I know I am not the same as before. How does one deal with

that.

>

>

>

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>

[Guest guest]

Hi again, How could I possibly forget the speech dificulties which have left me

depressed and led meto isolate even more. I thank God for everyone on this site

it is good to have people who understand. I pray for you all.

>

> Hello everyone, I am jsut generalyl a voyeur on here looking

> ocasioanlly and seeing what is going on but not reading too much.

>

> I am having issues with my Short Term Memory has is getting worse. I

> have mentioned this to my doctor and she doesn't seem concerned. It

> concerns me greatly. Itis affecting my job at times and jsut annoys

> the hell out of me.

>

> Any suggestions from anyone who similiar issues or kow where to turn.

>

> Thanks,

>

>

> brianryan_99@...

>

[Guest guest]

Jackie, your story is very similar to mine. Except its my left side. MRI showed

lesions so they diagnosed MS, then I got bilateral panuveitis so they scanned me

looking for sarcoid and couldn't find it so back to MS, this for 5 years. Then a

galium scan they found it in my lymph nodes in my chests. But it turns out that

before the neurological stuff started I had those red welts on my shins but they

were misdiagnosed too.

I go to the gym to try and keep everything moving but I have had to start using

a walking stick all the time this year. Now my right leg is starting to go and

they are suggesting I get a walking frame.

I don't know why but Í've become really upset and angry since being rediagnosed

just a few weeks ago, even though I've had this thing for years.

Rach

> >

> >

> > From: brianryan_99 <brianryan_99@ ...>

> > Subject: Re: Short Term/Long Term Menory and

Sarcoid

> > To: Neurosarcoidosis@ yahoogroups. com

> > Date: Saturday, October 10, 2009, 2:35 AM

> >

> >

> >

> >

> >

> >

> > It seems like some doctor visits are good and bad. Seems like some

days they listen and other days they don't. My long term memory seem to be

fairly intact, where as my short term memory is Swiss cheese. I am going to try

to go back to work at the end of the month, but sort of not sure how my boss and

co workers will look at me. I know I am not the same as before. How does one

deal with that.

> >

> >

> >

>

[Guest guest]

Until I saw these postings, I was actually beginning to wonder if I was losing

my mind. I too have been suffering memory loss (as if it's on the tip of your

tongue kind of thing but can't remember until like sometimes hours or days later

what I wanted to say). Also, I mispronounce more works than EVER, it's terrible

I even couldn't pronounce the simplest word, (I can't remember at the moment

while I type this but I'll just give an example), " boxing match " . I'd either say

something like " bocking mitch " or " mocksing mach " . I get the letters mixed up or

the words I'm thinking come out wrong when I say them. Oh! And I remember now,

yesterday I was talking and was saying " I don't know why some people get so

'an-J-er' " , mispronouncing the word " anger " -I pronounced the " G " as a J sound as

in Jersey.

I forget the most obvious things so quickly and even call the wrong family names

at the wrong family members at times. I even a few times forgot my niece's name

as she stood right in front of me although I babysit her almost every week! I

bite my tongue pretty often too (literally) as I speak and I suffer pretty much

daily headaches.

I see in many post people talking Vit. B12. I've never taken any vitamins and

have been really bad on talking my folic acid. I only take my methotrexate (20mg

once a week). I just bought some vitamins yesterday and will get another

prescription for my folic acid and see if that helps.

> >

> >

> > From: brianryan_99 <brianryan_99@>

> > Subject: Re: Short Term/Long Term Menory and Sarcoid

> > To: Neurosarcoidosis

> > Date: Saturday, October 10, 2009, 2:35 AM

> >

> >

> >  

> >

> >

> >

> > It seems like some doctor visits are good and bad. Seems like some days they

listen and other days they don't. My long term memory seem to be fairly intact,

where as my short term memory is Swiss cheese. I am going to try to go back to

work at the end of the month, but sort of not sure how my boss and co workers

will look at me. I know I am not the same as before. How does one deal with

that.

> >

> >

> >

>

[Guest guest]

I just turned 25 years old, so I can't blame it on my age, I was diagnosed when

I was 12yrs old. Woke up completely deaf and later had facial paralysis, extreme

muscle weakness (in which I couldn't stand more than 5 minutes without my legs

suddenly giving out) and some type of " lump " in my right eye. At the time I was

the worlds " known " youngest living Neurosarcoidosis patient that my doctors had

ever seen. It took them one full year to diagnose me b/c they never even

considered Neurosarcoidosis at my age, they tested me for one solid year for

Meningitis (needless to say, allllll of the test were negative). I actually

ended up developing meningitis the same year I was diagnosed with

Neurosarcoidosis.

> > >

> > >

> > > From: brianryan_99 <brianryan_99@>

> > > Subject: Re: Short Term/Long Term Menory and Sarcoid

> > > To: Neurosarcoidosis

> > > Date: Saturday, October 10, 2009, 2:35 AM

> > >

> > >

> > >

> > >

> > >

> > >

> > > It seems like some doctor visits are good and bad. Seems like some days

> > > they listen and other days they don't. My long term memory seem to be

> > > fairly intact, where as my short term memory is Swiss cheese. I am going

> > > to try to go back to work at the end of the month, but sort of not sure

> > > how my boss and co workers will look at me. I know I am not the same as

> > > before. How does one deal with that.

> > >

> > >

> > >

> >

>

>

>

>

> ------------------------------------

>

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[Guest guest]

Oh, my goodness! It is so great seeing someone with the same history as I have

had for years -- even since childhood. I just turned 58 in September; however,

as a child my grandmother stated that I was the " youngest old person (she) had

ever seen. " That's because I suffered from short-term memory even then. I only

recently (11 years ago)was diagnosed with sarcoidosis. By the time I was

diagnosed I had gone through numerous tests. Only when I almost went blind did

they perform an MRI, which diclosed not only lung sarcoidosis but hidrocephalus

as well. As a child I suffered from head and stomach problems - which no one

could figure out. I also had cramps in the knees that caused me to fall

sometimes when running during gym.

I am glad to have someone who can relate to me!Now that I am unemployed,

however, I am scared because I have no insurance now; and there is no telling

what else could happen to me.

Right now, I am having problems with my neck and lower back, which I understand

is also associated with sarcoidosis! Any of you have this type of pain?

> > > >

> > > >

> > > > From: brianryan_99 <brianryan_99@>

> > > > Subject: Re: Short Term/Long Term Menory and Sarcoid

> > > > To: Neurosarcoidosis

> > > > Date: Saturday, October 10, 2009, 2:35 AM

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > It seems like some doctor visits are good and bad. Seems like some days

> > > > they listen and other days they don't. My long term memory seem to be

> > > > fairly intact, where as my short term memory is Swiss cheese. I am going

> > > > to try to go back to work at the end of the month, but sort of not sure

> > > > how my boss and co workers will look at me. I know I am not the same as

> > > > before. How does one deal with that.

> > > >

> > > >

> > > >

> > >

> >

> >

> >

> >

> > ------------------------------------

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Neurosarcoidosis Community

> >

> >

> > CHATROOM LINK: http://www.sarcbuddies.com -- Open all the time.....

> >

> > Message Archives:-

> > http://groups.yahoo.com/group/Neurosarcoidosis/messages

> >

> > Members Database:-

> > Listings of locations, phone numbers, and instant messengers.

> > http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

> >