Re: Re: Need to get this off my chest...

[Guest guest]

Subject: Re: Need to get this off my chest...To: Neurosarcoidosis Date: Tuesday, March 16, 2010, 11:27 PM

Thank you everyone who responded to me. I went to the GP this morning and was totally honest about how I feel. Left my brave mask at home! I'm going to see a psychologist and also a service that helps to get people with a chronic illness back into the community.> > > >From: tracie feldhaus <tiodaat2001@ yahoo.com>> >Subject: Re: Need to get this off my chest...> >To: Neurosarcoidosis@ yahoogroups. com> >Date: Monday, March 15, 2010, 3:41 PM> >> >> > > >Rach, you are not a fraud! You are sick. Give yourself some slack- it's easier than tugging on that noose-- honest! > >Many of the meds- prednisone at the top of the list will induce depression. So do most of the medication, as they

all seem to wipe out the B vitamins in our system. Also, if you aren't getting out and pointing that face to the sun for even a couple of minutes a day (those of you who live back east- even under clouds- look upward and the uv's wil come through-- activating the right Vit D in your system. Ten minutes or so a day works wonders. > >If you are in pain- take your medication before you hit the wall, so that your are "controlling" your pain-- instead of trying to get it under control. Pain also wipes out our sleep cycles, and lack of sleep means a disruption in our seratoning and norephinephrine levels-- so you may need an antidepressant. > >Most of us use antidepressants as part of our pain management- so don't go into the "I'm bad because I have a mental illness issue." I'm hoping you read the email I sent out on the Five Levels of Grief-- as it is so very important to understand what is

going on with you. > >Do take care, and know we're here for you.> >Tracie> >NS Co-owner/moderator> >> >> >> >> ____________ _________ _________ __> From: rachyanne <stiks11 (AT) hotmail (DOT) com>> >To: Neurosarcoidosis@ yahoogroups. com> >Sent: Sun, March 14, 2010 9:28:41 PM> >Subject: Need to get this off my chest...> >> > > >I feel such a fraud. if you read back on my posts I was going on about how positive I am about life, and how I'm coping with it all and yet I"m so close to collapsing in a little heap.> >> >Partly because of the sarcoidosis. I was diagnosed with MS for 5 years and had it for 7, and was coping. I went to the MS society, my family did fundraisers, I read about 'cures' and I was coping. And then two things happened.> >>

>1. they rediagnosed me with sarcoidosis and all of the above went out the window.> >> >and > >> >2. we moved to the country. where health services are beyond limited. Today I tried to make an appointment to see my gp because my neuro in the capital city (3 hours away) picked up I need counselling again but my gp will need to organise it. It will 1 and a bit months before I can see the gp, so how will I go getting counselling.> >> >I'm constantly teary and I feel quite alone.> >> >I'm sorry for coming across all "i'm coping" and I hope I didn't make anyone who wasn't feel bad. I just couldn't admit that I wasn't.> >> >I'm also wondering does anyone have bone pain from using cellcept or is this the sarcoid. It's in my knee, down my shin and in my elbow and down my arm.> >> >Rach> >>

>>

[Guest guest]

YOU GO GIRL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

XOXO/HUGS

Subject: Re: Need to get this off my chest...To: Neurosarcoidosis Date: Tuesday, March 16, 2010, 11:27 PM

Thank you everyone who responded to me. I went to the GP this morning and was totally honest about how I feel. Left my brave mask at home! I'm going to see a psychologist and also a service that helps to get people with a chronic illness back into the community.> > > >From: tracie feldhaus <tiodaat2001@ yahoo.com>> >Subject: Re: Need to get this off my chest...> >To: Neurosarcoidosis@ yahoogroups. com> >Date: Monday, March 15, 2010, 3:41 PM> >> >> > > >Rach, you are not a fraud! You are sick. Give yourself some slack- it's easier than tugging on that noose-- honest! > >Many of the meds- prednisone at the top of the list will induce depression. So do most of the medication, as they

all seem to wipe out the B vitamins in our system. Also, if you aren't getting out and pointing that face to the sun for even a couple of minutes a day (those of you who live back east- even under clouds- look upward and the uv's wil come through-- activating the right Vit D in your system. Ten minutes or so a day works wonders. > >If you are in pain- take your medication before you hit the wall, so that your are "controlling" your pain-- instead of trying to get it under control. Pain also wipes out our sleep cycles, and lack of sleep means a disruption in our seratoning and norephinephrine levels-- so you may need an antidepressant. > >Most of us use antidepressants as part of our pain management- so don't go into the "I'm bad because I have a mental illness issue." I'm hoping you read the email I sent out on the Five Levels of Grief-- as it is so very important to understand what is

going on with you. > >Do take care, and know we're here for you.> >Tracie> >NS Co-owner/moderator> >> >> >> >> ____________ _________ _________ __> From: rachyanne <stiks11 (AT) hotmail (DOT) com>> >To: Neurosarcoidosis@ yahoogroups. com> >Sent: Sun, March 14, 2010 9:28:41 PM> >Subject: Need to get this off my chest...> >> > > >I feel such a fraud. if you read back on my posts I was going on about how positive I am about life, and how I'm coping with it all and yet I"m so close to collapsing in a little heap.> >> >Partly because of the sarcoidosis. I was diagnosed with MS for 5 years and had it for 7, and was coping. I went to the MS society, my family did fundraisers, I read about 'cures' and I was coping. And then two things happened.> >>

>1. they rediagnosed me with sarcoidosis and all of the above went out the window.> >> >and > >> >2. we moved to the country. where health services are beyond limited. Today I tried to make an appointment to see my gp because my neuro in the capital city (3 hours away) picked up I need counselling again but my gp will need to organise it. It will 1 and a bit months before I can see the gp, so how will I go getting counselling.> >> >I'm constantly teary and I feel quite alone.> >> >I'm sorry for coming across all "i'm coping" and I hope I didn't make anyone who wasn't feel bad. I just couldn't admit that I wasn't.> >> >I'm also wondering does anyone have bone pain from using cellcept or is this the sarcoid. It's in my knee, down my shin and in my elbow and down my arm.> >> >Rach> >>

>>

[Guest guest]

excellent step

you should celebrate

From: rachyanne <stiks11 (AT) hotmail (DOT) com>Subject: Re: Need to get this off my chest...To: Neurosarcoidosis@ yahoogroups. comDate: Tuesday, March 16, 2010, 11:27 PM

Thank you everyone who responded to me. I went to the GP this morning and was totally honest about how I feel. Left my brave mask at home! I'm going to see a psychologist and also a service that helps to get people with a chronic illness back into the community.> > > >From: tracie feldhaus <tiodaat2001@ yahoo.com>> >Subject: Re: Need to get this off my chest...> >To: Neurosarcoidosis@ yahoogroups. com> >Date: Monday, March 15, 2010, 3:41 PM> >> >> > > >Rach, you are not a fraud! You are sick. Give yourself some slack- it's easier than tugging on that noose-- honest! > >Many of the meds- prednisone at the top of the list will induce depression. So do most of the medication, as they all seem to wipe out the B vitamins in our system. Also, if you aren't getting out and pointing that face to the sun for even a couple of minutes a

day (those of you who live back east- even under clouds- look upward and the uv's wil come through-- activating the right Vit D in your system. Ten minutes or so a day works wonders. > >If you are in pain- take your medication before you hit the wall, so that your are "controlling" your pain-- instead of trying to get it under control. Pain also wipes out our sleep cycles, and lack of sleep means a disruption in our seratoning and norephinephrine levels-- so you may need an antidepressant. > >Most of us use antidepressants as part of our pain management- so don't go into the "I'm bad because I have a mental illness issue." I'm hoping you read the email I sent out on the Five Levels of Grief-- as it is so very important to understand what is going on with you. > >Do take care, and know we're here for you.> >Tracie> >NS Co-owner/moderator> >>

>> >> >> ____________ _________ _________ __> From: rachyanne <stiks11 (AT) hotmail (DOT) com>> >To: Neurosarcoidosis@ yahoogroups. com> >Sent: Sun, March 14, 2010 9:28:41 PM> >Subject: Need to get this off my chest...> >> >Â > >I feel such a fraud. if you read back on my posts I was going on about how positive I am about life, and how I'm coping with it all and yet I"m so close to collapsing in a little heap.> >> >Partly because of the sarcoidosis. I was diagnosed with MS for 5 years and had it for 7, and was coping. I went to the MS society, my family did fundraisers, I read about 'cures' and I was coping. And then two things happened.> >> >1. they rediagnosed me with sarcoidosis and all of the above went out the window.> >> >and > >> >2. we moved to the

country. where health services are beyond limited. Today I tried to make an appointment to see my gp because my neuro in the capital city (3 hours away) picked up I need counselling again but my gp will need to organise it. It will 1 and a bit months before I can see the gp, so how will I go getting counselling.> >> >I'm constantly teary and I feel quite alone.> >> >I'm sorry for coming across all "i'm coping" and I hope I didn't make anyone who wasn't feel bad. I just couldn't admit that I wasn't.> >> >I'm also wondering does anyone have bone pain from using cellcept or is this the sarcoid. It's in my knee, down my shin and in my elbow and down my arm.> >> >Rach> >> >>