Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 Welcome, ! This is a great group - you're gonna love it here! Can you give us some info about yourself, what you want to share, I mean? I'm 41 and am trying to get the DS surgery. Stuck at the insurance approval stage. I would love to see Dr. Rabkin. I live in Northern California. dee 313 want to be 165 --- godschild31707@... wrote: > Hi everyone. My name is and I am just > beginning. I was told > about this site by in SC. I will be calling in > the morning > trying to get an appointment with Dr. in > Atlanta. I need all > the advise that I can get. I can be emailed at > sdrowley2001@.... has been so helpful so > far. I am not > sure how all this works so any help will be great. I > am not exactly > sure how chat rooms work but I would love to talk to > everyone. Thanks > for the help. God bless all. > > > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2001 Report Share Posted September 10, 2001 Hey Ellen! Good to see you back and that you had such a good time! The food there sounds fab.....did you eat alot? what did you have? Hugs, Judie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 Barb, is this the IV Ige infusions. I believe it is a form of gamma globulin-- and is supposed to help heal or at least, calm the nerves. I'll have to look it up- I know it's been mentioned to me, but not really up on it. As for the sinus infection-- are you using the Sinus Rinse-- it is a normal saline wash ph balanced that you can use to flush the sinuses--and I can't begin to tell you how much it helps. With the use of constant oxygen-- I'd be in a box without it! I actually use it -8oz per nostril-- sometimes morning and night (right now, everything is in full bloom-- so the fun begins) and I always use it before bed. Take care, and let me know what form of ivig they're talking about using. Blessings, Tracie NS Co-owner/moderator To: Neurosarcoidosis Sent: Mon, March 15, 2010 1:45:12 PMSubject: hi everyone hello everyone, i have not been on in awhile. i have been dealing with a horrible sinus infection, flu crap ! the latest with me is my skin biopsy came back positive for sarc of the nerves. so i will be starting ivig infusions very soon ! does anyone know anything about this? i have no idea what this entials and googling it just scares the crap out of me ! i hope everyone is feeling ok ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010 it is ivig infusions. the med is called gamma gard. i did do the netti pot and almost drowned lol. To: Neurosarcoidosis Sent: Tue, March 16, 2010 7:00:20 PMSubject: Re: hi everyone Barb, is this the IV Ige infusions. I believe it is a form of gamma globulin-- and is supposed to help heal or at least, calm the nerves. I'll have to look it up- I know it's been mentioned to me, but not really up on it. As for the sinus infection-- are you using the Sinus Rinse-- it is a normal saline wash ph balanced that you can use to flush the sinuses--and I can't begin to tell you how much it helps. With the use of constant oxygen-- I'd be in a box without it! I actually use it -8oz per nostril-- sometimes morning and night (right now, everything is in full bloom-- so the fun begins) and I always use it before bed. Take care, and let me know what form of ivig they're talking about using. Blessings, Tracie NS Co-owner/moderator From: BarbaraW <beautybarnweber@ yahoo.com>To: Neurosarcoidosis@ yahoogroups. comSent: Mon, March 15, 2010 1:45:12 PMSubject: hi everyone hello everyone, i have not been on in awhile. i have been dealing with a horrible sinus infection, flu crap ! the latest with me is my skin biopsy came back positive for sarc of the nerves. so i will be starting ivig infusions very soon ! does anyone know anything about this? i have no idea what this entials and googling it just scares the crap out of me ! i hope everyone is feeling ok ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2010 Report Share Posted March 16, 2010  Tracie Gamma Gobulin is exactly what it is.. I've given to one patient for over 3 years once a month.. hi everyone hello everyone, i have not been on in awhile. i have been dealing with a horrible sinus infection, flu crap ! the latest with me is my skin biopsy came back positive for sarc of the nerves. so i will be starting ivig infusions very soon ! does anyone know anything about this? i have no idea what this entials and googling it just scares the crap out of me ! i hope everyone is feeling ok ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 My older sister was thought to have lupus ab out 10 yrs ago, and her immunologist put her on GG injections to develop an immune system. Hers was wiped out from years of antibiotics as kids. It seems to have worked for her. Makes me wonder if we had worked on balancing my immune system rather than supressing it initially, where I'd be now. .. We know that with our immune systems, that they don't suggest doing herbals or homopathics that increase the power of the immune system as it is in overdrive already. In my heart, I truly believe that there is an answer, under some illusive rock somewhere... I just hope it's a beautiful amethyst crystal ... Take care, Tracie NS Co-owner/moderator To: Neurosarcoidosis Sent: Tue, March 16, 2010 6:24:38 PMSubject: Re: hi everyone  Tracie Gamma Gobulin is exactly what it is.. I've given to one patient for over 3 years once a month.. hi everyone hello everyone, i have not been on in awhile. i have been dealing with a horrible sinus infection, flu crap ! the latest with me is my skin biopsy came back positive for sarc of the nerves. so i will be starting ivig infusions very soon ! does anyone know anything about this? i have no idea what this entials and googling it just scares the crap out of me ! i hope everyone is feeling ok ! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.