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Hi,

My name is Missy. My son is Zev. He is almost 9 months old. He was

born with a lot of bruising on his head and was very coned. He also

had torticollis. My pediatrician told me to do stretches but Zev was

colicy for about a month and I did not want to hurt him....and I

thought I would do it wrong.....anyway,

around 3 months I noticed his head was flattening. The pediatrician

told me that it would round out so I waited. I was still not

satisfied so I took him to a neurosurgeon who said if it were his kid,

he would not helmet him. We tried repositional therapy for about 3-4

months although at that time he was already sleeping on his belly.

About a month ago I made another appointment with another nuerosurgeon

who also felt that he did not need it. He said it was not that bad.

I said that was not good enough. My husband was really against it.

Finally my father, who is a doctor consulted with someone out of state

who looked at pictures and said he was not going to get better on his

own and that he would benefit from a helmet.......

We are getting the boston band through NOPCO. We were fitted on

Monday and will get it this coming monday. I am a mess. Can't stop

talking about it. I know it will be worse for than Zev but I am so

anxious. I would love to hear stories of others who have gone through

this. How did you handle difficult nights? what if he just cries

with it on? What do you do if people stare? Do you ever get to a

point where your out with your child and you just don't think of it.

I know I am doing the best thing for him but I can't help feeling this

way and am very embarrassed.....

missy

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