Re: Calcaneovalgus talipes

[Guest guest]

Kath,

There was an article posted on our CFPics site just a few days ago,

here's the link:

http://www.aafp.org/afp/20040215/865.html

It has a section on calcaneovalgus which sounds like treatment is

usually pretty successful. I don't really know anything about the

tibial bowing so I can't really help you with that part.

I hope this is of some help to you.

>

> Hi Everyone

>

> I have been lurking for a little while, just keeping abreast of all

> your info and advice. Just to refresh your memories, I am from

> Australia and found out by ultrasound that our baby had a right sided

> clubfoot and shortened tibia and fibula about 3 months ago. You have

> all offered invaluable advice over the past few months as I prepare

> for the arrival of my little one.

>

> However, after many further ultrasounds, it appears that our little

> guy's foot is not a typical clubfoot, but is in a position of severe

> dorsilflexion, in a calcaneovalgus position. We have also found that

> our baby's tibia has a posteromedial bow, causing the shortening in

> bone length and the foot position.

>

> This means that our baby's treatment will be three-fold: 1) to treat

> the foot position; 2) to treat the length discrepancy; and 3) to

> treat the bow in the tibia if needed.

>

> Can anyone tell me anything about correcting calcaneovalgus talipes?

> Is it a similar treatment to that of typical clubfoot? I have been

> unable to find much info on this condition short of saying that the

> foot position either: a) resolves itself (not likely in our case as

> caused by the bowed tibia); requires physio; or c) requires serial

> casting.

>

> Also, a likely diagnosis for our little one's lower leg issue is

> called " Posteromedial bowing of the tibia " , which is an incredibly

> rare condition, with apparently only 168 reported cases worldwide

> since 1950......so if anyone knows anything about this condition, or

> knows someone who has experience with the condition, I would really

> appreciate any info or advice.

>

> Thanks in advance

>

> Kath

>

[Guest guest]

Hi, Kath,

Have you thought about communicating with Dr. Ponseti on this at

all? He's probably going to have personal experience with the

posteromedial bowing of the tibia since he's treated so many

children over the years. Maybe also inquire with Naomi in the

UK just because she seems to be on the cutting edge of orthopaedics

there?

I don't know of any Australian doctors that I would be comfortable

referring you to based on my limited knowledge based on personal

testimonies from families down there, but I have read some good

things about Dr. Crawford in NZ though. Hopefully some of the other

Australian/NZ families can point you to a competent doctor.

Please consider emailing Dr. Ponseti about your baby's potential

diagnosis thus far...it can't hurt to get ideas from him. I know

how frustrating it can be trying to research conditions that are

rare and the information available is slim. We're here to help you

in any way we can.

Please keep us posted as you're able,

>

> Hi Everyone

>

> I have been lurking for a little while, just keeping abreast of

all

> your info and advice. Just to refresh your memories, I am from

> Australia and found out by ultrasound that our baby had a right

sided

> clubfoot and shortened tibia and fibula about 3 months ago. You

have

> all offered invaluable advice over the past few months as I

prepare

> for the arrival of my little one.

>

> However, after many further ultrasounds, it appears that our

little

> guy's foot is not a typical clubfoot, but is in a position of

severe

> dorsilflexion, in a calcaneovalgus position. We have also found

that

> our baby's tibia has a posteromedial bow, causing the shortening

in

> bone length and the foot position.

>

> This means that our baby's treatment will be three-fold: 1) to

treat

> the foot position; 2) to treat the length discrepancy; and 3) to

> treat the bow in the tibia if needed.

>

> Can anyone tell me anything about correcting calcaneovalgus

talipes?

> Is it a similar treatment to that of typical clubfoot? I have

been

> unable to find much info on this condition short of saying that

the

> foot position either: a) resolves itself (not likely in our case

as

> caused by the bowed tibia); requires physio; or c) requires

serial

> casting.

>

> Also, a likely diagnosis for our little one's lower leg issue is

> called " Posteromedial bowing of the tibia " , which is an incredibly

> rare condition, with apparently only 168 reported cases worldwide

> since 1950......so if anyone knows anything about this condition,

or

> knows someone who has experience with the condition, I would

really

> appreciate any info or advice.

>

> Thanks in advance

>

> Kath

>

[Guest guest]

Thanks

That is a useful article and certainly explains some

of the ways a calcaneovalgus talipes may be treated.

I have read that treatment of " positional "

calcaneovalgus is usually very successful, but can't

find any info on how successfully it is treated as

related to posteromedial tibial bowing, given that the

reason the foot is forced into that position is

because the tibia is bent in that direction.

Thanks again, I appreciate your help.

Kath

--- wrote:

> Kath,

>

> There was an article posted on our CFPics site just

> a few days ago,

> here's the link:

> http://www.aafp.org/afp/20040215/865.html

>

> It has a section on calcaneovalgus which sounds like

> treatment is

> usually pretty successful. I don't really know

> anything about the

> tibial bowing so I can't really help you with that

> part.

>

> I hope this is of some help to you.

>

>

>

> >

> > Hi Everyone

> >

> > I have been lurking for a little while, just

> keeping abreast of all

> > your info and advice. Just to refresh your

> memories, I am from

> > Australia and found out by ultrasound that our

> baby had a right sided

> > clubfoot and shortened tibia and fibula about 3

> months ago. You have

> > all offered invaluable advice over the past few

> months as I prepare

> > for the arrival of my little one.

> >

> > However, after many further ultrasounds, it

> appears that our little

> > guy's foot is not a typical clubfoot, but is in a

> position of severe

> > dorsilflexion, in a calcaneovalgus position. We

> have also found that

> > our baby's tibia has a posteromedial bow, causing

> the shortening in

> > bone length and the foot position.

> >

> > This means that our baby's treatment will be

> three-fold: 1) to treat

> > the foot position; 2) to treat the length

> discrepancy; and 3) to

> > treat the bow in the tibia if needed.

> >

> > Can anyone tell me anything about correcting

> calcaneovalgus talipes?

> > Is it a similar treatment to that of typical

> clubfoot? I have been

> > unable to find much info on this condition short

> of saying that the

> > foot position either: a) resolves itself (not

> likely in our case as

> > caused by the bowed tibia); requires physio; or

> c) requires serial

> > casting.

> >

> > Also, a likely diagnosis for our little one's

> lower leg issue is

> > called " Posteromedial bowing of the tibia " , which

> is an incredibly

> > rare condition, with apparently only 168 reported

> cases worldwide

> > since 1950......so if anyone knows anything about

> this condition, or

> > knows someone who has experience with the

> condition, I would really

> > appreciate any info or advice.

> >

> > Thanks in advance

> >

> > Kath

> >

>

>

>

>

>

__________________________________________________

[Guest guest]

Kath,

I just wanted to tell you about this story I saw recently

http://www.thecourier.com.au/detail.asp?class=news & subclass=local & story_id=44715\

6 & category=General%20News & m=12 & y=2005

I wish I had more details on the whys of this story, as in why they

amputated her clubfoot but it just makes me sad that this had to

happen to this little girl. While it is great that she has this new

prosthesis it worries me for you because of the fact that this story

is coming out of Australia. I hope you don't take this story as

trying to scare you, I just want to reinforce what you are already

doing by doing all your research to make sure your baby gets the best

possible care.

More and more it is coming clear that these foot deformities are so

easily treated but it is also obvious that there are still some docs

out there who just don't get it. I don't know if you've read the

story here about Joyce and her daughter . was adopted

from China and had been walking on uncorrected clubfeet for 3 years.

Joyce was told by one group of doctors that they might have to

amputate. She ended up going to see Dr. Ponseti, and long story

short, is now re-learning to walk on her newly corrected feet,

all with only the one relatively minor surgery.

My point is that I know it may seem daunting and everything is kind of

an unknown now, but I know that the right treatment is out there for

your baby. I hope that you will continue to keep us posted and if

there is anything else we can do for you please let us know.

> > >

> > > Hi Everyone

> > >

> > > I have been lurking for a little while, just

> > keeping abreast of

> > all

> > > your info and advice. Just to refresh your

> > memories, I am from

> > > Australia and found out by ultrasound that our

> > baby had a right

> > sided

> > > clubfoot and shortened tibia and fibula about 3

> > months ago. You

> > have

> > > all offered invaluable advice over the past few

> > months as I

> > prepare

> > > for the arrival of my little one.

> > >

> > > However, after many further ultrasounds, it

> > appears that our

> > little

> > > guy's foot is not a typical clubfoot, but is in a

> > position of

> > severe

> > > dorsilflexion, in a calcaneovalgus position. We

> > have also found

> > that

> > > our baby's tibia has a posteromedial bow, causing

> > the shortening

> > in

> > > bone length and the foot position.

> > >

> > > This means that our baby's treatment will be

> > three-fold: 1) to

> > treat

> > > the foot position; 2) to treat the length

> > discrepancy; and 3) to

> > > treat the bow in the tibia if needed.

> > >

> > > Can anyone tell me anything about correcting

> > calcaneovalgus

> > talipes?

> > > Is it a similar treatment to that of typical

> > clubfoot? I have

> > been

> > > unable to find much info on this condition short

> > of saying that

> > the

> > > foot position either: a) resolves itself (not

> > likely in our case

> > as

> > > caused by the bowed tibia); requires physio; or

> > c) requires

> > serial

> > > casting.

> > >

> > > Also, a likely diagnosis for our little one's

> > lower leg issue is

> > > called " Posteromedial bowing of the tibia " , which

> > is an incredibly

> > > rare condition, with apparently only 168 reported

> > cases worldwide

> > > since 1950......so if anyone knows anything about

> > this condition,

> > or

> > > knows someone who has experience with the

> > condition, I would

> > really

> > > appreciate any info or advice.

> > >

> > > Thanks in advance

> > >

> > > Kath

> > >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Thanks

I will start with Dr Ponseti, and if I feel like I

need more info I will contact Dr Davies. Being in the

UK, she is still a long way from Australia!!

I think I have read everything on the internet about

both talipes and tibial bowing by now (not to mention

hemimelia, hemihypertrophy, hemiatrophy,

fibula-femur-ulna complex, amniotic bands,

pseudoarthrosis and anything about lower leg

differences!). I have also done significant library

and journal research to find info. My husband calls

me a walking medical dictionary and I talk to Dr's in

their own language....which some of them do seem to

find a bit disconcerting )).

Thanks for your well wishes and advice, and I will

certainly keep you posted!

Kath

--- wrote:

> Hi Kath,

>

> Isn't the internet a great thing?! So good that you

> have been doing

> your own research and we hope for the best possible

> outcome for your

> little one.

>

> I did a quick google search and found that

> calcaneovalgus is lumped

> in with or classified as a form of clubfoot. I would

> think that Dr.

> Davies would have treated many such cases. Have

> heard nothing but

> wonderful things about her!

>

> Being Ponseti trained, she would have a very

> intimate knowledge of

> how to manipulate the bones of the foot in just the

> right way to get

> them back into alignment, one would think that she

> would be able to

> do this with a calcaneovalgus foot as well. Give her

> a call anyway

> and I would DEFINATELY call Dr. Ponseti too.

>

> Hope you are feeling well =)

>

> & Grace 18 mos

> unilateral rcf FAB 13 hrs

>

>

> > > >

> > > > Hi Everyone

> > > >

> > > > I have been lurking for a little while, just

> > > keeping abreast of

> > > all

> > > > your info and advice. Just to refresh your

> > > memories, I am from

> > > > Australia and found out by ultrasound that our

> > > baby had a right

> > > sided

> > > > clubfoot and shortened tibia and fibula about

> 3

> > > months ago. You

> > > have

> > > > all offered invaluable advice over the past

> few

> > > months as I

> > > prepare

> > > > for the arrival of my little one.

> > > >

> > > > However, after many further ultrasounds, it

> > > appears that our

> > > little

> > > > guy's foot is not a typical clubfoot, but is

> in a

> > > position of

> > > severe

> > > > dorsilflexion, in a calcaneovalgus position.

> We

> > > have also found

> > > that

> > > > our baby's tibia has a posteromedial bow,

> causing

> > > the shortening

> > > in

> > > > bone length and the foot position.

> > > >

> > > > This means that our baby's treatment will be

> > > three-fold: 1) to

> > > treat

> > > > the foot position; 2) to treat the length

> > > discrepancy; and 3) to

> > > > treat the bow in the tibia if needed.

> > > >

> > > > Can anyone tell me anything about correcting

> > > calcaneovalgus

> > > talipes?

> > > > Is it a similar treatment to that of typical

> > > clubfoot? I have

> > > been

> > > > unable to find much info on this condition

> short

> > > of saying that

> > > the

> > > > foot position either: a) resolves itself (not

> > > likely in our case

>

=== message truncated ===

__________________________________________________

[Guest guest]

Thanks

The second article you attached was the first one that

started me on my tibial bowing research!

Kath

--- novemberfable wrote:

> Hi Kath, here are a few links I've found. I don't

> know if you've

> taken a look at any of these yet. Sorry I can't be

> of much help.

>

>

http://www.wheelessonline.com/ortho/posteromedial_tibial_bowing

>

> http://www.emedicine.com/orthoped/topic449.htm

>

>

> http://www.teambone.com/chapters/peds/tad/tad.html

>

>

>

> > > >

> > > > Hi Everyone

> > > >

> > > > I have been lurking for a little while, just

> > > keeping abreast of all

> > > > your info and advice. Just to refresh your

> > > memories, I am from

> > > > Australia and found out by ultrasound that our

> > > baby had a right sided

> > > > clubfoot and shortened tibia and fibula about

> 3

> > > months ago. You have

> > > > all offered invaluable advice over the past

> few

> > > months as I prepare

> > > > for the arrival of my little one.

> > > >

> > > > However, after many further ultrasounds, it

> > > appears that our little

> > > > guy's foot is not a typical clubfoot, but is

> in a

> > > position of severe

> > > > dorsilflexion, in a calcaneovalgus position.

> We

> > > have also found that

> > > > our baby's tibia has a posteromedial bow,

> causing

> > > the shortening in

> > > > bone length and the foot position.

> > > >

> > > > This means that our baby's treatment will be

> > > three-fold: 1) to treat

> > > > the foot position; 2) to treat the length

> > > discrepancy; and 3) to

> > > > treat the bow in the tibia if needed.

> > > >

> > > > Can anyone tell me anything about correcting

> > > calcaneovalgus talipes?

> > > > Is it a similar treatment to that of typical

> > > clubfoot? I have been

> > > > unable to find much info on this condition

> short

> > > of saying that the

> > > > foot position either: a) resolves itself (not

> > > likely in our case as

> > > > caused by the bowed tibia); requires

> physio; or

> > > c) requires serial

> > > > casting.

> > > >

> > > > Also, a likely diagnosis for our little one's

> > > lower leg issue is

> > > > called " Posteromedial bowing of the tibia " ,

> which

> > > is an incredibly

> > > > rare condition, with apparently only 168

> reported

> > > cases worldwide

> > > > since 1950......so if anyone knows anything

> about

> > > this condition, or

> > > > knows someone who has experience with the

> > > condition, I would really

> > > > appreciate any info or advice.

> > > >

> > > > Thanks in advance

> > > >

> > > > Kath

> > > >

> > >

> > >

> > >

> > >

> > >

> >

> >

> > __________________________________________________

> >

[Guest guest]

Thanks

I had read this story and was horrified! It is really

sad that parents don't ask more questions and seek

second and third opinions!

I certainly don't want to be one of those parents.

That is why I am arming myself with info on all the

possible treatments before my baby arrives.....I don't

want to be cajoled into a treatment path I don't agree

with when I am feeling emotional and hormonal after

just having given birth to my beautiful baby boy!

Thanks for all your help.

Kath

--- wrote:

> Kath,

>

> I just wanted to tell you about this story I saw

> recently

>

http://www.thecourier.com.au/detail.asp?class=news & subclass=local & story_id=44715\

6 & category=General%20News & m=12 & y=2005

> I wish I had more details on the whys of this story,

> as in why they

> amputated her clubfoot but it just makes me sad that

> this had to

> happen to this little girl. While it is great that

> she has this new

> prosthesis it worries me for you because of the fact

> that this story

> is coming out of Australia. I hope you don't take

> this story as

> trying to scare you, I just want to reinforce what

> you are already

> doing by doing all your research to make sure your

> baby gets the best

> possible care.

> More and more it is coming clear that these foot

> deformities are so

> easily treated but it is also obvious that there are

> still some docs

> out there who just don't get it. I don't know if

> you've read the

> story here about Joyce and her daughter .

> was adopted

> from China and had been walking on uncorrected

> clubfeet for 3 years.

> Joyce was told by one group of doctors that they

> might have to

> amputate. She ended up going to see Dr. Ponseti,

> and long story

> short, is now re-learning to walk on her

> newly corrected feet,

> all with only the one relatively minor surgery.

> My point is that I know it may seem daunting and

> everything is kind of

> an unknown now, but I know that the right treatment

> is out there for

> your baby. I hope that you will continue to keep us

> posted and if

> there is anything else we can do for you please let

> us know.

>

>

>

>

>

> > > >

> > > > Hi Everyone

> > > >

> > > > I have been lurking for a little while, just

> > > keeping abreast of

> > > all

> > > > your info and advice. Just to refresh your

> > > memories, I am from

> > > > Australia and found out by ultrasound that our

> > > baby had a right

> > > sided

> > > > clubfoot and shortened tibia and fibula about

> 3

> > > months ago. You

> > > have

> > > > all offered invaluable advice over the past

> few

> > > months as I

> > > prepare

> > > > for the arrival of my little one.

> > > >

> > > > However, after many further ultrasounds, it

> > > appears that our

> > > little

> > > > guy's foot is not a typical clubfoot, but is

> in a

> > > position of

> > > severe

> > > > dorsilflexion, in a calcaneovalgus position.

> We

> > > have also found

> > > that

> > > > our baby's tibia has a posteromedial bow,

> causing

> > > the shortening

> > > in

> > > > bone length and the foot position.

> > > >

> > > > This means that our baby's treatment will be

>

=== message truncated ===

__________________________________________________

[Guest guest]

Good for you Kath!!

I did see quite a bit of the 'syndromes' linked to a calcaneovalgus

foot as well. Please try to remember that many many women on the

board were also told that they may have other genetic issues because

their little ones had cf. Some opted for genetic testing and some

didn't. I think most or all have had positive outcomes and had just

the cf to deal with.

Have a good friend *who is a peramedic and so has some medical

knowledge* and she was told that her daughter may have some rare

syndrome at Children's.

They put her through testing, worst case scenerio's etc etc. Then

when her daughter Regan was born the doctors that came in to see her

thought that they were looking at the wrong child, she was FINE.

They still insisted on some brutal testing on Regan that involved

taping her body and exraying etc. She said that they were almost

saliavating at the possibility that Regan might have this rare

disorder and she felt like she had to prove to them that she didn't

have it. She said if she had it to do over again that she wouldn't

have had ANY of the tests lol.

Anyway, sorry that turned into a bit of a rant, what I am trying to

say is that try not to worry too much Kath, you will be able to deal

with anything that comes and most likely, it will only be the foot

issue!!

Glad you will be contacting Dr. Ponseti, there is no one better.

Hugs,

& Grace

> > > > >

> > > > > Hi Everyone

> > > > >

> > > > > I have been lurking for a little while, just

> > > > keeping abreast of

> > > > all

> > > > > your info and advice. Just to refresh your

> > > > memories, I am from

> > > > > Australia and found out by ultrasound that our

> > > > baby had a right

> > > > sided

> > > > > clubfoot and shortened tibia and fibula about

> > 3

> > > > months ago. You

> > > > have

> > > > > all offered invaluable advice over the past

> > few

> > > > months as I

> > > > prepare

> > > > > for the arrival of my little one.

> > > > >

> > > > > However, after many further ultrasounds, it

> > > > appears that our

> > > > little

> > > > > guy's foot is not a typical clubfoot, but is

> > in a

> > > > position of

> > > > severe

> > > > > dorsilflexion, in a calcaneovalgus position.

> > We

> > > > have also found

> > > > that

> > > > > our baby's tibia has a posteromedial bow,

> > causing

> > > > the shortening

> > > > in

> > > > > bone length and the foot position.

> > > > >

> > > > > This means that our baby's treatment will be

> > > > three-fold: 1) to

> > > > treat

> > > > > the foot position; 2) to treat the length

> > > > discrepancy; and 3) to

> > > > > treat the bow in the tibia if needed.

> > > > >

> > > > > Can anyone tell me anything about correcting

> > > > calcaneovalgus

> > > > talipes?

> > > > > Is it a similar treatment to that of typical

> > > > clubfoot? I have

> > > > been

> > > > > unable to find much info on this condition

> > short

> > > > of saying that

> > > > the

> > > > > foot position either: a) resolves itself (not

> > > > likely in our case

> >

> === message truncated ===

>

>

> __________________________________________________

>