Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 > CANT TAKE IT ANYMORE!!!!!! starts 2nd grade > next week and he is worse now then he was a couple of > weeks ago (before we started the GFCF diet). He is > more aggressive, more angry, more hyper and just plain > MORE!!!!! Have you considered high phenols? Your description here sounds like many kids with phenol issues. Here is more information on that. http://home.pacbell.net/cscomp/phenol.htm I dont even know how to discipline him. I > dont spank, because I tried it once (and to be honest, > I think that is why he is doing more hitting). Time > outs in his room have no effect ( although I havent > tried banning him to his room the entire day yet). I > have tried soap in the mouth for the swearing (worked > a little, but not consistently), I tried 1-2-3 magic, > but it doesnt work anymore. I have tried throwing > away a toy for everytime he hits, doesnt work. I > really need advice. Have you tried positive, or would he understand? For example, " if you don't hit [or whatever] for the next hour [or however long is achievable but not too much of a strain, needs to be a goal that he can accomplish, you expand it over time], then you can watch tv/play video/ride bike/whatever would work " . > > ALso, the dr told me to stick to staying away from > dairy and wheat, and for tyler he now wants me to stay > away from soy. (great, now what do I do?) Here is my online foods and recipes section, you might find some ideas here. http://home.pacbell.net/cscomp/parentin.htm#onlinefood He gave > me a prescription for the RAST testing, but he left it > blank. He wants me to fill in the foods that I want > tested for ( on this little white prescription note). > Any ideas what foods I should have them test for other > then the 3 listed above? You can look at the foods from this laboratory's listing, maybe just print out this list and write " see attached list " on the prescription form. http://www.greatplainslaboratory.com/ > > > Please, I am truly at the end of my rope. I am > sitting here before noon drinking a Mikes Hard > Lemonade which is DEFINATELY not me. I need some help > and advice soon. I am the worst cook ever and now I > have to try and figure out how to bake breads (which > are harder then normal breads just for the fact that > they dont have GLUTEN) and cookies, and cakes, and > suppers, and I still have no clue what to do for them > for lunches or quick meals. I have the " More from the > Gluten Gormet " book, but mostly international foods > and not alot of help. I am just TOO, TOO overwhelmed > right now. I don't bake bread, I buy Ener-G brand from my health food store, they taste okay to my kids if they are warmed in the microwave or toasted. You can also look for breads in the online foods/recipes link I gave you above. I hope something here helped. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 I had a lot of problems when I started my son on the GFCF diet. No doctor support and we started the diet cold turkey which was a huge mistake. Is that what you've done? If so that could be the cause of all this increased aggression (withdrawal). Otherwise, I would suggest starting your children on digestive enzymes to help them digest the foods they are eating. Some of the digestive enzymes that are popular are serenaid (www.serenaid.com), enzymaid (www.kirkmanlab.com, I think), or peptizyde and hn-zyme prime (www.houstonni.com) My son's diet consists of hash browns or rice or eggs or gfcf cereal and rice milk for breakfasts (and/or turkey sausage/breakfast patties). Lunches are usually energ yeast-free brown rice (or white rice) bread with coconut butter and sara lee oven-roasted turkey breast slices, fruit cups in their own juice but I rinse the fruit in water, diet soda, plain potato chips. Dinners are rice or potatoes, vegetables and a meat (chicken, turkey, pork, fish). My son is allergic to beef and tomatoes and the list goes on and on. All my son's juice (pineapple or pear) is diluted but he recently decided he wasn't going to drink it anymore. What helps calm my son down when he's having problems is l-glutamine (an amino acid). I buy the powdered form and mix a spoonful with 4 to 6 ounces of water. > Okay, I took the kids to the allergist again today and > he did some scratch testing and gave me prescriptions > for the RAST testing. > > I have 2 major problems: > > At the doctor's office my kids were absolutely awful > and I have never been so embarrased in my life. Tyler > (my 2 yr old) was running around everywhere screaming > and trying to run out the doors and throwing awful > tantrums when I wouldnt let him, and (my almost > 7 yr old) was running around, screaming and when I > wouldnt let him run he was yelling at me and hitting > me (even slapped me in the face). Then when the nurse > tried to do the skin testing on him he tried to hit > her and screamed and cried (cant wait to do the blood > test), and TYler screamed and cried the entire 15 > minutes that we had to hold his arm still to wait for > the results. They were yelling, screaming and hitting > each other the entire time the doctor tried to talk to > me about the results and I couldnt hear a thing. I > CANT TAKE IT ANYMORE!!!!!! starts 2nd grade > next week and he is worse now then he was a couple of > weeks ago (before we started the GFCF diet). He is > more aggressive, more angry, more hyper and just plain > MORE!!!!! I dont even know how to discipline him. I > dont spank, because I tried it once (and to be honest, > I think that is why he is doing more hitting). Time > outs in his room have no effect ( although I havent > tried banning him to his room the entire day yet). I > have tried soap in the mouth for the swearing (worked > a little, but not consistently), I tried 1-2-3 magic, > but it doesnt work anymore. I have tried throwing > away a toy for everytime he hits, doesnt work. I > really need advice. > > ALso, the dr told me to stick to staying away from > dairy and wheat, and for tyler he now wants me to stay > away from soy. (great, now what do I do?) He gave > me a prescription for the RAST testing, but he left it > blank. He wants me to fill in the foods that I want > tested for ( on this little white prescription note). > Any ideas what foods I should have them test for other > then the 3 listed above? > > > Please, I am truly at the end of my rope. I am > sitting here before noon drinking a Mikes Hard > Lemonade which is DEFINATELY not me. I need some help > and advice soon. I am the worst cook ever and now I > have to try and figure out how to bake breads (which > are harder then normal breads just for the fact that > they dont have GLUTEN) and cookies, and cakes, and > suppers, and I still have no clue what to do for them > for lunches or quick meals. I have the " More from the > Gluten Gormet " book, but mostly international foods > and not alot of help. I am just TOO, TOO overwhelmed > right now. > > HELP!!!!!! > > > > ===== > Phyllis Parmelee > Visit my website: > THE 100 ACRE WOOD CHILD CARE - My Brand New Website > Like my website? Want to know how you can get one, too? If you are interested in having me build one for you, send me an email. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 >>>>>I CANT TAKE IT ANYMORE!!!!!! starts 2nd grade next week and he is worse now then he was a couple of weeks ago (before we started the GFCF diet). He is more aggressive, more angry, more hyper and just plain MORE!!!!! <<<<<<< >>>>>Please, I am truly at the end of my rope. I am sitting here before noon drinking a Mikes Hard Lemonade which is DEFINATELY not me. I need some help and advice soon. <<<<< Oh Phyllis, your message couldn't have posted at a more perfect time. I'm equally at the end of my rope, and considering medicating my son. I wrote about him a couple of days ago, because I believe he fits the Asperger's label, rather than basic autism. His language was an issue, but he's always had language, it just came in slowly. As he gets older, his behavior seems to get worse. He doesn't hit, bite or kick, but he screams and defies everyone and everything. I was literally in tears driving him home from his first day in Kindergarten. I got there early to talk with the teacher, and they weren't in the class. I decided to wander around and as I neared one hallway, I heard him screaming. He was saying, " Let me go " , " I want to get out of here " , " Don't touch me " , " Leave me alone " . I peered out a window onto the playground and there he was being held by his teacher. The other kids were playing, but she was holding his hand and making him stay in time out, for misbehaving. It was awful, he just kept screaming and making a huge spectacle of himself. When they came in the teacher told me he wouldn't stay in his seat, wandered around the class, took things and touched things he was told to not touch. He wouldn't make choices. He wouldn't make decisions. The only thing he would do was scream and yell. He didn't want to follow the routine at all. I know its new to him, and we're living in a new city and a new home, but I don't know what to do. My life is totally controlled by his behavior. I envy every child I see displaying good behavior. Don't get me wrong, my son can have a very loveable personality, but it's his way or the highway 85% of the time. His other classmates were so well behaved, and here he was screaming and crying, ranting and raving. I'm disgusted with him. The diet has helped a lot, but not enough. I don't know if I should try supplements or finally cave in to trying medication. I've always been against it, but if it would help, and I knew for sure, I would have him pop a pill in a minute. All the OT in the world hasn't help improve things. I've brushed him, swang him, tried listening therapy, tried cranial sacral therapy, and nothing seems to work. By the way, I too considered a beer or glass of wine when I got home, but I opted for a coke. I can't say there won't be one in my hand come 8:30 when the rugrats are fast asleep. I would be happy to share any recipe with you. I've got over 150 stored in my computer, and many I use all the time. I've been fortunate that the one thing that has gone right in my life is my cooking ability. I can't say much for anything else...... a - Single Peoria IL mom to Alec 7, 5.3 (ASD), and 3.6 Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 I sent an almost identical message to this group in June. We gradually lessened the gluten and casein for several weeks, then went cold turkey. For most of the next month, my son was nuts! He went from a sweet, smart boy with lots of social delays and some periods of confusion and autistic type behavior to VERY aggressive and confused. Some days all he wanted to do was follow me around the house and hurt me, he was making up words and repeating them all day, and I just did not know how I could survive. I called a local respite facility to see what they could offer, but I could not possibly find time to fill out all the paperwork. Well, we still have a ways to go, but we are now much better. Ethan is undeniably better than before the diet. He is not especially aggressive and is finally beginning to listen a bit to my social tutoring. His fear of heights and balance are WAY better than ever before, he is playing imaginatively better than ever before, and he is becoming a little more motivated to play with others. I'll bet allergy tests will help you a lot. Before the diet, we were aware that Ethan was better some days than others, but we had no idea why. We now have realized that eggs and corn both make him absolutely crazy. We just drew blood today for his allergy test. Yes, it was not very fun, but we survived. Since he is now much less aggressive, he never even thought of hurting me, thank goodness. We talked about it before and about how it will help us to know which foods he could eat. He is eager to be good, it's just really hard for him sometimes, so he will do almost anything to feel better. We talked about trains during the blood draw, and rode our city kid train immediately afterwards. It helped, but I'm not sure we will ever be able to talk him into a blood test again, now that he knows what it is like. I panicked at the fear that I would never be able to find time to feed my family on the new diet. It is getting easier. Our local health food store has one brand of gfcf bread in the freezer section, and I always double my bread recipes. Bread is not as hard to bake as I used to think, just get a few decent recipes, and stick with them. I will try to post a couple of good ones to the whole group if my son will leave me alone soon (he REALLY loves me - I can't WAIT for him to learn how to entertain himself sometime). Miss Robens seems to be everyone's favorite mail order food source. They have a web page with ready made products, mixes, and recipes. It is nice to know you don't have to make everything from scratch. We snack on nuts a lot, as well as fresh and dried fruits. Microwaved sweet potato makes a quick, easy lunch, and there are pretty decent substitutes for most things you are used to. Some people use enzymes to allow an occasional treat off diet with no ill effects. Others have reported that the combination of enzymes and gfcf diet have lessened aggression in their children (enzymes actually seemed to make our son more aggressive, but I think that is pretty unusual). When we started the diet, I was pretty depressed to think that we will have to eat this way forever. However, I have now seen many reports of kids who, after a long time on the diet and/or other relevant therapies such as probiotics, homeopathy, and heavy metal removal, are much healthier and can expand their diet again, that I do believe these extreme dietary restrictions are not permanent. Anyway, I'll bet things will get much better soon. Most parents say that their kids get much worse just before they turn the corner. Any DAY now, things should begin to ease up. You can do it! E- mail me any time if you think I might actually know the answer to a question or if you just need to talk. Good luck. C. in Fort , CO wife to Cade (probable Aspergers) Mom to Ethan ( high-functioning ASD) and Miranda (9 months and NT so far) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 --- In GFCFKids@y..., thehundredacrewoodcc <the100acrewoodcc@y...> Just a thought but corn products- (dextrose, sucrose, corn syrup, koolaide, table salt, corn oil),'vegetable' products, gell-caps that meds and vitamins come in, hydrodgenated oils, and nitrates all cause violent and I mean violent reactions in my son. Corn acturally causes my son to become incontinent and aggressive with in an hour!! AFter ingesting corn it consistently leads to some sort of restraint episode in school. When we started the diet, we relied heavily on corn- its even the only butter substitue available at the grocery store, its in the gfcf prego sauce, the gfcf campbells chicken and rice! Corn is everywhere and worth eliminating to see if it is the culprite. It isn't in isnack cyber soy chips -orignal, garlic or apple cinnamon! The apple cinnamon crumbles up into a delicious breakfast cereal- you can order a case on line for 13,99 - I ordered saturday- my first case came today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 LJ, my son has been on this diet for a little over 16 months and doing great. Havehim allergy tested for foods so that you are not replacing the gluten and casein with other offending foods. I had IgE blood tests run. I know there is another kind and I really don't know what the difference is, sorry. They took vials from a tiny butterfly into LJ. He got tested for eggwhite corn orange beef pork shrimp tomato barley carrot chicken codfish crab cow milk oat peanut rye soybean strawberry tuna bakers yeast wheat cashews chocolate almond carob bean rice grape sweet potato white potato banana pear He also got tested for some environmental things (dust, mold, duck, feathers, etc) and he came up allergic to cats and dogs. My son LJ is on Medicaid. I took him to a regular allergist who wrote a prescription for me to go across the street to the lab inside the hospital and they ran the tests and sent the results to the allergist. I eliminated ALL foods that he showed even the slightest reaction to, thus allowing for the GFCF diet to work to its fullest potential. Good luck. I tend to stay clear of all these other fancy tests and meds, etc.. I didn't do any testing with my son prior to or now other than allergy testing. He gets a complete physical every year witha complete blood work done and other then that I stay clear of all, except for a 100% GFCF diet, no artificial colors or flavors and ne preservatives. LJ is also soy free with this diet cause of an allergy to soy. (LJs mom) in New York * On Tue, 21 Aug 2001 09:11:10 -0700 (PDT) thehundredacrewoodcc writes: > Any ideas what foods I should have them test for other > then the 3 listed above? ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2001 Report Share Posted August 22, 2001 Phyllis, i think one food you might want to test for is corn it makes my little guy hyper and cut down the sugars right away. I've had some luck with this myself. Try getting off the sugary fruit juices buy some organic pear or white grape juice and serve it half spring water half juice and don't worry if your not into cooking it will come with time, for now they can survive on potato chips (lays or UTZ original) french fries and chicken and a good multi vitamin.....just till you test for the foods they're allergic to. Hang in there your doing a great thing for your kids! Good luck to you god bless! Sharon C. (max's mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 Phyllis, a, etc., I think we have all " been there " at one time or another. We seriously considered institutionalizing my son last year because he was totally out-of-control. He was extremely violent (to people) and destructive (to things). He kept hurting his siblings. We saw a DAN doctor and have him on ALOT of supplements, more restricted diet (allergies and Feingold) and are beginning chelation. If you haven't started that route yet, I suggest it. It has not made things perfect, but it has made a big difference to our family. -Phyllis B. Re: I REALLY NEED YOUR HELP NOW!!!!! > > >>>>>I CANT TAKE IT ANYMORE!!!!!! starts 2nd grade > next week and he is worse now then he was a couple of > weeks ago (before we started the GFCF diet). He is > more aggressive, more angry, more hyper and just plain > MORE!!!!! <<<<<<< > > >>>>>Please, I am truly at the end of my rope. I am > sitting here before noon drinking a Mikes Hard > Lemonade which is DEFINATELY not me. I need some help > and advice soon. <<<<< > > Oh Phyllis, your message couldn't have posted at a more perfect time. I'm equally at the end of my rope, and considering medicating my son. I wrote about him a couple of days ago, because I believe he fits the Asperger's label, rather than basic autism. His language was an issue, but he's always had language, it just came in slowly. As he gets older, his behavior seems to get worse. He doesn't hit, bite or kick, but he screams and defies everyone and everything. I was literally in tears driving him home from his first day in Kindergarten. I got there early to talk with the teacher, and they weren't in the class. I decided to wander around and as I neared one hallway, I heard him screaming. He was saying, " Let me go " , " I want to get out of here " , " Don't touch me " , " Leave me alone " . I peered out a window onto the playground and there he was being held by his teacher. The other kids were playing, but she was holding his hand and making him stay in time out, for misbehaving. It was awful, he just kept screaming and making a huge spectacle of himself. When they came in the teacher told me he wouldn't stay in his seat, wandered around the class, took things and touched things he was told to not touch. He wouldn't make choices. He wouldn't make decisions. The only thing he would do was scream and yell. He didn't want to follow the routine at all. I know its new to him, and we're living in a new city and a new home, but I don't know what to do. My life is totally controlled by his behavior. I envy every child I see displaying good behavior. Don't get me wrong, my son can have a very loveable personality, but it's his way or the highway 85% of the time. His other classmates were so well behaved, and here he was screaming and crying, ranting and raving. I'm disgusted with him. The diet has helped a lot, but not enough. I don't know if I should try supplements or finally cave in to trying medication. I've always been against it, but if it would help, and I knew for sure, I would have him pop a pi > ll in a minute. All the OT in the world hasn't help improve things. I've brushed him, swang him, tried listening therapy, tried cranial sacral therapy, and nothing seems to work. > > By the way, I too considered a beer or glass of wine when I got home, but I opted for a coke. I can't say there won't be one in my hand come 8:30 when the rugrats are fast asleep. > > I would be happy to share any recipe with you. I've got over 150 stored in my computer, and many I use all the time. I've been fortunate that the one thing that has gone right in my life is my cooking ability. I can't say much for anything else...... > > a - Single Peoria IL mom to Alec 7, 5.3 (ASD), and 3.6 > Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 >>>>>Please try the supplements!! You may just be in for a pleasant surprise. My friend has a similar child and there is a definite relationship between when she gives her child the supps and when she doesnt!! Huge! Also, these kids have so many imbalances going on--usually the diet isnt enough to rebalance things. Pro bio gold two times per day, zinc at night, colostrum, good multiple vitamin etc. Good luck and hang in there!! Please try the supps!<<<<< I give him zinc, digestive enzynes, a multiple vitamin and the pro bio gold, and I'm still seeing this behavior. I tried the colostrom, but I couldn't get it in him, because he only drinks water. Any other sup suggestions? aGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 Hi, Here is my idea for a meal that has saved me time. I make meatballs once a week or so and freeze then in little plastic snack bags. I throw everything in them. I mix half ground turkey and half ground beef and throw it in my mixer along with 2 jars of organic mixed vegie baby food, calcium powder, EFA powder, some seasonings and make lots of little meatballs. I bake them and put them in a pot of tomato sauce and they are very moist and good. My son eats these almost everyday. I put them in a thermos for school and just microwave them at home for meals. He also eats alot of french fries (McCains 5 minute fries) and homemade chicken nuggets. Applegate Farms has good sliced turkey breast and then there are always the turkey hot dogs (all nitrate free) Hope that helps. - In GFCFKids@y..., thehundredacrewoodcc <the100acrewoodcc@y...> wrote: > a, > > Well, I have to say, you have tried a lot more things > than I have tried. He goes for OT once a week at a > private clinic and he has OT at school twice a week > but I have been unable to get anything started at > home, which is where I think most of the problem comes > from. With 2 kids with sensory issues and Aspergers, > plus trying to get a handle on this diet, and trying > to figure out how to get my house clean so that their > allergies wont be so bad, I am so overwhelmed I dont > even know where to start with a home sensory diet. > Everytime I ask the OTs they just hand me a huge list > of sensory activities and say just do some of these. > Well I need a schedule. I am a list person and I need > to have a schedule in front of me and then I can > follow it. Thats why I am thinking that if I can come > up with maybe a 2 or 3 week menu (of normal foods, not > tofu burgers - sorry my kids hate tofu, or asparagus, > etc.) including boxed lunches and snacks, then I will > be able to do this. Anyone got anything out there > like this? Recipes included? Thats why I think I am > feeling so overwhelmed, because I feel so out of > control and unorganized. This is just too new to me. > I look at that huge food list on GFCFdiet and I go > into panic mode. Just give me a menu and recipes and > I will be fine. > > By the way, I took the kids to the lab for the RAST > test. Yes, by myself, and yes, both at the same time. > Crazy you say? I thought so too, but kept > begging me all morning to go and get it over with > (probably had something to do with me telling him that > if he was good, we would go to the toystore after for > a toy) and guess what. They were both wonderful. > Nothing like at the allergist office. I opted for a > private lab instead of the hospital, because I knew > that the waiting room was pretty sealed off from the > rest of the building (except the blood draw room) and > so I could let the kids run around and not worry about > them getting into too much trouble. Guess what, they > didnt even run around. I brought GFCF fruit snacks > with me ( a real treat that they havent had in months) > and didnt even yell and scream. He got alittle > scared at the needle and kept asking when they were > gonna be done, but he didnt even cry (which I told him > he could do if he wanted to). Tyler was really upset, > but mostly because of the band on his arm and the fact > that they were holding his arm then the needle. > Needles have never bothered him (hypo sensitive > issue?) and he cries more from the bandaids then > anything else. All in all it was a dream visit and it > is all over with. Hopefully now in a couple of weeks > I will hear some news. > > Any quick recipes you have would be really > appreciated. I have a birthday party coming up next > month and I need a quick meal idea that we can bring > to a science center. I mostly need lunch and > breakfast ideas, with an occasional entree - I think I > got most of those taken care of ( although a menu > would be great if anyone has one.) > > Thanks again for all your help everyone. > > ===== > Phyllis Parmelee > Visit my website: > THE 100 ACRE WOOD CHILD CARE - My Brand New Website > Like my website? Want to know how you can get one, too? If you are interested in having me build one for you, send me an email. > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 a, I am not the Phyllis that wrote to you originally(seems there are 3 of us these days-I keep seeing my name and think I am losing my mind since I don't remember writing the post). I just wanted to say that I can sympathize with you(not the drinking part though!!!) My son is 6 and for the past year has changed from the lovable angel he has always been to a tyrant that has destroyed our home and hurt everyone in it. His frustration level is off the charts and he tantrums when too many words are used, he doesn't get what he wants or quick enough, or he is in pain. He has so many issues, you wouldn't even believe it. My home tutors have all quit and I cannot get help to stay. I feel trapped in my home as I am scared to take him places as he lashes out at strangers and kicks and screams on the ground. I have been advised by many to put him in a residential placement before he really harms someone, including himself as he now throws himself on the ground, stand up and falls flat on his face, on purpose. He is also head banging. He has been cf for 3.5 years and gf for 1.5 years. He is also soy, egg, chicken, etc free. We have little to no phenols and no salicytates. He is on a vitamin cocktail, probiotics, carnitor, flax oil. My husband constantly says that he has seen no improvement on the diet and that if he is going to be this bad, we might as well let him eat what he wants. Most of my friends with ASD kids are now higher functioning, and since his behaviors are so bad, we are pretty much stuck home alone. I feel your pain as I live it daily. My salvation this summer has been the blow up pool in our backyard or trips to my brother's pool(although my 6 yr old nephew is now scared of him). I broke down yesterday and got a prescription for risperdal, but haven't had the guts to give it to him yet. I think I am scared of side effects as well as weight gain as I cannot carry him now. At his present weight he is putting his feet through windows, doors and walls, so what will I do with more weight? I don't have any advise to offer, just sympathy. If you were in Mass, we could commiserate. Phyllis K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 For him, , clo, B vitamins, zinc, magnesium, calcium and for a while GABA and DMG. I think you may have to investigate what works for each individual. Lolita >What supplements are you using? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2001 Report Share Posted August 25, 2001 >>>>>>I broke down yesterday and got a prescription for risperdal, but haven't had the guts to give it to him yet. I think I am scared of side effects as well as weight gain as I cannot carry him now. At his present weight he is putting his feet through windows, doors and walls, so what will I do with more weight? I don't have any advise to offer, just sympathy. If you were in Mass, we could commiserate.<<<<<<< There are moments when I think I should be thankful, rather than feeling bad about the way things are. My son has horrible meltdowns, but he is very, very loving. He doesn't hurt himself or others. In fact, when his brother or sister pick on him, he does nothing but cry. If he's hit by them, he cries. I should also be thankful that he is so high functioning. I take for granted than many parents long to hear their children speak, and I did too, at one time. However, he now speaks at an age appropriate level. As far as his behavior goes, it's an up and down battle. Like you, I'm considering the meds to see if it helps him gain control of his impulsiveness and poor attention span. I truly believe these two areas are influencing the meltdowns. But, he went from being totally obnoxious on Tuesday at school to having a great day on Friday. Each day they are given three cards to start the day off with, and every time they are showing poor behavior they are warned. If they get a second warning, a card is removed. At the end of the morning session, if they have a card remaining, they get a punch on a behavior card. They have the same system in the afternoon. The child can than take the card and turn it in on friday for a prize from the prize box. They have to have a minimum of 7 punches out of a total of 10. My son did not get a prize, but he did manage to get 4 punches out of a possible 8. I was happy he got any! He cried when he didn't get a prize (the only child who didn't), but the teacher made him a colorful sign on string that he got to wear that said, " I'm great and I had a great day! " Anyway, sorry for the rambling. I'm still considering the meds, and I have to way all sides. For now, I just want to see how he does next week. He truly is trying to be good. I think he probably does need help controling his emotions, but I'm very proud that he truly tried hard to be good each day at school. I need to remind myself that it could be worse. I wish you luck on the medication. I would give it a try. Afterall, if you don't like the effect, you can stop it. Also, I belong to another list where I posted my frustration over my son. I got many responses from many parents who said that they fought the meds for years. However, once they did, their childs behavior was like night and day. Out of 23 responses, only 2 were negative. So, meds do have their place, but only we as parents can decide if we've reached the point where nothing else seems to be working, and meds need to be considered. I'm still mulling it over.......... a - Peoria ILGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2001 Report Share Posted August 25, 2001 I, too, was glad to see there are others in the same boat. My child is 2 1/2, and I read your posts with great fear. Is this my future?! The diet has helped somewhat. I am working on the phenol, additives, etc. issue. She is still at the point where she will lunge at you for no reason. She only does this to our son and playmates-which are almost nonexistent now. At other times, you just need to keep your distance and only invade her territory when invited. I took her with me to have some blood work done(on myself)and the nurse went to pick her up and I practically yelled, " DON'T TOUCH HER! " Fortunately she is usually nonviolent with me and my husband. So far..... Janelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2001 Report Share Posted August 26, 2001 Have you tied TMG? This is the supplement that has the biggest effect on Dallas' behavior. He is not a happy child without it, plain and simple. > I give him zinc, digestive enzynes, a multiple vitamin and the pro bio gold, and I'm still seeing this behavior. I tried the colostrom, but I couldn't get it in him, because he only drinks water. Any other sup suggestions? > > aGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com > > > Quote Link to comment Share on other sites More sharing options...
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