Guest guest Posted March 3, 2010 Report Share Posted March 3, 2010 is on Cellcept. She was on Methotrexate for several years but it dod not do the job. We discussed the use of Cytoxan but because it is a medicine that comes from the chemotherapy line the doctor is trying to hold off as a last resort. We seem to be getting fairly good results with the Cellcept. I keep my fingers crossed that all continues to go well. MattSubject: Re: Cytoxin?To: Neurosarcoidosis Date: Wednesday, March 3, 2010, 12:53 PM There were several people in the past that went to Cytoxan-- but they should consider the Biological Response Modifiers-- Enbrel, Humira, Cellcept, Remicade and there are a couple of new ones-- first. Methotrexate is only going to help some of the issues with sarc-- and honestly, there is nothing that is going to cure it. Usually they'll add Plaquenil, then add Imuran or Arava (DMARDS--Disease Modifying Anti-Rheumatic Drugs) then on to the BRMs. WWW.ARTHRITISTODAY. ORG has a great drug reference guide- and explains these drugs in simple language. WWW.SARCOIDOSISSHAR MA.COM is a great site to get questions about the advancing treatment of sarcoidosis. Dr. Sharma is the #2 doc in Sarcoidosis- - so his info is wonderful. Cytoxan has some nasty side effects-- it is generally the choice for breast cancer-- and we end up on a much smaller dose-- but still the full effects of chemo. Hopefully someone will come forward and be able to share a personal experience with it. Our MESSAGE ARCHIVES AND LINKS SECTIONS have a great selection of articles and posts dealing with all kinds of issues-- so do check it out. What are you mom's symptoms? Where is she living? Ask away, and we'll try to answer as quickly as possible. All of us are sick with sarc-- so don't worry if a day or two goes by before you hear from us. Take care, Tracie NS Co-owner/moderator From: littlestar_india <littlestar_india@ yahoo.com>To: Neurosarcoidosis@ yahoogroups. comSent: Wed, March 3, 2010 4:34:00 AMSubject: Cytoxin? Hi Everyone,My mom has been battling neurosarcoidosis for about 5 years now. She has been on methetrexate( sp?) and steroids for the past 2 1/2 years, and before that steroids alone, but her last CT scan showed more granulomas in the brain that are inoperable. They want to switch her to cytoxin. Has anyone had any success with this treatment? Any information is appreciated.Thanks so much, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 I had the urge to check in and there was the Cytoxin question! I have been taking it for over 5 years and until recently it was working. The side effects weren't too bad except my weight gain but that's probably the prednisone. My hair thinned but didn't fall out. I have not thrown up once. LOL You'll want to be sure your mother doesn't go out without sunscreen and check any cuts/scrapes/abrasions to be sure they don't get infected. That is my non professional but honest & personal story. in 'tuckyJoin our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@... Subject: Cytoxin?To: Neurosarcoidosis Date: Wednesday, March 3, 2010, 7:34 AM Hi Everyone,My mom has been battling neurosarcoidosis for about 5 years now. She has been on methetrexate( sp?) and steroids for the past 2 1/2 years, and before that steroids alone, but her last CT scan showed more granulomas in the brain that are inoperable. They want to switch her to cytoxin. Has anyone had any success with this treatment? Any information is appreciated.Thanks so much, Quote Link to comment Share on other sites More sharing options...
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