Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 Tracie. i have been on milk thistle for 2 yrs now..but i will look into the other supplement you wrote of...I have been telling myself all these years i am going to beat this thing.. but it seems like everytime i turn around its destroying yet another organ..I am so glad you are still with us tracie.all we can do is keep fighting. but i am running out of ummphhh . Sheriff keeps telling me i am going to be ok..so he is trying to keep my spirits up. please rest tracie and take good care of yourself.. lots of love Manyt blessings and a pain free day Please support Neurosarcoidosis society Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 , I'll do some research on portal hypertension-- I know alot of us have liver involvement-- myself included. In the meantime--GET YOURSELF ON MILK THISTLE. LIVATONE is the one I take, and it will help your liver detoxify itself. Our liver is the ONLY organ in our body capable of regenerating itself-- but we have to pay close attention and really be aware of the things that add insult to injury. LIVATONE is all natural -- and it won't interfer with any meds you're on. It is water soluble, like Vitamin C-- so what your body doesn't need to heal itself , it pees out. BTW, Vit C can also help-- it is anti-inflammatory, and anti-oxidative. I've got a book on liver detoxification-- I'll find it and post the title. Kiddo, 8 years ago, they told me I had at best-- 5-7 yrs to live-- and I'm starting year 9. Don't buy into the worse case scenario-- create a place in your heart that tells you that you are getting healthier each day-- and write down some positive affirmations. Living in the constant fear of what may happen is going to rob you of enjoying what you have now. Not to mention that to live in the FEAR of what if-- is sending out the message to your body to continue it's assault on whatever is wrong-- and so you keep the wrong immune reactions (cortisol) coming out. Your body cannot tell a "real" emergency from an "imagined" emergency. Love to you, Tracie NS Co-owner/moderator To: Neurosarcoidosis Sent: Fri, March 12, 2010 3:01:18 PMSubject: Hi everyone.. att:mods sorry i have not been around .. but i have found out that this portal hypertention is really bad. I go back to the liver doc April 6 to find out what the next procedure is ... the doc told me over the phone it is due to the sarcoid.. he said it is uncommon for sarcoid to cause portal hypertention but sarcoid was found in transjugular biopsy i had last month .. i don't know what stage it is in yet till my appt. .. is there anyone out there who has liver involvement with sarcoid and ended up with portal hypertention??? i am scared out of my mind because what i read online depending on the stage there is only up to a 2year life expected.. plz help me... Many blessings and a pain free day Please support Neurosarcoidosis society Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2010 Report Share Posted March 12, 2010 , increase the amount you take--double up -- and see if that helps. It definately won't hurt. We really put our livers through hell with the meds we're on-- and so many of them wipe out the B vitamins-- and the result is severe anemias. Since our liverr is the janitor of the blood cells, anytime we have to take the meds-- we're at addl risk. Friking suckoidosis. Scream therapy works also-- I may indulge tomorrow on my way to get a haircut (actually, I'm getting all of them cut-- and then once again, my alter ego-- (male side)--no, I am woman!-- but I am blessed with "male" pattern baldness due to the sarc loving my hormones and putting my testosterone levels up to 138!-- range is 13-18-- so it's definately hitting something... Breathe deep, and hang in, hang on, and figure a way to enjoy the ride-- whether we like it or not, we're on one! Hugs, Tracie To: Neurosarcoidosis Sent: Fri, March 12, 2010 3:45:25 PMSubject: Re: portal hypertension Tracie. i have been on milk thistle for 2 yrs now..but i will look into the other supplement you wrote of...I have been telling myself all these years i am going to beat this thing.. but it seems like everytime i turn around its destroying yet another organ..I am so glad you are still with us tracie.all we can do is keep fighting. but i am running out of ummphhh . Sheriff keeps telling me i am going to be ok..so he is trying to keep my spirits up. please rest tracie and take good care of yourself.. lots of love Manyt blessings and a pain free day Please support Neurosarcoidosis societyj Quote Link to comment Share on other sites More sharing options...
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