Re: new member - lots of questions

[Guest guest]

I would encourage you to try diet and eliminate allergens. I have 2 I/2 year

old twins - one NT (What DO those initials stand For?) with 8 food allergies

and eczema-He was our " high need baby " until eliminating ALL Sources of

allergens-His behavior, sleep and disposition improved- Completely clear

skin-no dairy, wheat, soy, oats, peanuts,tree nuts, eggs, mustard or

strawberries. Some I figured out, some with blood tests. A new test,

Immunocap, is supposed to not have any false positives according to Health

magazine, April 2001. Now I wait until my sons need to have blood drawn

before testing for new suspected allergens for a baseline. Supposedly you

can tell when they may be growing out of it by comparing later tests. After

this restrictive diet and my sisters and nephew being diagnosed with celiac

(and my mom with fibromialgia) it was a no brainer to try diet for my other

son. He has egg and peanut allergies. He is very mild PDD-NOS-we saw

improvements 3 weeks into no casein and we continue to notice the little

symptoms (swingning, counting frequently, etc) are fading and disappearing as

we get more involved in eliminating hidden gluten. It can't hurt. My son

started a new early intervention teacher today and she said his eye contact

was completey normal and appropriate. The improvements just sneak up on us. I

have similiar concerns and am looking for a nutritionist experienced with

GFCF diet to evaluate our meals. We found boys allergies at under 1 year so

they've never had a real pizza or ice cream so luckily they don't know any

different. Hope this helps.

sorry I didn't erase other message to people doing digest-I'mnew to internet

and don't know how.

[Guest guest]

On Fri, 10 Aug 2001 13:06:31 -0700 (PDT) thehundredacrewoodcc

writes:

> foods (dairy, wheat, eggs, nuts, peanuts, chocolate,

> soy, citrus and tomato). He based this on thier

> history of life long extreme excema, dark circles

> under eyes, constant bothersome nose (runny or

> stuffy), and other non-stop allergy issues.

******

My son is also allergic . His allergies are to milk, wheat, pork, soy,

peanuts, cashews, chocolate and rice. He had dark circles under his eyes

for such a long time, which are all gone now after eliminating all these

foods.

********

I thought

> the list was a little extreme considering no testing

> was done.

******

Are you having testing done?

***********

. I am

> interested in any feedback you can give me regarding

> this diet and children similar to mine (not autistic,

> but DSI and/or Aspergers). Is it successful and if so

> how? What types of foods do you give them -

> especially for lunches at school?

F

******

For school lunches LJ brings turkey sandwiches on his special bread,

there are puddings specially for this diet that come packaged in little

tubs. Capri Sun drink mixes have no artificial colors or preservatives,

also Juicy Juice, flavored seltzer waters, all natural sodas.

LJ also brings pasta/turkey salad. There is a special mayonaise that has

no eggs or soy and is GFCF. It is called Canoline Mayonaise and I get it

from Miss Robens. Call 1- and get a catalog. They sell

pasta, cookies, ready made snacks, flours, cake and cookie mixes,

vitamins, condiments, etc. They have a web too at www.missroben.com

Check them out. They are very helpful on the phone too and very

knowledgeable and understanding to all our needs.

************************

How do you do this

> diet without going bankrupt? If you buy breads and

> stuff in bulk, how do you keep it without wasting it?

***********

I am a single mom without a pot to pee in, and I manage this diet for my

son. LJ comes before anything, as I am sure your children do too, and

once you get the basics in on this diet, its really not that hard. There

are alot of stuff to still but at a supermarket. For potato chips there

are the UTZ brand, only the plain or wvy rippled, not the flavored.

Welchs grape jelly, most minute maid juices. All your produce, etc.

Bread can be frozen. If you try a bread that they don't like, don't

throw it out - grind it up and make bread crumbs.

*************************8

> Is it worth it all? What were your symptoms before

> diet, and what has improved? Is the improvement

> solely to the GFCF diet? I know these are alot of

> questions, but I am so torn. My son hated being on

> Feingold, and this diet seems so much more limiting.

> I am scared to do another diet change. I am also

> scared of hurting my kids? How do you supply them will

> all the nutrients that they are missing from this diet

> (calcium, etc)?

******************

I use Dari-free as the milk replacement and that is calcium enriched and

has vitamins.

This diet is definetly wortyh all my time, money and effort. The results

my son has made, combo of this diet and my working with him and his

school and tutor, is amazing. He has been on this diet for 15 1/2

months. He is 6 1/2 years old, verbal, reads, does simple math and

spelling, and WANTS to learn. Before this diet he had MANY, MANY ear

infections, now only 1 in 15 1/2 months. Before the diet he had 16 ear

infections, yes 16. His eczema that was treated without results for over

5 years is now 99% cleared up. He is on a multivitamin and a calcium

chewable. LJ has no artficial colors, no artificial flavors and no

preservatives. You can ask as many questions as you want

********************

(LJs mom) on LOng Islan New York

*

Any help would be greatly

> appreciated. You can email me privately at

> dream5866@... if you do not want to take up list

> space with this.

>

> =====

> Phyllis Parmelee

> Visit my website:

> THE 100 ACRE WOOD CHILD CARE - My Brand New Website

> Like my website? Want to know how you can get one, too? If you are

> interested in having me build one for you, send me an email.

>

> __________________________________________________

>

[Guest guest]

what kind of doc can do testing for foods?

--- alwaysaway1@... wrote:

>

> On Fri, 10 Aug 2001 13:06:31 -0700 (PDT)

> thehundredacrewoodcc

> writes:

> > foods (dairy, wheat, eggs, nuts, peanuts,

> chocolate,

> > soy, citrus and tomato). He based this on thier

> > history of life long extreme excema, dark circles

> > under eyes, constant bothersome nose (runny or

> > stuffy), and other non-stop allergy issues.

> ******

> My son is also allergic . His allergies are to

> milk, wheat, pork, soy,

> peanuts, cashews, chocolate and rice. He had dark

> circles under his eyes

> for such a long time, which are all gone now after

> eliminating all these

> foods.

> ********

>

> I thought

> > the list was a little extreme considering no

> testing

> > was done.

> ******

> Are you having testing done?

> ***********

>

>

>

>

>

> . I am

> > interested in any feedback you can give me

> regarding

> > this diet and children similar to mine (not

> autistic,

> > but DSI and/or Aspergers). Is it successful and

> if so

> > how? What types of foods do you give them -

> > especially for lunches at school?

> F

> ******

> For school lunches LJ brings turkey sandwiches on

> his special bread,

> there are puddings specially for this diet that come

> packaged in little

> tubs. Capri Sun drink mixes have no artificial

> colors or preservatives,

> also Juicy Juice, flavored seltzer waters, all

> natural sodas.

> LJ also brings pasta/turkey salad. There is a

> special mayonaise that has

> no eggs or soy and is GFCF. It is called Canoline

> Mayonaise and I get it

> from Miss Robens. Call 1- and get a

> catalog. They sell

> pasta, cookies, ready made snacks, flours, cake and

> cookie mixes,

> vitamins, condiments, etc. They have a web too at

> www.missroben.com

> Check them out. They are very helpful on the phone

> too and very

> knowledgeable and understanding to all our needs.

> ************************

>

>

>

> How do you do this

> > diet without going bankrupt? If you buy breads

> and

> > stuff in bulk, how do you keep it without wasting

> it?

> ***********

> I am a single mom without a pot to pee in, and I

> manage this diet for my

> son. LJ comes before anything, as I am sure your

> children do too, and

> once you get the basics in on this diet, its really

> not that hard. There

> are alot of stuff to still but at a supermarket.

> For potato chips there

> are the UTZ brand, only the plain or wvy rippled,

> not the flavored.

> Welchs grape jelly, most minute maid juices. All

> your produce, etc.

> Bread can be frozen. If you try a bread that they

> don't like, don't

> throw it out - grind it up and make bread crumbs.

> *************************8

>

>

>

> > Is it worth it all? What were your symptoms

> before

> > diet, and what has improved? Is the improvement

> > solely to the GFCF diet? I know these are alot of

> > questions, but I am so torn. My son hated being

> on

> > Feingold, and this diet seems so much more

> limiting.

> > I am scared to do another diet change. I am also

> > scared of hurting my kids? How do you supply them

> will

> > all the nutrients that they are missing from this

> diet

> > (calcium, etc)?

>

> ******************

> I use Dari-free as the milk replacement and that is

> calcium enriched and

> has vitamins.

> This diet is definetly wortyh all my time, money and

> effort. The results

> my son has made, combo of this diet and my working

> with him and his

> school and tutor, is amazing. He has been on this

> diet for 15 1/2

> months. He is 6 1/2 years old, verbal, reads, does

> simple math and

> spelling, and WANTS to learn. Before this diet he

> had MANY, MANY ear

> infections, now only 1 in 15 1/2 months. Before the

> diet he had 16 ear

> infections, yes 16. His eczema that was treated

> without results for over

> 5 years is now 99% cleared up. He is on a

> multivitamin and a calcium

> chewable. LJ has no artficial colors, no artificial

> flavors and no

> preservatives. You can ask as many questions as you

> want

> ********************

>

> (LJs mom) on LOng Islan New York

> *

>

> Any help would be greatly

> > appreciated. You can email me privately at

> > dream5866@... if you do not want to take up

> list

> > space with this.

> >

> > =====

> > Phyllis Parmelee

> > Visit my website:

> > THE 100 ACRE WOOD CHILD CARE - My Brand New

> Website

> > Like my website? Want to know how you can get

> one, too? If you are

> > interested in having me build one for you, send me

> an email.

> >

> > __________________________________________________

> >

[Guest guest]

How do you find a DAN doctor?

=====

Phyllis Parmelee

Visit my website:

THE 100 ACRE WOOD CHILD CARE - My Brand New Website

Like my website? Want to know how you can get one, too? If you are interested

in having me build one for you, send me an email.

__________________________________________________

[Guest guest]

Any doctor can order the tests-it would be best to find a DAN doctor{one

wheo specializes in treating autism and PDD} but if your regular doctor will

order the blood test that would work too. F

Re: new member - lots of questions

> what kind of doc can do testing for foods?

> --- alwaysaway1@... wrote:

> >

> > On Fri, 10 Aug 2001 13:06:31 -0700 (PDT)

> > thehundredacrewoodcc

> > writes:

> > > foods (dairy, wheat, eggs, nuts, peanuts,

> > chocolate,

> > > soy, citrus and tomato). He based this on thier

> > > history of life long extreme excema, dark circles

> > > under eyes, constant bothersome nose (runny or

> > > stuffy), and other non-stop allergy issues.

> > ******

> > My son is also allergic . His allergies are to

> > milk, wheat, pork, soy,

> > peanuts, cashews, chocolate and rice. He had dark

> > circles under his eyes

> > for such a long time, which are all gone now after

> > eliminating all these

> > foods.

> > ********

> >

> > I thought

> > > the list was a little extreme considering no

> > testing

> > > was done.

> > ******

> > Are you having testing done?

> > ***********

> >

> >

> >

> >

> >

> > . I am

> > > interested in any feedback you can give me

> > regarding

> > > this diet and children similar to mine (not

> > autistic,

> > > but DSI and/or Aspergers). Is it successful and

> > if so

> > > how? What types of foods do you give them -

> > > especially for lunches at school?

> > F

> > ******

> > For school lunches LJ brings turkey sandwiches on

> > his special bread,

> > there are puddings specially for this diet that come

> > packaged in little

> > tubs. Capri Sun drink mixes have no artificial

> > colors or preservatives,

> > also Juicy Juice, flavored seltzer waters, all

> > natural sodas.

> > LJ also brings pasta/turkey salad. There is a

> > special mayonaise that has

> > no eggs or soy and is GFCF. It is called Canoline

> > Mayonaise and I get it

> > from Miss Robens. Call 1- and get a

> > catalog. They sell

> > pasta, cookies, ready made snacks, flours, cake and

> > cookie mixes,

> > vitamins, condiments, etc. They have a web too at

> > www.missroben.com

> > Check them out. They are very helpful on the phone

> > too and very

> > knowledgeable and understanding to all our needs.

> > ************************

> >

> >

> >

> > How do you do this

> > > diet without going bankrupt? If you buy breads

> > and

> > > stuff in bulk, how do you keep it without wasting

> > it?

> > ***********

> > I am a single mom without a pot to pee in, and I

> > manage this diet for my

> > son. LJ comes before anything, as I am sure your

> > children do too, and

> > once you get the basics in on this diet, its really

> > not that hard. There

> > are alot of stuff to still but at a supermarket.

> > For potato chips there

> > are the UTZ brand, only the plain or wvy rippled,

> > not the flavored.

> > Welchs grape jelly, most minute maid juices. All

> > your produce, etc.

> > Bread can be frozen. If you try a bread that they

> > don't like, don't

> > throw it out - grind it up and make bread crumbs.

> > *************************8

> >

> >

> >

> > > Is it worth it all? What were your symptoms

> > before

> > > diet, and what has improved? Is the improvement

> > > solely to the GFCF diet? I know these are alot of

> > > questions, but I am so torn. My son hated being

> > on

> > > Feingold, and this diet seems so much more

> > limiting.

> > > I am scared to do another diet change. I am also

> > > scared of hurting my kids? How do you supply them

> > will

> > > all the nutrients that they are missing from this

> > diet

> > > (calcium, etc)?

> >

> > ******************

> > I use Dari-free as the milk replacement and that is

> > calcium enriched and

> > has vitamins.

> > This diet is definetly wortyh all my time, money and

> > effort. The results

> > my son has made, combo of this diet and my working

> > with him and his

> > school and tutor, is amazing. He has been on this

> > diet for 15 1/2

> > months. He is 6 1/2 years old, verbal, reads, does

> > simple math and

> > spelling, and WANTS to learn. Before this diet he

> > had MANY, MANY ear

> > infections, now only 1 in 15 1/2 months. Before the

> > diet he had 16 ear

> > infections, yes 16. His eczema that was treated

> > without results for over

> > 5 years is now 99% cleared up. He is on a

> > multivitamin and a calcium

> > chewable. LJ has no artficial colors, no artificial

> > flavors and no

> > preservatives. You can ask as many questions as you

> > want

> > ********************

> >

> > (LJs mom) on LOng Islan New York

> > *

> >

> > Any help would be greatly

> > > appreciated. You can email me privately at

> > > dream5866@... if you do not want to take up

> > list

> > > space with this.

> > >

> > > =====

> > > Phyllis Parmelee

> > > Visit my website:

> > > THE 100 ACRE WOOD CHILD CARE - My Brand New

> > Website

> > > Like my website? Want to know how you can get

> > one, too? If you are

> > > interested in having me build one for you, send me

> > an email.

> > >

> > > __________________________________________________

> > >

[Guest guest]

I am pretty sure thereis a list at www.gfcfdiet.com or at he autism

reasearch institute web site. Lis aF

Re: new member - lots of questions

> How do you find a DAN doctor?

>

> =====

> Phyllis Parmelee

> Visit my website:

> THE 100 ACRE WOOD CHILD CARE - My Brand New Website

> Like my website? Want to know how you can get one, too? If you are

interested in having me build one for you, send me an email.

>

> __________________________________________________

>

[Guest guest]

> Hi all,

>

> I am new to this list. I have 2 boys, (6) and

> Tyler (2). Both boys have been diagnosed with Sensory

> Integration Dysfunction and has been informally

> diagnosed with Aspergers Syndrome. I took both boys

> to an allergist this week and without testing them he

> gave them zyrtec and told me to omit a whole list of

> foods (dairy, wheat, eggs, nuts, peanuts, chocolate,

> soy, citrus and tomato). He based this on thier

> history of life long extreme excema, dark circles

> under eyes, constant bothersome nose (runny or

> stuffy), and other non-stop allergy issues. I thought

> the list was a little extreme considering no testing

> was done. I have had on the Feingold diet for

> a couple of years, but not with a lot of results (some

> slight changes).

These allergy issues do sound like allergy and phenol intolerance

issues. Here is my site link for more information on the phenol

issues. It may be that you would not have to remove those foods, but

try one of the other recommendations I have indicated here that do

help some children with these issues. This would be for phenol

intolerance issues [like dark circles] but NOT for a true allergy

issue.

http://home.pacbell.net/cscomp/phenol.htm

This list you have indicated, however, is not extreme from my own

personal point of view, as all of those foods and MORE, I have had to

remove from my son's diet, and actually the diets of three of my four

children, but the other two are not autistic. I was able to add back

some, but not all, of these foods with the use of enzymes. But my

children still cannot have gluten, casein, nuts and seeds, and high

phenols.

If you would like to try testing, you can ask any doctor, or use one

of the DAN doctors from this list.

http://www.autism.com/ari/danlist.html

If you would like to look at tests that can be done, here is a lab

which has a relatively comprehensive list, altho you would not have to

use this lab specifically.

http://www.greatplainslaboratory.com/

I am debating whether or not to give

> up the Feingold diet and try the GFCF diet.

If you are not seeing results with Feingold diet, it may be because

your son still needs another food/s removed, or other ideas

considered. So I think you are correct to be considering gfcf.

I am

> interested in any feedback you can give me regarding

> this diet and children similar to mine (not autistic,

> but DSI and/or Aspergers). Is it successful and if so

> how?

I have heard it is successful for children with these diagnoses.

What types of foods do you give them -

> especially for lunches at school?

Here is my school lunch information.

http://home.pacbell.net/cscomp/lunch.htm

Here is my information for online food stores and recipes

http://home.pacbell.net/cscomp/parentin.htm#onlinefood

How do you do this

> diet without going bankrupt? If you buy breads and

> stuff in bulk, how do you keep it without wasting it?

I buy my breads from my local health food store. They come frozen so

they do not spoil. Or you can make your own bread if you are so

inclined, there are several recipes that people have who can share

with you.

> Is it worth it all? What were your symptoms before

> diet, and what has improved? Is the improvement

> solely to the GFCF diet?

My son was very low functioning autistic, and now he is no longer

autistic. He would still qualify as PDD because he is not yet age

appropriate, but he basically acts like a typical child, altho younger

than his chronological age. I can attribute this solely to diet,

because I do the therapies and things myself, and before this diet my

son took FOREVER to learn anything, but now he learns things just like

a typical child, and on the first try.

I know these are alot of

> questions, but I am so torn. My son hated being on

> Feingold, and this diet seems so much more limiting.

> I am scared to do another diet change.

Some kids, especially AS or higher-functioning kids, are using enzymes

instead of diet. This works for some but not all kids. You can get

more information on enzymes at this url.

http://groups.yahoo.com/group/enzymesandautism

I am also

> scared of hurting my kids? How do you supply them will

> all the nutrients that they are missing from this diet

> (calcium, etc)?

There are many supplements you can use. I buy mine from my local

health food store, but you can also buy supplements from this url.

http://www.kirkmanlabs.com/

Any help would be greatly

> appreciated. You can email me privately at

> dream5866@a... if you do not want to take up list

> space with this.

>

> =====

> Phyllis Parmelee

> Visit my website:

> THE 100 ACRE WOOD CHILD CARE - My Brand New Website

> Like my website? Want to know how you can get one, too? If you are

interested in having me build one for you, send me an email.

>

> __________________________________________________

>

[Guest guest]

Hi Phyllis,

We've had our son on this diet for about 6 weeks now. His test scores for

Gluten & Casein were very high. He is not autistic, but has speech delays and

sensory Integration Dysfunction. We are hoping the diet will help with the

speech issues.

So far we've noticed that he is a calmer and tries very hard to tell us what

he wants.

We are still new to this and always looking for advise also. It's nice to

know that we aren't alone.

good luck,

Rhonda

[Guest guest]

thank you so much for your help and all the wonderful links.

=====

Phyllis Parmelee

Visit my website:

THE 100 ACRE WOOD CHILD CARE - My Brand New Website

Like my website? Want to know how you can get one, too? If you are interested

in having me build one for you, send me an email.

__________________________________________________

[Guest guest]

SID & Aspergers are autistic spectrum disorders. (ADHD is also

considered by a growing number of people to be on the spectrum.)

My son has been gfcf & rice-free since 3/00, also rotating corn &

soy. Since then, we've also cut back hugely on artificial colors &

preservatives and began chelation in 8/00. He was dx'd aspergers/NLD

with sensory issues, a lot of GI tract problems, respiratory

allergies and depression. He went through a dramatic withdrawal

period on the diet and rejected most of the gfcf food I prepared.

Now 10 1/2, he knows he has made great progress and self-enforces the

diet. (Also getting very good at reading food ingredient lists.) He

no longer misses the old food and finds the smell of milk &

cheese " disgusting " .

School lunch - he gets a gfcfrf lunch at school (USDA school meals

program requires meal accomodations at no additional charge if a

doctor states they are required.) Other meals - look like a " normal "

menu, just don't have gluten, casein or rice. For example, breakfast

might be gfcf cereal with milk sub, fruit, sausage patty (Shelton's

ground turkey mixed with Italian seasoning), and water/tea/or almond

milk.

Costs -initially gfcfrf cost was high b/c I relied on prepared foods

& mixes from HFS. Now I mostly shop at regular stores and place bulk

orders through a food co-op. My cooking skills have increased, and I

make great cookies & cakes for special occasions, thanks to

gfcfrecipes. Bread - I like cornstarch bread (search archives for

recipe), but Ian doesn't like any gfcf bread, so we just don't eat it

any more unless I make it for guests - who love it!

Improvements - everything. He looks good, feels good, isn't anxious

or depressed, keeps up with the NT kids at karate, made the honor

roll (one accomodation - he answers tests orally), no longer wears

baggy clothes, wears shoes & underwear w/o complaint (that was a big

change!), asks for haircuts (another big change in SI), sleeps

through the night, and helps around the house. DOE is trying to

decertify him. I attribute all improvements to gfcfrf, but the

mercury chelation quickly boosted the improvements to a higher level

and ended the meltdowns (which had lessened in intensity & frequency

on the diet). However, while the diet & chelation cleared his mind,

he needed help to catch up on lost time, including going into the

community with a therapeutic aide to learn age appropriate social

skills.

Nutrition - we use Nu-thera, cod liver oil, and powdered calcium,

which I add to whatever I'm making. However, we are eating healthier

than ever before, so we've gained - not lost - nutrients on this diet.

I remember how overwhelming the diet (and the food bill) was at

first. Honestly, it's second-nature now, and people enjoy being

invited to dinner at our house. Just take it in manageable steps,

and you'll be fine.

....I am interested in any feedback you can give me regarding

> this diet and children similar to mine (not autistic,

> but DSI and/or Aspergers). Is it successful and if so

> how? What types of foods do you give them -

> especially for lunches at school? How do you do this

> diet without going bankrupt? ...What were your symptoms before

> diet, and what has improved? Is the improvement

> solely to the GFCF diet? ...How do you supply them will

> all the nutrients that they are missing from this diet

> (calcium, etc)?

[Guest guest]

*

My son LJ is on Medicaid. I took him to a regular allergist who wrote a

prescription for me to go across the street to the lab inside the

hospital and they ran the tests and sent the results to the allergist

(LJs mom) on Long Island New York

*

On Fri, 10 Aug 2001 17:55:06 -0700 (PDT) michelle cervera

writes:

> what kind of doc can do testing for foods?

________________________________________________________________

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