Re: People who went to Iowa...How do you get the ball rolling?

January 18, 2006

,

Where do I start? Okay, we went to see Dr.P in December 2004. We decided to

contact him after 2 doctors had failed to correct our daughters feet. I had read

soo much about the problems after surgery is done and did not want that for my

daughter. It took lots of planning and fighting with our insurance but we

finally got to go.

What we did was contact Dr.P via email, sent him pictures, and he was the one

who told us when to come down. We drove from Tx and it was going to be during

the holidays, plus I had my son in school, so that is why we went through him

and Joyce.

We actually got our state Medicaid to pay for the visits but I also checked

into the price it would be just in case our insurance was denied. I don't have

the guys name that I talked to right now, but if you need it I can find it for

you, his name and number that is. He was so helpful into getting prices per

treatment, casting prices, tenotomy price, etc. He also told me that if the

insurance did not pay I would have to come up with 60% of the fees. I did all

this research couple of weeks before just so I would not have any " surprises " .

We also put our name on the waiting list at the Mcdonald House and

actually made a reservation at the Red Roof Inn just in case there was no room

at the RMH.

I know it all seems overwellming right now, but it will come together. Just

takes planning. I am sooooo glad we went. I will never ever regret taking her to

him. Now she is a VERY VERY active 2 year old with perfect little chubby feet!

and

BL CF 12/16/03

jayroport wrote:

Thank you to " jennyandkelly " for such prompt responses and great

information. It's really got me thinking that we probably should go

to Iowa. I want the best for my son. If someone's gonna tell me he

definitely needs surgery, I want the best Ponseti people telling me.

I'm thinking it also would be worth every penny to fly there and have

them tell me he's doing fine (wouldn't that be a miracle!) too.

Those of you who went to Iowa, how did you begin to research getting

there, insurance questions, cost of treatment, etc. Did you just call

up and say, " Hi, I want to bring my son/daughter in to see you. " ? Did

you call the Department of Orthopedic Surgery, or did you call/email

Dr. Ponseti himself?

I've spoken with my husband and we're seriously considering at trip.

Oh boy!...any help would be so appreciated.

and (3/30/04 - " stubborn " RCF)

January 18, 2006

-

Actually I basically did the " Hi, I want to bring my son/daughter

in to see you. " ? After going through what we did here (surgery, and

still not corrected) I took the advice of everyone on here and

called Dr. Ponseti's office. I spoke to him personally on the phone

and he said to bring him in. It was an amazing conversation and he

sounded like he cared about Lucas so much that I ended up crying.

Many others have emailed him with the same results. Dr. Ponseti

cares about every single clubfoot baby. If your little one isn't

getting the proper treatment, then he wants to help. As for

insurance, call them to make sure they cover him as a provider. If

they don't ask what your options are. You can also ask what your

options are at Dr. Ponseti's office- they're extremely helpful!

Personally for us, we decided we were going no matter what it cost-

we wanted the best for him.

I'm glad you are looking into this. He also has docs that are

certified by him, and he may be able to recommend someone closer to

you if you can't make it to Iowa.

There was a post a while back with a ton of info on flights-

Christee (I believe) posted that.

As for emailing, I'm pretty sure he likes for you to email pics of

the feet. I'm not sure what exactly he wants to see since I didn't

go that route, but hopefully someone will chime in and let you know!

Good luck with this and your son!

Jenn

>

> Thank you to " jennyandkelly " for such prompt responses and great

> information. It's really got me thinking that we probably should

go

> to Iowa. I want the best for my son. If someone's gonna tell me

he

> definitely needs surgery, I want the best Ponseti people telling

me.

> I'm thinking it also would be worth every penny to fly there and

have

> them tell me he's doing fine (wouldn't that be a miracle!) too.

>

> Those of you who went to Iowa, how did you begin to research

getting

> there, insurance questions, cost of treatment, etc. Did you just

call

> up and say, " Hi, I want to bring my son/daughter in to see you. " ?

Did

> you call the Department of Orthopedic Surgery, or did you

call/email

> Dr. Ponseti himself?

>

> I've spoken with my husband and we're seriously considering at

trip.

> Oh boy!...any help would be so appreciated.

>

> and (3/30/04 - " stubborn " RCF)

>

January 18, 2006

Thank you! Thank you! You have no idea what this information means

to us. We're so grateful.

Jen and (rcf 3/30/04)

January 18, 2006

Absolutely helpful! Thanks for the input.

> Thank you to " jennyandkelly " for such prompt responses and great

> information. It's really got me thinking that we probably should

go

> to Iowa. I want the best for my son. If someone's gonna tell me

he

> definitely needs surgery, I want the best Ponseti people telling

me.

> I'm thinking it also would be worth every penny to fly there and

have

> them tell me he's doing fine (wouldn't that be a miracle!) too.

>

> Those of you who went to Iowa, how did you begin to research

getting

> there, insurance questions, cost of treatment, etc. Did you just

call

> up and say, " Hi, I want to bring my son/daughter in to see you. " ?

Did

> you call the Department of Orthopedic Surgery, or did you

call/email

> Dr. Ponseti himself?

>

> I've spoken with my husband and we're seriously considering at

trip.

> Oh boy!...any help would be so appreciated.

>

> and (3/30/04 - " stubborn " RCF)

>

January 19, 2006

I too looked Dr. P up on the internet, and spoke with him directly within 24hrs.

HE IS GODS COMPANION! You will never meet a man as loving and wonderful as him!

Not even your own (not directed at anyone personally, just making a statement)

husband...lol... Dr. P did all our care for FREE! He even paid for our stay at

the RMH! My daughter would of had to have extensive surgery with any local

ortho, but Dr. P did it with casting, no surgery! TAKE YOUR CHILD TO HIM! You

will NEVER regret it!

Christee

Mother of...

*Josh, Central Auditory Processing Disorder/Sensory sensitivity/learning &

Speech disorders (9yrs old)

**Aspen, Bilateral minor Metatarsus Adductus (5 1/2 yrs old)

***Dylan, (4 yrs old)

&

****Lilee ~ Unilateral A-Typical (complex) Club Foot w/Cavus/Plantaris (R

foot) & Mild/Moderate Metatarsus Adductus (L foot).

*Ponseti/ Brace 22/24 until 2/14/06, then to 18/24.

---------------------------------

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Photo Books. You design it and we’ll bind it!

January 19, 2006

When we heard the doctors in Utah felt she was an amputation case it

honestly didn't shock me. We had been told that was worst case

scenario before we ever brought her home from China and we only had

two sentences about her condition prior to traveling over there so we

really didn't have much to go on. This statement however, just

reconfirmed to me that my gut instinct was right to go elsewhere. By

that point, I had already e-mailed 20 Ponseti doctors in the country

about and only 3 of them had experience with older children,

so I began talking to those 3 doctors and we decided we would go out

to St. Louis to see Dr. Dobbs. He was absolutely wonderful and

always called me right back to answer my questions. So on a whim I

decided I'd look up Dr. Ponseti's number and call him not really

knowing anything about the man or where he was located. When I was

connected right to him I was just amazed. As you know the rest is

history. Dr. Ponseti totally corrected our little girl so she has

beautiful, pain free, straight feet that she loves today. We are

forever grateful to him and Dr. Morcuende. They truly created a

miracle for us. Take care!

Joyce

> >

> > Thank you to " jennyandkelly " for such prompt responses and

great

> > information. It's really got me thinking that we probably

should

> go

> > to Iowa. I want the best for my son. If someone's gonna tell

me

> he

> > definitely needs surgery, I want the best Ponseti people

telling

> me.

> > I'm thinking it also would be worth every penny to fly there

and

> have

> > them tell me he's doing fine (wouldn't that be a miracle!)

too.

> >

> > Those of you who went to Iowa, how did you begin to research

> getting

> > there, insurance questions, cost of treatment, etc. Did you

just

> call

> > up and say, " Hi, I want to bring my son/daughter in to see

you. " ?

> Did

> > you call the Department of Orthopedic Surgery, or did you

> call/email

> > Dr. Ponseti himself?

> >

> > I've spoken with my husband and we're seriously considering at

> trip.

> > Oh boy!...any help would be so appreciated.

> >

> > and (3/30/04 - " stubborn " RCF)

> >

>

January 20, 2006

It is a miracle. Have you taken her bck to see the original " amputee " doctor so

perhaps he'd be inspired?

s.

Re: People who went to Iowa...How do you get the

ball rolling?