Re: FW: Re: Tendon Transfer at Age 3

[Guest guest]

my home email is dscjedwards @ comcast.net

I sent you an email earlier today, I hope you saw it.

My home number is 603 483 5997 if you would like to give me a call. I have

school and errands in the am, but I will be home after 1230pm.

I hope to chat with you soon.

Best~

DM

Gerace wrote:

_____

From: Gerace

Sent: Wednesday, January 18, 2006 11:44 AM

To: 'nosurgery4clubfoot '

Subject: RE: Re: Tendon Transfer at Age 3

Dawn-Marie,

How have you been? I want to discuss with you the tendon transfer thing via

private email but I can’t find it! Can you email me at cgerace@...

so we can talk? Christian has the same surgery coming up.

_____

From: nosurgery4clubfoot

[mailto:nosurgery4clubfoot ] On Behalf Of Dawn-Marie

Sent: Wednesday, January 18, 2006 10:48 AM

To: nosurgery4clubfoot

Subject: Re: Re: Tendon Transfer at Age 3

When I sent the email with pictures to Dr.P. I sent bearing weight

pictures, front/side/top/back views. At the time I had asked the group

which pictures to send.

I would guess that because the tendons are not as strechable as muscles is

the reason for the surgery. Most of our children have the tenonomy done

because the tendon does not strech enough for the heel to seat properly in

the shoes so my theory is the ATT is done for similar reasoning.

His foot doesn't necessarily pull to the clubfoot position it almost looks

like he is standing a cigar and his foot curls with the shape of it.

I will send Dr. P more pictures as time goes on, closer to the surgery,

but I had actually noticed that rolls his foot to the outside while

walking. It has gotten better since he is becoming more mobile but it is

significant enough that others have noticed it with out my pointing it out.

Best~

Dawn

volng8r1 wrote:

Dr. Ponseti told us when he saw Lucas that he will definitely need

this done on the right foot, and most likely the left as well

between 2-3 years. He's only 1 now....I'm not sure how he can tell

right away that he'll need it down the road, but ours is a difficult

case also.

Jenn

> > Good question….

> >

> >

> >

> > _____

> >

> > From: nosurgery4clubfoot

> > [mailto:nosurgery4clubfoot ] On Behalf Of number23

> > Sent: Monday, January 16, 2006 1:06 PM

> > To: nosurgery4clubfoot

> > Subject: Re: Re: Tendon Transfer at Age 3

> >

> >

> >

> > But how do they determine it is " necessary " at this young age

when

> so many

> > other babies are responding so well to re-casting at this age?

> > s.

> >

> > Re: Tendon Transfer at Age 3

> >

> >

> >

> > Welcome nna & Macie!

> > I am utterly shocked that the doctors in Des Moines wanted to

do

> > surgery on your child. You would think that with the

proximity of

> > Des Moines to Iowa City, that all the doctors there would be

> > following the Ponseti method! What a disappointment! I'm

glad you

> > researched your options and were able to get your daughter to

Iowa

> > City!

> > I'm sorry that you're dealing with a relapse. There are quite

a few

> > families here with ATTT experience and hopefully they'll be a

great

> > support and source of information for you.

> > Have you seen the Global HELP booklet? It has graphic

photographs

> > of the procedure (it's a medical booklet intended for

> > professionals), so I'm not sure if this interests you or

not.

> > As far as navigating the site, to search through the archives,

you

> > have to type in a key word, then the Yahoo site will search

through

> > a batch of the most recent messages for your word...if you hit

next,

> > it will search through the group of next oldest messages.

> > Unfortunately, there's no way to search all the posts at once,

so

> > you have to keep hitting " next " to sift through them. Not

user-

> > friendly at all.

> > We look forward to having you and Macie on our group!

> > Best wishes,

> > & (3-16-00, left clubfoot)

> > http://ponseticlubfoot.freeservers.com/

> >

> >

> >

> >

> >

> >

> >

> >