Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 The last time I had issues with facial numbness, the event began with a tingling in my lips. For those of you who have dealt with the Bell's palsy like issue, curious what the first signs were for you. Reason I ask is that yesterday afternoon one of my cheeks suddenly went numb up near the cheek bone, almost as if I had a shot or two of novacaine. This morning, hard to tell but it feels as if the numbness has spread to the corner of my mouth. If I remember correctly, like I remember much with neuro sarc, it took ~3 days last time before the entire side of my face was numb. Hoping this isn't the case. Any insight appreciated. Peace, Tony Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 I've had Bells Palsy at least 7 times. It's not a recurrent condition with me. It is continuous and the medications simply keep it in check, most of the time. But we're always monkeying around with med doses, trying to get me on the least harmful dosage possible. Saturday I lost my voice again. My face is numb most of the time, and my ear hurts always. My last visit to the neurologist, she suggested that I may have to endure certain symptoms, like BP, because the drugs were causing too much damage. We can't risk any higher doses unless my symptoms cause extreme discomfort or disability. So I'm voiceless and on soft food. We'll see how things go. In the past, prednisone helped resolve the symptoms very quickly, but it has it's drawbacks, as many of you know. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 , I remember awhile back reading about your ongoing struggle with Bell's palsy. I think you're the only person I've known of with this much trouble. Do you have the trigeminal neuralgia also? My neurologist told me that sarc has an "affinity" for the cranial nerves, with the 7th nerve probably being the favorite. I'm thankful for just 2 episodes; I really sympathize with you for what you are going through. Ramblin' RoseModerator > To: Neurosarcoidosis > Date: Tue, 16 Jun 2009 03:34:20 +0000> Subject: Re: Facial Numbness question> > I've had Bells Palsy at least 7 times. It's not a recurrent condition with me. It is continuous and the medications simply keep it in check, most of the time. But we're always monkeying around with med doses, trying to get me on the least harmful dosage possible. Saturday I lost my voice again. My face is numb most of the time, and my ear hurts always. > My last visit to the neurologist, she suggested that I may have to endure certain symptoms, like BP, because the drugs were causing too much damage. We can't risk any higher doses unless my symptoms cause extreme discomfort or disability. So I'm voiceless and on soft food. We'll see how things go.> In the past, prednisone helped resolve the symptoms very quickly, but it has it's drawbacks, as many of you know.> > > > ------------------------------------> > ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community> > > CHATROOM LINK: http://www.sarcbuddies.com -- Open all the time.....> > Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages> > Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 , I had it so many times I lost count. I had chronic Bell's and trigeminalneuralgia for 10 years and hoarsness for about 5. I have ear pain and numbness around both eyes across the nose and starting down the cheeks. Last summer I had cytoxan treatments for three months. The BP and TN both simmered down but I have had hoarseness and ear pain off and on. Has anyone talked to you about Lyrica? I can't stomach it for long periods of time, but when it gets bad I will take it. I know some people have had accupuncture for Bell's. My chiropractor does it but I didn't need it after the Cytoxan treatment. I hope this information helps and just know you are not alone. Be sure to have somone to turn to when the trigeminal neuralgia gets bad. Take care and maybe one of the drugs will help soon. terri g. > > I've had Bells Palsy at least 7 times. It's not a recurrent condition with me. It is continuous and the medications simply keep it in check, most of the time. But we're always monkeying around with med doses, trying to get me on the least harmful dosage possible. Saturday I lost my voice again. My face is numb most of the time, and my ear hurts always. > My last visit to the neurologist, she suggested that I may have to endure certain symptoms, like BP, because the drugs were causing too much damage. We can't risk any higher doses unless my symptoms cause extreme discomfort or disability. So I'm voiceless and on soft food. We'll see how things go. > In the past, prednisone helped resolve the symptoms very quickly, but it has it's drawbacks, as many of you know. > Quote Link to comment Share on other sites More sharing options...
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