Re: Re: new to this disease

[Guest guest]

Hi I am Jackie from Wisconsin. I was infiltrated with NS in 2006. It came on real fast, first my face, then my right side and a little of my left. Dizzy all the time. I have wonderful Doctors from the University of WI. in Madison and LaCrosse. I am on Prednisone-5mg now, plaquinill, and Methotrexate. I have gone from not moving anything to walking with a walker. short distance so I mostly use the wheel chair. I drive my own car, take care of my own business. The doctors tell me I am improving all the time and they can see me getting mostly back to me. However it won't go away maybe just go into remission for a while. Yes it is scary knowing that anytime it could spread to another organ but I choose to remain optimistic about the whole thing. I am to stubborn to let it get me down.

I am glad you found this site, it has helped me so much. The members are wonderful and full of knowledge. And they share. If they don't know they find out if they can.

I am sorry that you got this monster but on the good side you have found all of us. Take care of you and read all the sites you can. Great information to share with your doctors.

Best to you for many pain free days and much happiness. Good luck.

Jackie

Re: new to this disease

>Thank u Barb & Marla,It helps to know that there is someone out there that understands what I'm going through..currently I am not on any med's for sarcoidosis..I'm on meds for pain..which don't seem to help. I try a new med and within 1 month its not working...so my rhuematogolist suggested that i flipflop with my meds..when one stops working try the other ones..i haven't had a spinal tap yet..b/c I have scoliosis with a harrington rod implant..i'm kinda afraid..but u guys do give me hope..if u could share with me any websites were I can get more info about this disease I would appreciate it...Thanks again