Guest guest Posted September 12, 2008 Report Share Posted September 12, 2008 Hello everyone, I have trigeminal neuralgia. It starts in my ear or jaw, and feels as if I am being stabbed by a hot sharp knife. The pain is always on my the right side of my face. when the pain is full blown my face or i should say my eyelid droops, my mouth opens from the pain I can not talk I drool. This has lasted hours at a time and I have to just wait it out. This pain can be set off by a breeze from an overhead fan. Other than washing my face and brushing my teeth (which can also set it off) I do not touch my face (right-side) for any reason and my docs know not to touch. I am not trying scare anyone but this is how tri-gem affects me! When i see my neurologist on Monday we are going to decide if I should be medicated for this or not. Anyway I been so sick the last couple of weeks just home from the hospital with home care but it does not seem to be enough help? So I am being evaluated next week for admission to a rehab center (n Joy) in wheaton Illinois. At least being away for awhile and not be in the hospital it will give my husband a long needed break from my care giving and household chores, although the chores will be there. I am rambling sorry for that. My sister has been staying with us this week (came in from Minneapolis) She has been cooking non-stop and freezing meals for us! Yeah no fast food for awhile. I Hope everyone has a comfortable week end! Your sarc friend Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2008 Report Share Posted September 17, 2008 Tracie, They did find the bands in my spinal fluid, it seems double whammys are all over with this. That is good that pulling the tooth worked, sometimes root canals can make it worse. I've had two root canals on one tooth, one on another and nothing worked. I had workups for TMJ too. I started with it in 1996 and fought with it until 2005. I was afraid of the surgery back when it first came out but it was incredibly simple. Well, having 125 laser beams pointed at a single nerve at the base of your brain I guess isn't simple but it was an outpatient procedure, you just have to find a hospital with the facilites and a doctor that is trained on it. I still get some residual pain, like now with a sinus infection it flares up but is so much better than before. My prayers are with anyone struggling with it, it is a horrible kind of pain. Devrin Quote Link to comment Share on other sites More sharing options...
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