Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 My daughter is now 7.5 months old by birth (6 weeks preemie, adjusted age is 6 months). She was diagnosis with right side plagiocephal and torticollis at four months old; we've done PT and positional therapy and still no change. Her scan measures at 4.1 which they consider mild, but it's the adults (friends, family, nanny, etc...) who are giving me a hard time about it. My pediatrician and the tech at CIRS said it's mild and doesn't look like we need to ban, if we were to do it, it'll be completely out of pocket and an aesthetic issue. If we were to ban her NOW it would take 3-4 months, we have one more month to make a decision; else it'll be harder and longer. So my question is would you ban your child if you were in the same situation as us? Money is not an issue, time is not an issue, getting the pediatrician to give me a prescription is going to be tough since he is against it… my daughter is already crawling; the physical therapist said she'll be walking early (my daughter is already pulling herself up wanting to stand/walk). If I were to do it, it'll benefit my daughter esthetically, protects her head since she's already crawling soon to be walking, if she hates it we can abandon it half way through the treatment. I feel like I have nothing to loose if we were to do it. And if I don't ban, she may resent me when she is older. If her hair is especially fine hair like her older sister's it'll show the shape of her head. Yikes… Any thoughts/suggestions would be appreciated. So would you ban? If so, have any of you stop/discontinued half way during the treatment? What was your alternative solution? Thanks for the help. -e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Personally I think 4.1 mm of asymmetry truly is mild. My son graduated from his band at 4.6 mm and we were very happy with the shape of his head. Even his older brother who didn't have plagio measured at 7 mm. What was your daughter's Cephalic Ratio? Perhaps she has some brachy that is reflected in the 4.1 mm of asymmetry. However, what really matters is what you think. Ask yourself, " If her head doesn't get any better than it is right now, am I OK with that? " If your answer is " yes " then you can probably skip the band. If it's " no " or " I'm not sure " you might want to consider a band. Keep in mind that for the band to work the head needs to have prominent points for the band to hold on to. Which CIRS are you going to? We went to the one in Oakland and had a great experience with them. Molly Novato, California Nicolas, 2.5, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06, Graduate! , 5 , 8.5 To ban or not? My daughter is now 7.5 months old by birth (6 weeks preemie, adjusted age is 6 months). She was diagnosis with right side plagiocephal and torticollis at four months old; we've done PT and positional therapy and still no change. Her scan measures at 4.1 which they consider mild, but it's the adults (friends, family, nanny, etc...) who are giving me a hard time about it. My pediatrician and the tech at CIRS said it's mild and doesn't look like we need to ban, if we were to do it, it'll be completely out of pocket and an aesthetic issue. If we were to ban her NOW it would take 3-4 months, we have one more month to make a decision; else it'll be harder and longer. So my question is would you ban your child if you were in the same situation as us? Money is not an issue, time is not an issue, getting the pediatrician to give me a prescription is going to be tough since he is against it. my daughter is already crawling; the physical therapist said she'll be walking early (my daughter is already pulling herself up wanting to stand/walk). If I were to do it, it'll benefit my daughter esthetically, protects her head since she's already crawling soon to be walking, if she hates it we can abandon it half way through the treatment. I feel like I have nothing to loose if we were to do it. And if I don't ban, she may resent me when she is older. If her hair is especially fine hair like her older sister's it'll show the shape of her head. Yikes. Any thoughts/suggestions would be appreciated. So would you ban? If so, have any of you stop/discontinued half way during the treatment? What was your alternative solution? Thanks for the help. -e ------------------------------------ For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Having the helmet on my son has not been a walk in the park. He doesn't sleep very well and is still really fussy after 2 weeks of wearing it (we're doing a little better then when he first had the helmet). He has a 12mm measurement. You have to REALLY want to do this otherwise you will waste a lot of time, money, and effort. Even though you said those aren't factors, to me, it just seems silly to get the helmet if you are so wishy-washy. Knowing what I know now about the helmet and reading about your daughter's degree of asymmetry I would skip it. I have a friend whose 13 month old son had crazy asymmetry and after PT for 6 months, his head looks pretty good. He didn't have a helmet.Putting a band on your kid is not for the faint of heart. It is a daily struggle. It requires a lot of accommodation on your part. Oh and it smells like...sweaty socks times ten.I'm not trying to talk you out of it. I'm being realistic. To ban or not?My daughter is now 7.5 months old by birth (6 weeks preemie, adjusted age is 6 months). She was diagnosis with right side plagiocephal and torticollis at four months old; we've done PT and positional therapy and still no change. Her scan measures at 4.1 which they consider mild, but it's the adults (friends, family, nanny, etc...) who are giving me a hard time about it. My pediatrician and the tech at CIRS said it's mild and doesn't look like we need to ban, if we were to do it, it'll be completely out of pocket and an aesthetic issue. If we were to ban her NOW it would take 3-4 months, we have one more month to make a decision; else it'll be harder and longer. So my question is would you ban your child if you were in the same situation as us? Money is not an issue, time is not an issue, getting the pediatrician to give me a prescription is going to be tough since he is against it… my daughter is already crawling; the physical therapist said she'll be walking early (my daughter is already pulling herself up wanting to stand/walk). If I were to do it, it'll benefit my daughter esthetically, protects her head since she's already crawling soon to be walking, if she hates it we can abandon it half way through the treatment. I feel like I have nothing to loose if we were to do it. And if I don't ban, she may resent me when she is older. If her hair is especially fine hair like her older sister's it'll show the shape of her head. Yikes… Any thoughts/suggestion s would be appreciated. So would you ban? If so, have any of you stop/discontinued half way during the treatment? What was your alternative solution? Thanks for the help. -e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2008 Report Share Posted July 6, 2008 Can you post photos for us to see? That will better help us advise I think. To ban or not? My daughter is now 7.5 months old by birth (6 weeks preemie, adjusted age is 6 months). She was diagnosis with right side plagiocephal and torticollis at four months old; we've done PT and positional therapy and still no change. Her scan measures at 4.1 which they consider mild, but it's the adults (friends, family, nanny, etc...) who are giving me a hard time about it. My pediatrician and the tech at CIRS said it's mild and doesn't look like we need to ban, if we were to do it, it'll be completely out of pocket and an aesthetic issue. If we were to ban her NOW it would take 3-4 months, we have one more month to make a decision; else it'll be harder and longer. So my question is would you ban your child if you were in the same situation as us? Money is not an issue, time is not an issue, getting the pediatrician to give me a prescription is going to be tough since he is against it… my daughter is already crawling; the physical therapist said she'll be walking early (my daughter is already pulling herself up wanting to stand/walk). If I were to do it, it'll benefit my daughter esthetically, protects her head since she's already crawling soon to be walking, if she hates it we can abandon it half way through the treatment. I feel like I have nothing to loose if we were to do it. And if I don't ban, she may resent me when she is older. If her hair is especially fine hair like her older sister's it'll show the shape of her head. Yikes… Any thoughts/suggestion s would be appreciated. So would you ban? If so, have any of you stop/discontinued half way during the treatment? What was your alternative solution? Thanks for the help. -e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 Hi there, If the deformity is significant enough and it would only take 3 months at most to correct it, i would. I have a daughter who's now at 17 months with a flat side at the back of her head. We've got her a cranial helmet and been using for more than a month now, though not 23 hours a day since she at an age where she can push it off after awhile hour, and we're seeing slow/little improvement. My wish was that we should've had the band much earlier when she was younger, and maybe we wouldnt have our problems now keeping the helmet on and perhaps get more encouraging results. The older they get, the harder for the correction to happen it seems. Chris > > Can you post photos for us to see? That will better help us advise I think. > > > To ban or not? > > > My daughter is now 7.5 months old by birth (6 weeks preemie, > adjusted age is 6 months). She was diagnosis with right side > plagiocephal and torticollis at four months old; we've done PT and > positional therapy and still no change. Her scan measures at 4.1 > which they consider mild, but it's the adults (friends, family, > nanny, etc...) who are giving me a hard time about it. My > pediatrician and the tech at CIRS said it's mild and doesn't look > like we need to ban, if we were to do it, it'll be completely out of > pocket and an aesthetic issue. If we were to ban her NOW it would > take 3-4 months, we have one more month to make a decision; else > it'll be harder and longer. So my question is would you ban your > child if you were in the same situation as us? Money is not an > issue, time is not an issue, getting the pediatrician to give me a > prescription is going to be tough since he is against it… my > daughter is already crawling; the physical therapist said she'll be > walking early (my daughter is already pulling herself up wanting to > stand/walk). If I were to do it, it'll benefit my daughter > esthetically, protects her head since she's already crawling soon to > be walking, if she hates it we can abandon it half way through the > treatment. I feel like I have nothing to loose if we were to do > it. And if I don't ban, she may resent me when she is older. If > her hair is especially fine hair like her older sister's it'll show > the shape of her head. Yikes… Any thoughts/suggestion s would be > appreciated. > > So would you ban? > > If so, have any of you stop/discontinued half way during the > treatment? What was your alternative solution? > > Thanks for the help. -e > Quote Link to comment Share on other sites More sharing options...
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