Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Hi, welcome to the board! I'm not sure if you gave us quite enough information here to give you a complete answer. Has your son only been wearing the shoes 23/7 for 2 months? Typically, it's 3 months full time after the tenotomy. How old is your son? Is he walking yet? Here is a link to a post with the standards for wearing the brace (for most cases) per Dr. Ponseti: http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/30939 You can also get to this under the links section on this group's website. Going from full-time wear right down to naptime can be disastrous, as you may have read. It is better to step down the amount of hours gradually. Additionally, most children shouldn't be at " night time only " which technically is 10 hours/day I think- until they are walking full-time. There is additional bracing information in the files section under the bracing folder. Also, there is information on bracing, relapses etc. at this site: http://members.tripod.com/ponseti_links-ivil I hope this helps! If you don't mind sharing, who is your son's doctor/hospital? We look forward to reading updates- and please ask any questions you might have! Regards, & (3-16-00, left clubfoot) http://ponseticlubfoot.freeservers.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Thank you for your very informative response. My son is 4 1/2 months old. We began treatment at 3 weeks. He was born with club foot on the right. He responded very well to everything. His doctor is Dr. Lemke from Fox Valley Orthopeadic in Geneva, IL I am very pleased with her. She has been great. He has been wearing the shoes 23/7 for 2 1/2 months. We are now in the weaning down stage. We were told to take it very slowly. I am looking for any suggestions on how to do this properly. > > Hi, welcome to the board! > I'm not sure if you gave us quite enough information here to give you > a complete answer. Has your son only been wearing the shoes 23/7 for > 2 months? Typically, it's 3 months full time after the tenotomy. > How old is your son? Is he walking yet? > Here is a link to a post with the standards for wearing the brace (for > most cases) per Dr. Ponseti: > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/30939 > You can also get to this under the links section on this group's > website. > Going from full-time wear right down to naptime can be disastrous, as > you may have read. It is better to step down the amount of hours > gradually. Additionally, most children shouldn't be at " night time > only " which technically is 10 hours/day I think- until they are > walking full-time. > There is additional bracing information in the files section under the > bracing folder. Also, there is information on bracing, relapses etc. > at this site: http://members.tripod.com/ponseti_links-ivil > I hope this helps! If you don't mind sharing, who is your son's > doctor/hospital? > We look forward to reading updates- and please ask any questions you > might have! > Regards, > & (3-16-00, left clubfoot) > http://ponseticlubfoot.freeservers.com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Hi there and welcome, Glad to hear that your little guy has done well with his casts and 23/7 wear! Our little girl also has unilateral right clubfoot. The link that gave you is to Dr. Ponseti's web site and he describes how brace wear should be reduced. First to about 18 hrs, then to 16, then to 14 and finally when walking is well established, down to 12. Honestly, I was sooo happy to have Grace out of her brace 23/7 and was very confident in her correction and we went to about 16 hrs after our 23/7 (3 mos of this as per protocol) and she was fine. We then went down to 14 hrs, when she was cruising. She has now been walking for about 3 mo's or so but I still keep her in her FAB for 13 hrs. And will keep this up for the duration of her brace wear - until she is 4. Again welcome and congrats on your son! HTH & Grace 16 mos unilateral rcf FAB 13 hrs > > > > Hi, welcome to the board! > > I'm not sure if you gave us quite enough information here to give you > > a complete answer. Has your son only been wearing the shoes 23/7 for > > 2 months? Typically, it's 3 months full time after the tenotomy. > > How old is your son? Is he walking yet? > > Here is a link to a post with the standards for wearing the brace (for > > most cases) per Dr. Ponseti: > > http://health.groups.yahoo.com/group/nosurgery4clubfoot/message/30939 > > You can also get to this under the links section on this group's > > website. > > Going from full-time wear right down to naptime can be disastrous, as > > you may have read. It is better to step down the amount of hours > > gradually. Additionally, most children shouldn't be at " night time > > only " which technically is 10 hours/day I think- until they are > > walking full-time. > > There is additional bracing information in the files section under the > > bracing folder. Also, there is information on bracing, relapses etc. > > at this site: http://members.tripod.com/ponseti_links-ivil > > I hope this helps! If you don't mind sharing, who is your son's > > doctor/hospital? > > We look forward to reading updates- and please ask any questions you > > might have! > > Regards, > > & (3-16-00, left clubfoot) > > http://ponseticlubfoot.freeservers.com/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 My advice is two months is way too soon to wean him down to bed time only! This is a process over months, lots of months not just two! - from 23 hours to 18 to 16 to 14 hours.... Look in our files for the Ponseti Bracing Protocol for full details. s. Help with shoes My son completed the casting including the snipping of the achilles ten. He has been wearing his shoes for the past 2 months. Everythings looks great! We are now at the point of weaning him off of the shoes except for nighttime. Does anyone have any suggestions as to how to go about this? What works the best? I have heard nightmares about this and just want to do what is best for him. Thank you in advance and for offering this group!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2005 Report Share Posted December 3, 2005 Hi - Just wanted to say that we're at a similar stage! is 4 months tomorrow and we too are going to gradually wean her off the P/M. She had bilateral clubfeet, and was casted by Dr. Ponseti in Iowa at 3.5 weeks. She had her tenotomy in mid-September. Dr. Ponseti told us to wear the P/M for: 22hours/day for the first 2 months and then lower it to 20hours/day for one month, and then 18hours/day for one month. After that, he told us she should wear it for 16hours/day. We have a follow-up appointment with him in January to monitor the progress. Good luck! Yuuko > > My advice is two months is way too soon to wean him down to bed time only! This is a process over months, lots of months not just two! - from 23 hours to 18 to 16 to 14 hours.... > > Look in our files for the Ponseti Bracing Protocol for full details. > s. > > Help with shoes > > > My son completed the casting including the snipping of the achilles > ten. He has been wearing his shoes for the past 2 months. > Everythings looks great! We are now at the point of weaning him off > of the shoes except for nighttime. Does anyone have any suggestions > as to how to go about this? What works the best? I have heard > nightmares about this and just want to do what is best for him. > > Thank you in advance and for offering this group!!! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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