Re: Observations, Questions, Concerns, and randoms...

February 10, 2010

I've also been eating a coconut cream/gelatin mixture which has a TON of gelatin in it. if Knox plain gelatin is similar to the stuff from bone broth then I've got an abundance of it in my belly -UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: smdsmom2008@...Date: Wed, 10 Feb 2010 05:29:02 +0000Subject: Re: Observations, Questions, Concerns, and randoms...

That works, chicken, beef, fish... it's the gelatin from the boiled bones that is soothing to the gut.

PJ

>

> >

>

> >

>

> > First off, GREAT news about being cancer free!!! I know you're going to take that vacation you've been dreaming about Marilyn. Congrats!!

>

> >

>

> > Next, I visited Whole Foods Market and they have an idle for everything except an SCD isle. When they get that isle I will be shopping there exclusively.

>

> >

>

> > Finally, I can't get my flare under control this time. It's been 2 weeks since I stopped taking antibiotics and started steroids along with the max dose of Asacol (12 pills a day). Usually, this will kick a flare out of me overnight. This time, it's just not happening. I've gone back to intro for 2 day and now i'm eating very little honey, no nut flours, and only seasoned meats, eggs, mashed squash, cooked carrots and broccoli, mild cheddar cheese, legal bacon, legal brown mustard from digestivewellness, at least a cup of yogurt a day with no honey in it, no more than 1 banana a day, avocado(1 a day at most), cheesecake, and I made a type of jello with coconut cream. Everything i've been eating has never bothered me before so I have no reason to believe it's anything i'm eating but who knows. Seasoning are nothing new as well.

>

> >

>

> > Also taking scd multivitamin, occasionally oregano oil, and occasionally charcoal tablets. 2 nights ago I started epsom salt baths (they kick ass! sooo relaxing) and I soak in there for about 20 minutes.

>

> >

>

> > Any advice? Things I should cut out?

>

> >

>

> > Not sure where to go from here. I am going to try LDN later on after I have health insurance and can go see my doc.

>

> >

>

> > -

>

> > UC - 1+ years

>

> > SCD - 7 months 100% strict and 4 months restricted diet.

>

> > Asacol - 5 pills a day

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > __________________________________________________________

>

> > Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

> > http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

> >

>

> __________________________________________________________

> Hotmail: Free, trusted and rich email service.

> http://clk.atdmt.com/GBL/go/201469228/direct/01/

>

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February 10, 2010

From Nourishing Traditions, it's not quite as good as the home made stuff but

it's still good. Are you feeling better today?

PJ

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > > First off, GREAT news about being cancer free!!! I know you're going to

take that vacation you've been dreaming about Marilyn. Congrats!!

>

> >

>

> > >

>

> >

>

> > > Next, I visited Whole Foods Market and they have an idle for everything

except an SCD isle. When they get that isle I will be shopping there

exclusively.

>

> >

>

> > >

>

> >

>

> > > Finally, I can't get my flare under control this time. It's been 2 weeks

since I stopped taking antibiotics and started steroids along with the max dose

of Asacol (12 pills a day). Usually, this will kick a flare out of me overnight.

This time, it's just not happening. I've gone back to intro for 2 day and now

i'm eating very little honey, no nut flours, and only seasoned meats, eggs,

mashed squash, cooked carrots and broccoli, mild cheddar cheese, legal bacon,

legal brown mustard from digestivewellness, at least a cup of yogurt a day with

no honey in it, no more than 1 banana a day, avocado(1 a day at most),

cheesecake, and I made a type of jello with coconut cream. Everything i've been

eating has never bothered me before so I have no reason to believe it's anything

i'm eating but who knows. Seasoning are nothing new as well.

>

> >

>

> > >

>

> >

>

> > > Also taking scd multivitamin, occasionally oregano oil, and occasionally

charcoal tablets. 2 nights ago I started epsom salt baths (they kick ass! sooo

relaxing) and I soak in there for about 20 minutes.

>

> >

>

> > >

>

> >

>

> > > Any advice? Things I should cut out?

>

> >

>

> > >

>

> >

>

> > > Not sure where to go from here. I am going to try LDN later on after I

have health insurance and can go see my doc.

>

> >

>

> > >

>

> >

>

> > > -

>

> >

>

> > > UC - 1+ years

>

> >

>

> > > SCD - 7 months 100% strict and 4 months restricted diet.

>

> >

>

> > > Asacol - 5 pills a day

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > > __________________________________________________________

>

> >

>

> > > Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

> >

>

> > > http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

> >

>

> > >

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>

> >

>

> >

>

> >

>

> >

>

> >

>

> > __________________________________________________________

>

> > Hotmail: Free, trusted and rich email service.

>

> > http://clk.atdmt.com/GBL/go/201469228/direct/01/

>

> >

>

> _________________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

February 10, 2010

hard to tell, i'm always better in the morning after I wake since I take the steroids before bed... then I notice the effects wearing off slowly throughout the day. Seems to be wearing off a little bit less every day though so that's good. Only concern is running out before I can get healed enough to stop them. If it comes down to it, i'll just have to pay out of pocket... makes me feel all warm and fuzzy inside to know i'll be helping some rich executive at a pharmaceutical company afford a 5th BMW for their driveway.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: smdsmom2008@...Date: Wed, 10 Feb 2010 15:57:35 +0000Subject: Re: Observations, Questions, Concerns, and randoms...

From Nourishing Traditions, it's not quite as good as the home made stuff but it's still good. Are you feeling better today?

PJ

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > > First off, GREAT news about being cancer free!!! I know you're going to take that vacation you've been dreaming about Marilyn. Congrats!!

>

> >

>

> > >

>

> >

>

> > > Next, I visited Whole Foods Market and they have an idle for everything except an SCD isle. When they get that isle I will be shopping there exclusively.

>

> >

>

> > >

>

> >

>

> > > Finally, I can't get my flare under control this time. It's been 2 weeks since I stopped taking antibiotics and started steroids along with the max dose of Asacol (12 pills a day). Usually, this will kick a flare out of me overnight. This time, it's just not happening. I've gone back to intro for 2 day and now i'm eating very little honey, no nut flours, and only seasoned meats, eggs, mashed squash, cooked carrots and broccoli, mild cheddar cheese, legal bacon, legal brown mustard from digestivewellness, at least a cup of yogurt a day with no honey in it, no more than 1 banana a day, avocado(1 a day at most), cheesecake, and I made a type of jello with coconut cream. Everything i've been eating has never bothered me before so I have no reason to believe it's anything i'm eating but who knows. Seasoning are nothing new as well.

>

> >

>

> > >

>

> >

>

> > > Also taking scd multivitamin, occasionally oregano oil, and occasionally charcoal tablets. 2 nights ago I started epsom salt baths (they kick ass! sooo relaxing) and I soak in there for about 20 minutes.

>

> >

>

> > >

>

> >

>

> > > Any advice? Things I should cut out?

>

> >

>

> > >

>

> >

>

> > > Not sure where to go from here. I am going to try LDN later on after I have health insurance and can go see my doc.

>

> >

>

> > >

>

> >

>

> > > -

>

> >

>

> > > UC - 1+ years

>

> >

>

> > > SCD - 7 months 100% strict and 4 months restricted diet.

>

> >

>

> > > Asacol - 5 pills a day

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > >

>

> >

>

> > > __________________________________________________________

>

> >

>

> > > Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

> >

>

> > > http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

> >

>

> > >

>

> >

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> >

>

> >

>

> >

>

> >

>

> >

>

> >

>

> > __________________________________________________________

>

> > Hotmail: Free, trusted and rich email service.

>

> > http://clk.atdmt.com/GBL/go/201469228/direct/01/

>

> >

>

> __________________________________________________________

> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

> http://clk.atdmt.com/GBL/go/201469226/direct/01/

>

Hotmail: Trusted email with powerful SPAM protection. Sign up now.

February 10, 2010

Is that SCD legal? looked it up and " Hydroxypropyl methylcellulose, cellulose, magnesium stearate." those are the other ingredients. Do you get it online or at a store? I looked at their site and it's $22 for a 16 day supply.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: kevinking114@...Date: Tue, 9 Feb 2010 20:25:43 -0800Subject: RE: Observations, Questions, Concerns, and randoms...

I would try S Boulardii, but it may work better for CD than UC. Not sure but I started a stronger dose of S Boulardi (Nutricolgy 3 pills 3 times a day) a week ago and have been pretty much symptom free for a week.

Feel Better.

K

First off, GREAT news about being cancer free!!! I know you're going to take that vacation you've been dreaming about Marilyn. Congrats!!Next, I visited Whole Foods Market and they have an idle for everything except an SCD isle. When they get that isle I will be shopping there exclusively.Finally, I can't get my flare under control this time. It's been 2 weeks since I stopped taking antibiotics and started steroids along with the max dose of Asacol (12 pills a day). Usually, this will kick a flare out of me overnight. This time, it's just not happening. I've gone back to intro for 2 day and now i'm eating very little honey, no nut flours, and only seasoned meats, eggs, mashed squash, cooked carrots and broccoli, mild cheddar cheese, legal bacon, legal brown mustard from digestivewellness, at least a cup of yogurt a day with no honey in it, no more than 1 banana

a day, avocado(1 a day at most), cheesecake, and I made a type of jello with coconut cream.

that sounds good.

Everything i've been eating has never bothered me before so I have no reason to believe it's anything i'm eating but who knows. Seasoning are nothing new as well.Also taking scd multivitamin, occasionally oregano oil, and occasionally charcoal tablets. 2 nights ago I started epsom salt baths (they kick ass! sooo relaxing) and I soak in there for about 20 minutes. Any advice? Things I should cut out?

cut the oil of oregano - it's irritating in a flare.

if you are having mucous, I'd cut the dairy for a little while.

Make ghee (get rid of the milk solids from the butter),

keep with the yogurt but cut the cheese until mucous

ameliorates.

Just keep on keeping on, sometimes it takes a while.

What happened with the vitamin E? Not helping?

Mara

Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. Sign up now.

Hotmail: Free, trusted and rich email service. Get it now.

February 10, 2010

>

> Is that SCD legal? looked it up and " Hydroxypropyl methylcellulose,

> cellulose, magnesium stearate. " those are the other ingredients. Do you

> get it online or at a store? I looked at their site and it's $22 for a

> 16 day supply.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

Yes, S. boulardii is certainly legal. And very helpful, especially if you

have diarrhea.

Those other ingredients are ok.

I also use Nutricology's. You can get a 50 capsule bottle for $12.79 at

luckyvitamin.com (or $12.66 each if you buy 3, $12.53 each for 6).

I normally take one capsule before each meal; or two at a time if I feel I

need it.

n

__________________________________________

> To: BTVC-SCD

> From: kevinking114@...

> Date: Tue, 9 Feb 2010 20:25:43 -0800

> Subject: RE: Observations, Questions, Concerns, and randoms...

> I would try S Boulardii, but it may work better for CD than UC. Not

> sure but I started a stronger dose of S Boulardi (Nutricolgy 3 pills 3

> times a day) a week ago and have been pretty much symptom free for a

> week.

> Feel Better.

> K

>

--

Now available. A fine gift for cat lovers:

Confessions of a Cataholic: My Life With the 10 Cats Who Caused My

Addiction

by n Van Til

www.wordpowerpublishing.com ; signed copies; free shipping in U.S.,

reduced shipping elsewhere

February 10, 2010

At 10:38 AM 2/10/2010, you wrote:

Is that SCD legal? looked it up

and " Hydroxypropyl methylcellulose, cellulose, magnesium

stearate. " those are the other ingredients. Do you get it

online or at a store? I looked at their site and it's $22 for a 16 day

supply.

The added ingredients are SCD legal -- and the Nuricology brand of s.

boulardii is one I use myself. You can probably get it on line. I get

mine at the Vitamin Shoppe.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

February 10, 2010

Yes, this is SCD legal per Marilyn. Netnutri.com sells for $6.50 a bottle. Vitamin shoppe is $18 a bottle?

It's worth a try.

K.

First off, GREAT news about being cancer free!!! I know you're going to take that vacation you've been dreaming about Marilyn. Congrats!!Next, I visited Whole Foods Market and they have an idle for everything except an SCD isle. When they get that isle I will be shopping there exclusively.Finally, I can't get my flare under control this time. It's been 2 weeks since I stopped taking antibiotics and started steroids along with the max dose of Asacol (12 pills a day). Usually, this will kick a flare out of me overnight. This time, it's just not happening. I've gone back to intro for 2 day and now i'm eating very little honey, no nut flours, and only seasoned meats, eggs, mashed squash, cooked carrots and broccoli, mild cheddar cheese, legal bacon, legal brown mustard from digestivewellness, at least a cup of yogurt a day with no honey in it, no more than 1

banana a day, avocado(1 a day at most), cheesecake, and I made a type of jello with coconut cream.

that sounds good.

Everything i've been eating has never bothered me before so I have no reason to believe it's anything i'm eating but who knows. Seasoning are nothing new as well.Also taking scd multivitamin, occasionally oregano oil, and occasionally charcoal tablets. 2 nights ago I started epsom salt baths (they kick ass! sooo relaxing) and I soak in there for about 20 minutes. Any advice? Things I should cut out?

cut the oil of oregano - it's irritating in a flare.

if you are having mucous, I'd cut the dairy for a little while.

Make ghee (get rid of the milk solids from the butter),

keep with the yogurt but cut the cheese until mucous

ameliorates.

Just keep on keeping on, sometimes it takes a while.

What happened with the vitamin E? Not helping?

Mara

Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. Sign up now.

Hotmail: Free, trusted and rich email service. Get it now.

February 10, 2010

that's cheap. Just ordered a bottle from another online store. Shipping was cheaper but it was 12 a bottle, so I eneded up spending 2 dollars more than on this site. I'll know for the future if it works and I want to keep trying it.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: kevinking114@...Date: Wed, 10 Feb 2010 12:48:11 -0800Subject: RE: Observations, Questions, Concerns, and randoms...

Yes, this is SCD legal per Marilyn. Netnutri.com sells for $6.50 a bottle. Vitamin shoppe is $18 a bottle?

It's worth a try.

K.

First off, GREAT news about being cancer free!!! I know you're going to take that vacation you've been dreaming about Marilyn. Congrats!!Next, I visited Whole Foods Market and they have an idle for everything except an SCD isle. When they get that isle I will be shopping there exclusively.Finally, I can't get my flare under control this time. It's been 2 weeks since I stopped taking antibiotics and started steroids along with the max dose of Asacol (12 pills a day). Usually, this will kick a flare out of me overnight. This time, it's just not happening. I've gone back to intro for 2 day and now i'm eating very little honey, no nut flours, and only seasoned meats, eggs, mashed squash, cooked carrots and broccoli, mild cheddar cheese, legal bacon, legal brown mustard from digestivewellness, at least a cup of yogurt a day with no honey in it, no more than 1

banana a day, avocado(1 a day at most), cheesecake, and I made a type of jello with coconut cream.

that sounds good.

Everything i've been eating has never bothered me before so I have no reason to believe it's anything i'm eating but who knows. Seasoning are nothing new as well.Also taking scd multivitamin, occasionally oregano oil, and occasionally charcoal tablets. 2 nights ago I started epsom salt baths (they kick ass! sooo relaxing) and I soak in there for about 20 minutes. Any advice? Things I should cut out?

cut the oil of oregano - it's irritating in a flare.

if you are having mucous, I'd cut the dairy for a little while.

Make ghee (get rid of the milk solids from the butter),

keep with the yogurt but cut the cheese until mucous

ameliorates.

Just keep on keeping on, sometimes it takes a while.

What happened with the vitamin E? Not helping?

Mara

Your E-mail and More On-the-Go. Get Windows Live Hotmail Free. Sign up now.

Hotmail: Free, trusted and rich email service. Get it now.

Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now.

February 10, 2010

if Knox plain gelatin is similar to the stuff from bone broth then I've got an abundance of it in my belly :)I highly doubt that =) If gelatin in a packet was equal nutritionally to homemade bone broth, we'd be all set!! Let me know if it actually is though! Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)Chinese Herbs (not legal but helping!)

February 10, 2010

According to Nourishing Traditions, it's not as good as the broth, but it is

still a good food source.

PJ

>

> > if Knox plain gelatin is similar to the stuff from bone broth then

> > I've got an abundance of it in my belly

>

> I highly doubt that =) If gelatin in a packet was equal nutritionally

> to homemade bone broth, we'd be all set!! Let me know if it actually

> is though!

>

> Peace =)

> Alyssa 15 yo

> UC April 2008, dx Sept 2008

> SCD June 2009 (restarted)

> Chinese Herbs (not legal but helping!)

>

February 10, 2010

I got SCDophilus and S Boulardii from GI Prohealth. Their S

Boulardii is 60 caps for $25.95 and the fillers are " cellulose,

vCaps vegetarian capsule, water and L-leucine " which sounds pretty

pure to me. I haven't used this yet but I haven't had any trouble with

the SCDophilus. Their stuff seems pretty pure.

Is that SCD legal? looked it up and " Hydroxypropyl

methylcellulose, cellulose, magnesium stearate. " those are the other

ingredients. Do you get it online or at a store? I looked at their site

and it's $22 for a 16 day supply.

I would try S Boulardii, but it may work better for CD than UC. Not

sure but I started a stronger dose of S Boulardi (Nutricolgy 3 pills 3

times a day) a week ago and have been pretty much symptom free for a

week.

February 10, 2010

I also take the GI Prohealth SCDophilus and tried their S Boulardii. But GI Prohealth S Boulardii is only 1/3 the strength of Nutricology. Also Nutricology says 9 capsules a day to GI Prohealth saying take 1 a day. I really noticed an improvement with the Nutricology higher strengh and higher dose S Boulardii.

K.

Subject: Re: Observations, Questions, Concerns, and randoms....To: BTVC-SCD Date: Wednesday, February 10, 2010, 8:12 PM

I got SCDophilus and S Boulardii from GI Prohealth. Their S Boulardii is 60 caps for $25.95 and the fillers are "cellulose, vCaps vegetarian capsule, water and L-leucine" which sounds pretty pure to me. I haven't used this yet but I haven't had any trouble with the SCDophilus. Their stuff seems pretty pure.

Is that SCD legal? looked it up and " Hydroxypropyl methylcellulose, cellulose, magnesium stearate." those are the other ingredients. Do you get it online or at a store? I looked at their site and it's $22 for a 16 day supply.

I would try S Boulardii, but it may work better for CD than UC. Not sure but I started a stronger dose of S Boulardi (Nutricolgy 3 pills 3 times a day) a week ago and have been pretty much symptom free for a week.

February 10, 2010

, you could always buy the 50 MG pills from some place like

AllDayChemist.com and make your own LDN. It's very economical that way. I paid

about $75 for nearly a years worth of medicine.

Holly

Crohn's

SCD 12/01/08

> >

> > First off, GREAT news about being cancer free!!! I know you're going to take

that vacation you've been dreaming about Marilyn. Congrats!!

> >

> > Next, I visited Whole Foods Market and they have an idle for everything

except an SCD isle. When they get that isle I will be shopping there

exclusively.

> >

> > Finally, I can't get my flare under control this time. It's been 2 weeks