Re: Re: Unilateral Clubfoot - one leg shorter than the other???

[Guest guest]

Having 3 with cf, Dr. Dobbs is really wanting me to come to St. Louis for

treatment of this last baby when he's born and participate in his cf genetic

study.

I had no cf in my family (that we know of) but I had with cf. Then I

remarried a man who does have cf in his family and both our sons have it too.

There are no other issues involved though - no shorter limbs or other syndroms,

deformities, etc.

I'm interested in Dobb's work for the future generations. Maybe not soon enough

to help my son's children, but maybe their grandchildren won't have to deal with

it.

s.

Re: Unilateral Clubfoot - one leg shorter than

the other???

Makes me wonder...one of my mom's legs is over an inch shorter than

her other...she also had a baby born with spinal bifida.

We cannot find cf in our family and my family (not myself mind you)

is Mormon on both sides and has geneology going back a few hundred

years. Not sure if club foot was there somewhere and just not

metioned/covered up. But we haven't been able to find it anywhere on

either side.

With cf linked to spinal bifida, it has always made me wonder if

this is one of the reasons for Grace having it.

I am not sure if spinal bifida is in anyway linked to my mother's leg

length discrepency but it wouldn't suprise me. So many questions! I

can't wait until they isolate the club foot gene and find out answers

to all of them!

& Grace

>

> My daughter have 1 leg longer than the other. She is 4 months old.

She was treated with the Ponseti method (not fully at first) the Dr.

didnt know what he was doing, but she had a Tenotomy and then 3 more

casts after that casue Dr. Ponseti fully corrected her after we

traveled to see him cause the other Dr was an idiot. Anyhow, her

current Dr. and another Ortho are currently trying to find WHY her

leg is longer than the other. She has an appt. next Mon. to get more

x-rays and an Ultrasound. The only thing said so far is maybe hip

probs (by no real other symptoms of this so less likely), and the old

saying that if you cut a tendon it can mess things up, and it CAN

(not always) make limbs longer. I'll see what they say, and I'll keep

you updated.

> Christee

>

>

>

> Christee

> Mother of Josh, Aspen, Dylan &

> Lilee ~ Unilateral A-Typical Club Foot w/Cavus

> & Metatarsus Adductus

>

>

> ---------------------------------

> Yahoo! Personals

> Let fate take it's course directly to your email.

> See who's waiting for you Yahoo! Personals

>

>

[Guest guest]

Well, " Participating " in his study probably only means filling out a survey and

giving a blood sample, sorry no lab coats or standing over bubbling beakers!

LOL! But ya, I'm leaning towards going there anyway - same distance as to Iowa

for us and Shriners helping with the bill doesn't hurt either.

s.

Re: Unilateral Clubfoot - one leg shorter than

the other???

> Having 3 with cf, Dr. Dobbs is really wanting me to come to St.

Louis for treatment of this last baby when he's born and participate

in his cf genetic study.

>

> I had no cf in my family (that we know of) but I had with

cf. Then I remarried a man who does have cf in his family and both

our sons have it too.

>

> There are no other issues involved though - no shorter limbs or

other syndroms, deformities, etc.

>

> I'm interested in Dobb's work for the future generations. Maybe

not soon enough to help my son's children, but maybe their

grandchildren won't have to deal with it.

> s.

I soo hope so too ee, are you thinking of doing it? How far is

it for you to travel to St. Louis? How are you feelin btw?

Wouldn't that be great for you to be able to help in his research?!

Hope it's doable for you and we would just love to know what is going

on with the study!!

& Grace

& Grace

[Guest guest]

>>and Shriners helping with the bill doesn't hurt either.

What do you mean by Shriners helping w/the bill? Do they help for travel

expenses? Do all of them?

---------------------------------

Yahoo! Personals

Skip the bars and set-ups and start using Yahoo! Personals for free

[Guest guest]

I don't have all the answers to the Shriner's questions as I am just now

starting to look in to it, but it's my understanding they help considerably with

the cost involved with treatment. Not all Shrine's have Ponseti Doctors, but

the Shrine in St. Louis does (Dr. Dobbs). Other folks here have gone to him

and he's spoken very highly of.

I think they could help with travel costs if necessary. That's challenging at

times but we've always managed to get to Iowa on our own nickel it's just the

med bills eating us up.

s

Re: Re: Unilateral Clubfoot - one leg shorter

than the other???

>>and Shriners helping with the bill doesn't hurt either.

What do you mean by Shriners helping w/the bill? Do they help for travel

expenses? Do all of them?

---------------------------------

Yahoo! Personals

Skip the bars and set-ups and start using Yahoo! Personals for free