Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 I have trouble with my balance especially if I'm tired, or have already walked some. I can only walk so long, short, very short distance then my feet catch, and I trip, fall in to people, I can trip when I'm standing still, I just call it an earthquake, does anyone else do that? Marla Hi, I hoope you'll feel better soon. It's the falre ups that drive a person crazy. Have you noticed if you can keep yourself steady while walking. lately, I have trouble keeping my balance and stopping, walking into people . take care, Voiced Pomy To: Neurosarcoidosis From: mosaicgirl1@...Date: Fri, 2 Jan 2009 02:14:11 +0000 Subject: Happy New Year Hi Gang,I hope everyone enjoyed their holidays and here's to a more healthy,painfree New Year. I am sorry I have not been online lately. I havebeen in a flare since Thanksgiving and except for a brief respite with some prednisone, I am still not being treated for anything. All testshave still been coming back negative but I can now add some prettysignificant neuropathy in my feet. It was so bad at Thanksgiving that Iwas having a terrible time walking. Very scary. Things are better now and I am going for another round of neuropsych testing on Monday. Thiswill be my third time and I have never been to the same doc. Hopefully,this will be the last one.To all whose birthdays I have missed - Happy Birthday. Hey Mr. Oyster Man - I miss you. I will try to be better about popping on and checkingin. I miss everyone's kind words and love and I want to be there foryou guys too.Once again, Happy New Year and I love you all. TerriG. Add maps and directions to your party Show them the way! -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 I do not walk well either. Earthquake is good I think I will use it. My balance is terrible. I use the wheel chair mostly but try to use the walker as much as possible. I can not walk alone. I walked between my two kids the other day and I have to say I never felt more secure. That is just what I needed at that time. Jackie Happy New Year Hi Gang,I hope everyone enjoyed their holidays and here's to a more healthy,painfree New Year. I am sorry I have not been online lately. I havebeen in a flare since Thanksgiving and except for a brief respite withsome prednisone, I am still not being treated for anything. All testshave still been coming back negative but I can now add some prettysignificant neuropathy in my feet. It was so bad at Thanksgiving that Iwas having a terrible time walking. Very scary. Things are better nowand I am going for another round of neuropsych testing on Monday. Thiswill be my third time and I have never been to the same doc. Hopefully,this will be the last one.To all whose birthdays I have missed - Happy Birthday. Hey Mr. OysterMan - I miss you. I will try to be better about popping on and checkingin. I miss everyone's kind words and love and I want to be there foryou guys too.Once again, Happy New Year and I love you all.TerriG. Add maps and directions to your party Show them the way! -- Marla BramerIndependent Beauty Consultant Kay mbramer (AT) marykay (DOT) comwww.marykay.com/mbramer May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2009 Report Share Posted January 6, 2009 That is a good feeling Jackie, I know when my kids are around me, they take my arm, and say be careful, I probably should use my cane more, I don't, but I am so careful and so very slow. There are those times when we say, Oh ya now I remember why I had kids:) Marla I do not walk well either. Earthquake is good I think I will use it. My balance is terrible. I use the wheel chair mostly but try to use the walker as much as possible. I can not walk alone. I walked between my two kids the other day and I have to say I never felt more secure. That is just what I needed at that time. Jackie Happy New Year Hi Gang,I hope everyone enjoyed their holidays and here's to a more healthy,painfree New Year. I am sorry I have not been online lately. I havebeen in a flare since Thanksgiving and except for a brief respite withsome prednisone, I am still not being treated for anything. All testshave still been coming back negative but I can now add some prettysignificant neuropathy in my feet. It was so bad at Thanksgiving that Iwas having a terrible time walking. Very scary. Things are better nowand I am going for another round of neuropsych testing on Monday. Thiswill be my third time and I have never been to the same doc. Hopefully,this will be the last one.To all whose birthdays I have missed - Happy Birthday. Hey Mr. OysterMan - I miss you. I will try to be better about popping on and checkingin. I miss everyone's kind words and love and I want to be there foryou guys too.Once again, Happy New Year and I love you all.TerriG. Add maps and directions to your party Show them the way! -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) -- Marla BramerIndependent Beauty Consultant Kay mbramer@...www.marykay.com/mbramer May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2009 Report Share Posted January 7, 2009 That's a good name for it, Marla. My sons have had to hold me by my side, too. And the symptoms you have after just walking so much, I have the same. My husband thinks I am just clumsy when I am tipsy and can't walk any further because my legs stiffen up. So I'm with you there. Long walks are not easy. Debbie T. Co-Moderator Hi, I hoope you'll feel better soon. It's the falre ups that drive a person crazy. Have you noticed if you can keep yourself steady while walking. lately, I have trouble keeping my balance and stopping, walking into people . take care,Voiced Pomy To: Neurosarcoidosis@ yahoogroups. comFrom: mosaicgirl1@ yahoo.comDate: Fri, 2 Jan 2009 02:14:11 +0000Subject: Happy New Year Hi Gang,I hope everyone enjoyed their holidays and here's to a more healthy,painfree New Year. I am sorry I have not been online lately. I havebeen in a flare since Thanksgiving and except for a brief respite withsome prednisone, I am still not being treated for anything. All testshave still been coming back negative but I can now add some prettysignificant neuropathy in my feet. It was so bad at Thanksgiving that Iwas having a terrible time walking. Very scary. Things are better nowand I am going for another round of neuropsych testing on Monday. Thiswill be my third time and I have never been to the same doc. Hopefully,this will be the last one.To all whose birthdays I have missed - Happy Birthday. Hey Mr. OysterMan - I miss you. I will try to be better about popping on and checkingin. I miss everyone's kind words and love and I want to be there foryou guys too.Once again, Happy New Year and I love you all.TerriG. Add maps and directions to your party Show them the way! -- Marla BramerIndependent Beauty Consultant Kay mbramer (AT) marykay (DOT) comwww.marykay. com/mbramer May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) -- Marla BramerIndependent Beauty Consultant Kay mbramer (AT) marykay (DOT) comwww.marykay. com/mbramer May the Lord bless you and keep you,May the Lord make his face to shine uponYou,And be gracious to you;May the Lord lift up his favor upon you and give you his peace.(Numbers 6:24-26) Quote Link to comment Share on other sites More sharing options...
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