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Thanks, OR

This is from an article from the Emedicine web site by Kemp;

" For women with hypergonadotropic hypogonadism (ie, gonadal failure),

the most common cause of hypogonadism is syndrome, which

occurs with an incidence of 1 case per 2,500-10,000 live births. For

men with hypergonadotropic hypogonadism, the most common cause is

Klinefelter syndrome, which occurs in 1 case per 500-1,000 live

births. Hypogonadotropic hypogonadism occurs more rarely. "

I have never heard the term " hypergonadotropic hypogonadism " but

understand that that means what is usually called " primary

hypogonadism. " Now, if one in 500-1000 males have Klinefelters

alone, the total number of males with Klinefelters, HH, Kallman's

etc. is much more common. We're probably down in the one in 100

range. Add in those who have developed HH later in life, and we have

a pretty common condition. How come the public and even the medical

community know so little about it?

Dean

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It is time that we did something about that!! This is a serious life

affecting issue and it is not fair for the public to ignore it!

Time for: Documentaries, Lobby Groups, Non-Profit Agencies

> Thanks, OR

>

> This is from an article from the Emedicine web site by

Kemp;

>

> " For women with hypergonadotropic hypogonadism (ie, gonadal

failure),

> the most common cause of hypogonadism is syndrome, which

> occurs with an incidence of 1 case per 2,500-10,000 live births.

For

> men with hypergonadotropic hypogonadism, the most common cause is

> Klinefelter syndrome, which occurs in 1 case per 500-1,000 live

> births. Hypogonadotropic hypogonadism occurs more rarely. "

>

> I have never heard the term " hypergonadotropic hypogonadism " but

> understand that that means what is usually called " primary

> hypogonadism. " Now, if one in 500-1000 males have Klinefelters

> alone, the total number of males with Klinefelters, HH, Kallman's

> etc. is much more common. We're probably down in the one in 100

> range. Add in those who have developed HH later in life, and we

have

> a pretty common condition. How come the public and even the

medical

> community know so little about it?

>

> Dean

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  • 3 years later...
Guest guest

Angie,

Try MMWR. The weekly mortality and morbidity report from CDC. It's available

on line. Open it and search notifiable diseases.

Jim

________________________________

From: on behalf of lukie_mom

Sent: Mon 4/17/2006 8:23 PM

Subject: [ ] Statistics

I was wondering if anyone knows of a site that would list the reported

cases of the diseases that we immunize for? I am 8 months pregnant and

I have an autistic son. I do not want to give my newborn any vaccines

that are not 100% necessary. I am not convinced that any are. My

biggest concerns are polio, pertussis, diptheria and tetanus(only

because of the severity of the diseases) I want to know if there is a

listing online stating the occurences of these diseases in 2005 in

America. Anyone with this info- please let me know- I would greatly

appreciaite it. Angie

=======================================================

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-Read the book called " what every parent should know about

vaccines " . It has statistics as well as real facts.

After reading I decided that the risk of injury from vaccines is far

higher than my children contracting these type of diseases.

Actually, the hib given at birth is for a disease contracted from iv

drug use and homosexual contact. Neither of which my children have

to worry about right now.

-- In , " lukie_mom " <railie@...> wrote:

>

> I was wondering if anyone knows of a site that would list the

reported

> cases of the diseases that we immunize for? I am 8 months pregnant

and

> I have an autistic son. I do not want to give my newborn any

vaccines

> that are not 100% necessary. I am not convinced that any are. My

> biggest concerns are polio, pertussis, diptheria and tetanus(only

> because of the severity of the diseases) I want to know if there

is a

> listing online stating the occurences of these diseases in 2005 in

> America. Anyone with this info- please let me know- I would

greatly

> appreciaite it. Angie

>

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  • 2 years later...
Guest guest

Does anyone have documentation of the statistics if left untreated? I

am doing research trying to put together my appeal/fight for Tricare to

pay for this and thought that might help my argument.

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Guest guest

I would love to see a copy. I am getting ready to do an appeal to BCBS of TN. Has anyone else done an appeal to them? If so, did they pay anything? Thanks, mary

Statistics

Does anyone have documentation of the statistics if left untreated? I am doing research trying to put together my appeal/fight for Tricare to pay for this and thought that might help my argument.

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Guest guest

Hi,

I'm working on an appeal to Dean Health Plan in WI. They exclude

coverage of the DOC Band because 'no studies to date have

demonstrated that DOC banding can prevent medical complications.' If

anyone has come across information to help build an appeal against

this, I'd very much appreciate it.

Many thanks!

Alison Bergum

>

>

>

> I just sent my appeal into United Health Care. If you would like I

could e-mail you a copy. It has supporting information about the

effects of plagio left untreated. I don't know where I put the actual

articles otherwise I would send you those.

>

> Lorie

> Mom to Spencer and Alizabeth 15 months

> Spencer- Left Plagio- DOC band Grad 9/07-12/07

> Glendale, AZ

> Statistics

>

>

> Does anyone have documentation of the statistics if left

untreated? I

> am doing research trying to put together my appeal/fight for

Tricare to

> pay for this and thought that might help my argument.

>

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