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Re: IS THIS WHAT A NORMAL IMMUNE SYSTEM FEELS LIKE?

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The only bad thing about feeling good is I overdid it this weekend and wore myself out. But hey if I'm walking in the stores at least it's walking & I call that my exercise program. I'm working on getting my leg strength. Today's exercise, if I wake up before all the old biddies are back in be is LAUNDRY! I have to walk way down the hall 3 times for each load. Now all I have to do is count my quarters! LOLJoin our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@...

Subject: Re: IS THIS WHAT A "NORMAL" IMMUNE SYSTEM FEELS LIKE?To: Neurosarcoidosis Date: Saturday, June 13, 2009, 10:26 AM

hey rant away. I love this site. all of us rant and rave and realize we are not alone.Hope all goes well.Tacky Jackie IS THIS WHAT A "NORMAL" IMMUNE SYSTEM FEELS LIKE?> I've been on Cytoxan for so long and haven't had a treatment for months > because of being treated for the MRSA with the IV Vancomycin. OOOOOOOOOO I > want to get on something other than the Cytoxan! I am still

going to try > to get the Remicade but is there something similar I can try in the > meantime? Something that doesn't turn a minor scrape on the knee into 6 > days in the hospital? UGGGG. I am so ticked off at this disease. I know I > have 2 more doc appts next week and then everyone is signed off and I have > no excuse not to go back to Cytoxan. Oh well, if it's Cytoxan or Die then > I choose Cytoxan but the crap's not working anyway so why not try > something else? I'm just ranting & brainstorming with the group to present > it to my sarc docs. I'm about 60 emails behind but I'll catch up today & > tomorrow if I continue to feel this good! Hope everyone(or as we say in KY > "all yall") is doing better than before!> the Lunatic>>>> ------------ --------- --------- ------>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The

Neurosarcoidosis Community>>> CHATROOM LINK: http://www.sarcbudd ies.com -- Open all the time.....>> Message Archives:-> http://groups. yahoo.com/ group/Neurosarco idosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups. yahoo.com/ group/Neurosarco idosis/database>>

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Yes it is contagious but I live alone so that cuts down the chance of me spreading it. It's that staph infection that's resistant to antibiotics. I'm sure Rose knows more about it than me. When I came home from the hospital all they really said was to wash my clothes & dishes separately. Seperately from who? Oh yeah and to keep my bodily fluids to myself!! Several of the residents here swear the building is haunted! Can ghosts get sick? LOLJoin our Sock Challenge for Orphans in Kazakhstan http://groups. yahoo.com/ group/Mittens_ for_Akkol/ grannylunatic@...

I've been on Cytoxan for so long and haven't had a treatment for months because of being treated for the MRSA with the IV Vancomycin. OOOOOOOOOO I want to get on something other than the Cytoxan! I am still going to try to get the Remicade but is there something similar I can try in the meantime? Something that doesn't turn a minor scrape on the knee into 6 days in the hospital? UGGGG. I am so ticked off at this disease. I know I have 2 more doc appts next week and then everyone is signed off and I have no excuse not to go back to Cytoxan. Oh well, if it's Cytoxan or Die then I choose Cytoxan but the crap's not working anyway so why not try something else? I'm just ranting & brainstorming with the group to present it to my sarc docs. I'm about 60 emails behind but I'll catch up today & tomorrow if I continue to feel this good! Hope everyone(or as we say in KY "all yall") is doing better than before! the Lunatic

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