Re: Second tenotomy surgery. What to expect?

[Guest guest]

Lynn,

Why will Aidan be in casts 6 weeks post-tenotomy? The doctor isn't

planning on doing an open-incision release, is he? If so, please

consider making the trek to Iowa first...it's not too far of a drive

for you.

There's no reason that if Aidan needs another tenotomy that he can't

have another percutaneous procedure and the 3 week cast.

Do you know why he regressed? Or did he never have the ideal

dorsiflexion to begin with? Can you give us an update of what's been

going on with his treatment lately? Was he in the standard FAB? What

kind of physical therapy did he have and what was the goal? Is this

standard for Dr. Noonan, or was he trying to achieve something in

particular for Aidan?

Regards,

>

> My son Aidan is 8 1/2 months old and he is having his second

tenotomy

> on Tuesday. He will be going into casts for six weeks following the

> surgery. I'm extremely discouraged after all the hard work and

> physical therapy.

>

> Can anyone give me an idea of what the next few weeks post surgery

> might be like for us? What his discomfort level might be, his

> frustration level etc. . . I'd appreciate any help.

>

> Thanks everyone.

>

[Guest guest]

Lynne,

This isn't sounding good to me at all. I'm really, really concerned

that Noonan is planning a pretty extensive release on Aidan's foot

(read: invasive surgery) because of these 2 facts: 1) post-op cast

of 6 weeks and 2) he said he would normally wait until 1 year to do

this procedure. I'll try not to let the word " tweak " cloud my

judgment either, but that's usually not a good sign in my past

experiences. It sounds like he's going to go in and do some major

re-arranging/releasing which can result in excess scar tissue and

probably isn't necessary.

Is there any way you can get to Iowa? I really think it would be

worth your time and effort if at all possible. Please think about

postponing that procedure on Tuesday....unless he can guarantee that

it is nothing more than a percutaneous tenotomy (download that

Global HELP booklet if you want- it explains that procedure)- the

percutaneous tenotomy requires no stitches to close, it is a tiny

puncture wound with the scalpel compared to a large incision

required for a release or a z-lengthening tenotomy etc.

Ask more questions- make sure you know what you're consenting to.

Aidan is still so young, I don't see why he'd need a major procedure

like this-

I'm hoping you can get a second opinion- and hopefully one from Dr.

P himself.

I'm so sorry about your father's passing. I'm sure things are still

difficult for you, but it must have been quite overwhelming at the

time with the emotions and exhaustion of having to go back to work

on top of it all.

Keep us posted- ask questions if you have any-

& (3-16-00, left clubfoot)

> > >

> > > My son Aidan is 8 1/2 months old and he is having his second

> > tenotomy

> > > on Tuesday. He will be going into casts for six weeks

following

> the

> > > surgery. I'm extremely discouraged after all the hard work

and

> > > physical therapy.

> > >

> > > Can anyone give me an idea of what the next few weeks post

> surgery

> > > might be like for us? What his discomfort level might be, his

> > > frustration level etc. . . I'd appreciate any help.

> > >

> > > Thanks everyone.

> > >

> >

>

[Guest guest]

Lynne,

I agree with , you need to ask more questions of Dr. Noonan. If Aidan's

left foot dorsiflexion is good why mess with it? When Emma had an ATTT done

on both feet (at 4 yrs old) her worse foot had a dorsiflexion of 5°. Neither

Dr. Morcuende (who performed the procedure) nor Dr. Ponseti felt it

necessary to improve on the dorsiflexion.

Best Wishes,

Dan

Re: Second tenotomy surgery. What to expect?

Lynne,

This isn't sounding good to me at all. I'm really, really concerned

that Noonan is planning a pretty extensive release on Aidan's foot

(read: invasive surgery) because of these 2 facts: 1) post-op cast

of 6 weeks and 2) he said he would normally wait until 1 year to do

this procedure. I'll try not to let the word " tweak " cloud my

judgment either, but that's usually not a good sign in my past

experiences. It sounds like he's going to go in and do some major

re-arranging/releasing which can result in excess scar tissue and

probably isn't necessary.

Is there any way you can get to Iowa? I really think it would be

worth your time and effort if at all possible. Please think about

postponing that procedure on Tuesday....unless he can guarantee that

it is nothing more than a percutaneous tenotomy (download that

Global HELP booklet if you want- it explains that procedure)- the

percutaneous tenotomy requires no stitches to close, it is a tiny

puncture wound with the scalpel compared to a large incision

required for a release or a z-lengthening tenotomy etc.

Ask more questions- make sure you know what you're consenting to.

Aidan is still so young, I don't see why he'd need a major procedure

like this-

I'm hoping you can get a second opinion- and hopefully one from Dr.

P himself.

I'm so sorry about your father's passing. I'm sure things are still

difficult for you, but it must have been quite overwhelming at the

time with the emotions and exhaustion of having to go back to work

on top of it all.

Keep us posted- ask questions if you have any-

& (3-16-00, left clubfoot)

> > >

> > > My son Aidan is 8 1/2 months old and he is having his second

> > tenotomy

> > > on Tuesday. He will be going into casts for six weeks

following

> the

> > > surgery. I'm extremely discouraged after all the hard work

and

> > > physical therapy.

> > >

> > > Can anyone give me an idea of what the next few weeks post

> surgery

> > > might be like for us? What his discomfort level might be, his

> > > frustration level etc. . . I'd appreciate any help.

> > >

> > > Thanks everyone.

> > >

> >

>

[Guest guest]

At out appt on wednesday Dr. Noonan did say this is exactly the same

procedure as the one he did back in June. In June he did the

percutaneous tenotomy, small puncture and I believe one stich on each

side. When I asked about the downsides of doing the procedure he

said there are none except that he will be back in casts.

I did email him to ask him some more questions, and to my surprise

he responded in approx 15 mins. He answered some of them. He said

that Aidan will be in full leg casts for 4 weeks not 6 (this is what

I was told on Wednesay but maybe it was the Nurse Practitioner that

told me this). After 4 weeks he will go back into the DBB and back

to physical therapy.

I'm of the impression that this is the less invasive procedure. I

did email Dr. P back in July to question Dr. N having Aidan in the

DBB full-time for 6 months. His reply was vague and basically said

that it did deviate from the method slightly but that apparently is

what Dr. Noonan thought was best for Aidan.

I haven't lost faith in Dr. N but it's very difficult when you don't

feel like they take the time to explain things to you completely.

Thanks for listening Jen and for all the helpful advice. Any tips

for Aidan's post op comfort on Tuesday and Wednesday?

> > > >

> > > > My son Aidan is 8 1/2 months old and he is having his second

> > > tenotomy

> > > > on Tuesday. He will be going into casts for six weeks

> following

> > the

> > > > surgery. I'm extremely discouraged after all the hard work

> and

> > > > physical therapy.

> > > >

> > > > Can anyone give me an idea of what the next few weeks post

> > surgery

> > > > might be like for us? What his discomfort level might be,

his

> > > > frustration level etc. . . I'd appreciate any help.

> > > >

> > > > Thanks everyone.

> > > >

> > >

> >

>