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After 4 weeks on gfcf diet, Jane(2 1/2 PDDNOS) is doing

wonderfully!!! She was mildly affected to begin with. She was

diagnosed in March. Anyway, has anyone seen such wonderful

improvements that you are now trying to " convince " people that your

child does indeed have problems and needs help? I know this might

sound strange, but my husband and I and others who are around her a

lot, can see the little things(aggression, poor social skills,

trouble adjusting to change etc..). Her sensory integration therapist

said it's all SI issues-no way is she pdd. Her speech path doesn't

think she will qualify for public school when she turns 3(we'll just

see about that!)Anyway, it's hard enough accepting the " diagnosis "

and now I am angry that I am having to fight to have my child labled

by her therapists to get her the help that I know she needs.She was

diag. pddnos by two different drs., by the way. This is so confusing.

Has anyone gone through this in the early stages of diagnosis? Any

advice?

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  • 3 years later...

Hi ,

If there's no rush (and you will soon learn that there's no rushing

this process), then you can gather information, make a decision about

going forward or not, and possibly get insurance approval before

starting ortho treatment (I caution, I don't know a lot about

insurance since surgery was covered 100% by our provincial health

insurance plan here in Ontario, Canada).

Generally, orthodontal treatment leading to surgery is different than

treatment just to straighten teeth. That's because they move your

teeth to where they will be after the surgery, and that can mess up

your bite pre-op. So, you'll probably want to decide on surgery or

not (if it's needed, of course) before you start ortho treatment, I

think.

You should find a surgeon and ortho that work together, and the

surgeon should be one who's done a lot of these surgeries and does

them frequently, if possible. A surgeon can recommend an ortho, or

vice versa. I didn't have to make a decision on the surgeon as my

ortho only works with one surgeon whom he considers the best. I still

had a consultation with the surgeon before deciding to go ahead,

though. My referral process started with my family dentist, who

referred me to a TMJ specialist (my ortho), who referred me to my

surgeon. All in all, that took 10 months, and it was another 2 months

before I started treatment. Like I said, you can't rush through this,

so you might as well give in to the process and start logically from

the beginning. Don't commit until you have enough information to make

a rational decision about treatment, about ortho, and about surgeon.

I hope that helps. Do some archive searches here, read some past

posts, check out the geocities site too at

http://www.geocities.com/orthognathicinfo/

(upper/lower/genio vet)

>

> Hello, I didnt know that this process was going to be so stressful

and

> confusing. I thought I would get braces and that would be that!

> How many of you had braces on first and than consulted with a

surgeon?

> I dont know where to go from here, should I have braces put on and

> find out about insurance for the surgery when the time comes or

should

> I find out all I can first. I am a big worrywart! I like to know

> before things happen so if the insurance isnt going to cover this

> procedure i want to know but some people say they wont say way ahead

> of time. The consultion fee with the surgeon is $266 insurance may

> cover or not but if they wont approve so soon why go this early at

> least I will have straight healthy teeth. I am confused on where to

go

> from here please help, it would help to hear how other people have

> went down this road.

> Thanks

>

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This probably is not universally true, but there is part of the

orthodontia that can be done before you decide about the surgery, at

least for some people.

My ortho, I think, was not certain that I would agree to the surgery,

but he knew that there were certain procedures I would need in any

case, and he started off with those. Of course, my teeth were a mess,

and yours may not have been.

C.

> >

> > Hello, I didnt know that this process was going to be so

stressful

> and

> > confusing. I thought I would get braces and that would be that!

> > How many of you had braces on first and than consulted with a

> surgeon?

> > I dont know where to go from here, should I have braces put on and

> > find out about insurance for the surgery when the time comes or

> should

> > I find out all I can first. I am a big worrywart! I like to know

> > before things happen so if the insurance isnt going to cover this

> > procedure i want to know but some people say they wont say way

> ahead

> > of time. The consultion fee with the surgeon is $266 insurance may

> > cover or not but if they wont approve so soon why go this early at

> > least I will have straight healthy teeth. I am confused on where

> to go

> > from here please help, it would help to hear how other people have

> > went down this road.

> > Thanks

> >

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Unless you're independently wealthy, it's worth scraping up the

energy to appeal... Again....

What does your surgeon say, and is he writing letters to the

insurance company on your behalf?

Mine handled the whole thing -- sent models, pictures, drawings, x-

rays, everything he could think of, I believe, short of pasting a

stamp on my forehead and sending me! (But do send them by return

receipt requested, registered mail, and maybe you want to insure

them, too.)

My policy also allows me to ask for review of the claim by a panel of

oral and maxillofacial surgeons; if yours does, that may help.

You might also want to investigate the possibility of sleep apnea,

which has helped some people get approval. But do be sure what your

policy provides coverage for, and what it excludes.

As for the questionnaire, fill it out as accurately and completely as

you can, and don't worry about what indicates what. Clicking, locking

can mean TMJ. So can worn teeth -- but they can also mean a bad bite.

Headaches can mean TMJ. (And there is no guarantee that this surgery

will help your TMJ if that is what you have -- or at least, there was

not, for me. It did help with the pains I was having in the jaws,

though.)

Good wishes to you.

Cammie

> My orthodontist wanted to bill medical as he was preparing me for

medical

> surgery. Since medical would pay at 80%, I was hopeful. Medical

denied the

> claim, but not until the claim made it to a third review. Part of

me is

> tempted to appeal the decision, but I don't know that I have the

energy.

>

>

>

> I do plan to answer the questionnaire honestly. What I meant was

which of my

> symptoms is considered TMD? The questions are written in such a way

that I'm

> not sure how they would rule.

>

>

>

> I have a limited opening (two finger widths), open front bite that

causes

> problems eating, frequent headaches, grinding noise on my right jaw

when

> eating, worn teeth that no longer touch or connect. I wore an NTI

at night

> for two years to help with my headaches. I think it was this device

that

> guided my lower jaw out of alignment. I can't get the dentist who

fit me for

> the device to agree, but I have found information on the internet

suggesting

> an open bite could occur. I've been advised by my OS to discontinue

this

> device.

>

>

>

> The last year and a half (when my jaw really began to bother me), I

started

> coughing frequently. My doctor told me I had acid reflux and put me

on

> Prilosec. I'm now wondering if this isn't due to my recessed lower

jaw. My

> husband said I've also started snoring.

>

>

>

> I'm new to this whole process, so am trying to piece things

together. I

> appreciate your advice.

>

>

>

> _____

>

> From: ceast36532 [mailto:no_reply ]

> Sent: Thursday, February 24, 2005 4:51 PM

> To: orthognathicsurgerysupport

> Subject: Re: [Orthognathic Surgery

Support ]

> Confused

>

>

>

>

> Usually, dental ins. covers the ortho -- at least up to its cap,

> which is usually a lifetime cap.

>

> Usually MEDICAL insurance covers the surgery, on the grounds that

it

> is necessary repair of a congenital, skeletal defect. Be careful of

> the TMJ argument, as some policies specifically exclude surgical

> treatment of TMJD.

>

> I would suggest that you be purely truthful with that

questionnaire.

> If you have headaches, say so. If you have grinding and are wearing

> tooth surfaces, or cracking your teeth, say so. If you have popping

> and/or clicking in your jaws, or if your jaw locks, say so. If you

> have trouble eating (which sometimes leads to digestive disorders,)

> say so.

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