Re: elizabeth from

[Guest guest]

I have been on plaquneil for almost 8 years now...and it has helped so much with the brain fog. and in after this round of IV steriods at home,, my neuro said cytoxin will be next. I am alittle scared to take that but with my spinal tap results were not very good, he said he needs to be much more agressive.

as far as pain I have been on duragestic patch, and now oxycontin twice a day 30mg .. so we will see what happens and thank you for your sugestions and wishes.

many blessings and hugs and a pain free day

hi just a little suggestion immuran works for short period of time maybe you should suggest placquenil or another med that they use for cancer radiation treatment may help for pain maybe lyrica just suggestion

feel better

From: jessicabouhamama <JessicAbouhamama (AT) aol (DOT) com>To: neurosarcoidosis Sent: Monday, January 5, 2009 11:09:27 AMSubject: well back on Iv steriods at home....

Hi everyone,

well I am back to feeling like i was before my hospital stay last month, my arms and legs are sooo weak and so much pain, my headachs are back full force again. and this is even with the increase of the Imuran.

I am waiting to hear from my Neuro to set up my Iv steriods and iv didaudid at home, so i guess the nurse will come out and start the iv and do the first treatment and than show me again how to do it myself and when. like i did when i got out of the hospital last month.

This could have not come at a worse time, my father-inlaw is staying with us from egypt we picked him up at NY airport sat. and he has alheizmers bad and is a handful for sherif, and i am feeling so bad i can't help him.

well i had to just vent a little, I am feeling so bad, so i hope the nurse gets here atleast by tomorrow to start the treatments. so i get some relief.

many blessings and pain free days for you all

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