Re: Fitting sarc into your relationship

[Guest guest]

It is, and sadly- it's an issue for many of us. I have a loving husband that has hung around for 34 yrs-- 19 of it living with me and my sarcoidosis, 27 yrs of me living with chronic pain from a work comp injury.

I was an athlete, and had to give up playing 1 league short of womens professional fast pitch softball. and I met in high school, my senior yr, he was a yr ahead of me-- and both loved - in fact we dated that last yr of school on 10 sp bikes, neither of us owned a car-- so our mutual love of athletics and hiking, biking, camping, etc made us fast companions! That was 35 yrs ago..

Losing that part of our relationship has been so very hard-- and has meant that we both had to adapt to the new me. I hate it! And yet, it has in many ways been a blessing as we both had to grow and find new ways to relate.

I was always the 'strong' one in our relationship, always had the better jobs and careers, and both of us where fine with that. 's strength is in the way he relates and has been able to participate in raising our son. (Torey is 27) Up until last year, was a scoutmaster and Torey is an Eagle scout-- we finally realized that with life as precarious as it is with my health that we needed to spend time in our relationship while I'm still here. The relationships we built there were awesome, and it allowed him to keep his love of camping, and backpacking alive. It gave me the chance to develop other interests and develop a "spirituality" that is more than I ever dreamed possible. The challenge is that is by the Book Christian, and I'm a Spirituality Christian -- with a relationship that is more flexible. It makes for interesting debates...

To lose my career, our financial security, our dreams of riding cross country from No. California to New York-- is no longer in the picture. Even for me to drive "sag" wagon-- is too much. I can hardly handle driving sag when he rides from home here in Magalia CA 30 miles downhill to Chico. It is one of those things that we have to look at before he decides he wants me to pick him up or take him up into the woods a couple of hours drive away, then let him ride back home. (He likes to do 40-60 mile day rides)

So, what do you all do to make sarcoidosis fit into your life and relationships? This is an important topic-- so what you say we all share!

With compassion,

Tracie

NS Co-owner/moderator

To: Neurosarcoidosis Sent: Thu, January 21, 2010 2:17:46 PMSubject: Re: Immune responses-and relaxation

thanks for all the great info

the lack of sex/intimacy is horrible

From: tiodaat (AT) att (DOT) net <tiodaat (AT) att (DOT) net>Subject: ScienceDaily: Fish oil given intravenously to patients in intensive care has many benefits, study findsTo: neurosarcoidosis@ yahoogroups. comDate: Wednesday, January 20, 2010, 6:49 PM

Tracie (Tiodaat (AT) att (DOT) net) has sent you a link to the following page on ScienceDaily:Fish oil given intravenously to patients in intensive care has many benefits, study findshttp://www.scienced aily.com/ releases/ 2010/01/10011820 4043.htmA randomized controlled trial of fish oil given intravenously to patients in intensive care has found that it improves gas exchange, reduces inflammatory chemicals and results in a shorter length of hospital stay. Researchers investigated the effects of including fish oil in the normal nutrient solution for patients with sepsis, finding a significant series of benefits.* Note: the sender's email address has not been

verified.

[Guest guest]

Matt

Do you have any kids? just wondering

From: tiodaat (AT) att (DOT) net <tiodaat (AT) att (DOT) net>Subject: ScienceDaily: Fish oil given intravenously to patients in intensive care has many benefits, study findsTo: neurosarcoidosis@ yahoogroups. comDate: Wednesday, January 20, 2010, 6:49 PM

Tracie (Tiodaat (AT) att (DOT) net) has sent you a link to the following page on ScienceDaily:Fish oil given intravenously to patients in intensive care has many benefits, study findshttp://www.scienced aily.com/ releases/ 2010/01/10011820 4043.htmA randomized controlled trial of fish oil given intravenously to patients in intensive care has found that it improves gas exchange, reduces inflammatory chemicals and results in a shorter length of hospital stay. Researchers investigated the effects of including fish oil in the normal nutrient solution for patients with sepsis, finding a significant series of benefits.* Note: the sender's email address has not been

verified.

[Guest guest]

No we have no children. Matt

From: tiodaat (AT) att (DOT) net <tiodaat (AT) att (DOT) net>Subject: ScienceDaily: Fish oil given intravenously to patients in intensive care has many benefits, study findsTo: neurosarcoidosis@ yahoogroups. comDate: Wednesday, January 20, 2010, 6:49 PM

Tracie (Tiodaat (AT) att (DOT) net) has sent you a link to the following page on ScienceDaily:Fish oil given intravenously to patients in intensive care has many benefits, study findshttp://www.scienced aily.com/ releases/ 2010/01/10011820 4043.htmA randomized controlled trial of fish oil given intravenously to patients in intensive care has found that it improves gas exchange, reduces inflammatory chemicals and results in a shorter length of hospital stay. Researchers investigated the effects of including fish oil in the normal nutrient solution for patients with sepsis, finding a significant series of benefits.* Note: the sender's email address has not been

verified.