Re: ahh not been a good day and doesnt look like a good night.

[Guest guest]

Hi Amber,

We are really feelin for you! Tell me, have you soaked his cast off

yet? As others here have said, all indications are that these casts

have been applied incorrectly and are not giving your son proper

correction and may actually be doing him harm so why not just take em

off is my question especially if he is so uncomfortable in them,

screaming is NOT a good sign, I just feel so bad for you guys!!

Ponseti casts are NOT uncomfy for baby and it is WAY better to let

his feet relapse a bit anyway so that Dr. Dobbs will be starting with

a clean slate =). Really, take em off is my advise! Will make him and

you much more comfy until he can get in for proper Ponseti casting.

Our daughters foot was corrected with 4 casts with our Ponseti

doctor, you will be amazed/shocked at the results with Dr. Dobbs.

Until then again I say take the casts off!

& Grace 19mos

unilateral right clubfoot FAB 13hrs

>

> just wanted to let yall know i didnt get a chance to call Dr Dobbs

nuse

> or the shrinir's but did email DR Dobbs. Have not heard anything

back

> just yet. goin to try and call tomorrow about the shrinir's. also

> already have an spplication just never got around to sending it in

> because of previous Dr. but i now know that was a mistake. this

looks

> to be a long night right now the only way my littl eboy will sleep

is

> layin on some one.. he is screaming if if he isnt. He does not

Sleep in

> the bed with us. But tonight i might have to make an exception

because

> that looks to be the only way we are goin to get any sleep. You all

> have been great just to let yall know. oh yeah with these last set

of

> cast there were put on him he could no get comfortable on his back

> where he was used to sleeping so now he is sleeping on his stomach

the

> only way he will. well all i will report any new information i find

out

> asap

>

> thanks a again yall have been wonderful

>

> tired and worn out

> Amber

>

[Guest guest]

Well he only has one cast on right now. has a Dr. appoinment

in the morning we are goin and gettin the cast off off finding out

some answers and to more or less tell them ppl where they can go.

right now i dont have the entergy and he is sleeping with his daddy

peacefully at the moment so im goin to let him stay there and try and

get the most readt i can befor eits time to get up again.. then get

up in the morng and get the kids to school then head to doc office.if

i dont like what tehy say.. which i know i wont.. then goin to call

and get the ball rolling was just to tired to do it today

Amber

> >

> > just wanted to let yall know i didnt get a chance to call Dr

Dobbs

> nuse

> > or the shrinir's but did email DR Dobbs. Have not heard anything

> back

> > just yet. goin to try and call tomorrow about the shrinir's. also

> > already have an spplication just never got around to sending it

in

> > because of previous Dr. but i now know that was a mistake. this

> looks

> > to be a long night right now the only way my littl eboy will

sleep

> is

> > layin on some one.. he is screaming if if he isnt. He does not

> Sleep in

> > the bed with us. But tonight i might have to make an exception

> because

> > that looks to be the only way we are goin to get any sleep. You

all

> > have been great just to let yall know. oh yeah with these last

set

> of

> > cast there were put on him he could no get comfortable on his

back

> > where he was used to sleeping so now he is sleeping on his

stomach

> the

> > only way he will. well all i will report any new information i

find

> out

> > asap

> >

> > thanks a again yall have been wonderful

> >

> > tired and worn out

> > Amber

> >

>

[Guest guest]

Awww Amber, glad that you were able to get a little sleep! Whatever

you do tomorrow, DO NOT let them recast your son!! I have a feeling

that your current doc is going to spout a lot of stuff (crap IMO)

about your son having stubborn or severe feet. Rest ASSURED that Dr.

Dobbs or another good Ponseti dr for that matter WILL FIX his feet in

a matter of weeks!!!!!!!! I can't stress this enough Amber, don't let

them touch his feet again!!!

I will give you a quick short story to give you some motivation...a

good recent friend of mine came online to find out if the suffering

that her son was going through - multiple casts (like 18 counting

slippage) was 'normal' and if all the pain he was going through -

(like skin bruising and breaking down and peeling off was normal) and

that he screamed and had to be held down for casting (I put a

frowny face here cuz this caused and still causes me to get

emotional) and we said NO it is NOT normal for a baby to go through

at all at all.

His feet showed marginal improvment and she was told that his feet

were extremely severe and thus all the casts (which were applied

while he screamed the whole time btw).

Well after joining this group and getting her son to a Ponseti doctor

in our city, her son has PERFECT feet now - this was achieved with

only a few casts!

Dr. Pirani, who treated my daughter and eventually treated her son is

Ponseti certified thus has our babies WHOLE well being in mind. We

also had a horrid first casting experience and came to him for her

second cast with me preparing for 'the worst' sobbing and crying -

both of us Grace and me, I will never forget him putting his hand on

my arm and telling me that it was going to be just fine, that he

would be able to fix Grace's foot and then went into the logistics of

how he was going to do just that, sooooo different from our first

experience!

I will NEVER forget his kindness and his gentle way. I have since

found out through others and some innocent sleuthing (hehe) that he

really does try to immulate Dr. Ponseti and has spoken with him

numerous times about how he (Dr. Ponseti) keeps his babies so happy

He let me nurse her first (he always wanted her calm and let me nurse

if needed) and then did her cast and guess what...she NEVER cried for

him =)

Well this post turned out to be sooooo long winded but Amber, I just

really want you to know that there is a better way and a better

treatment available for your son and Dr. Dobbs will be able to

provide him this! I can't wait for you to see the results after his

first casts!!! You will be amazed, I promise!

Hugs,

And let us know how the appt goes ok!

& Grace

> > >

> > > just wanted to let yall know i didnt get a chance to call Dr

> Dobbs

> > nuse

> > > or the shrinir's but did email DR Dobbs. Have not heard

anything

> > back

> > > just yet. goin to try and call tomorrow about the shrinir's.

also

> > > already have an spplication just never got around to sending it

> in

> > > because of previous Dr. but i now know that was a mistake. this

> > looks

> > > to be a long night right now the only way my littl eboy will

> sleep

> > is

> > > layin on some one.. he is screaming if if he isnt. He does not

> > Sleep in

> > > the bed with us. But tonight i might have to make an exception

> > because

> > > that looks to be the only way we are goin to get any sleep. You

> all

> > > have been great just to let yall know. oh yeah with these last

> set

> > of

> > > cast there were put on him he could no get comfortable on his

> back

> > > where he was used to sleeping so now he is sleeping on his

> stomach

> > the

> > > only way he will. well all i will report any new information i

> find

> > out

> > > asap

> > >

> > > thanks a again yall have been wonderful

> > >

> > > tired and worn out

> > > Amber

> > >

> >

>

[Guest guest]

Dear Amber,

I'm the mommy of an Italian baby with clubfoot (Giuseppe).

I can underdstand what you feel. I had an horrible experience with

cast made by an Italian doctor. Everytime he made the casts they: 1)

slipped off, 2)it was impossible to see Giuseppe's toes because they

disappeared in the casts; in this way he had many problems with his

toenails 3) after 11 casts and the thenotomy Giuseppe's feet were

very bad and certainly they were no correct.

We were destroyed and we decided to go from Italy to Iowa City to

meet Dr. Ponseti. He made only 3 casts and Giuseppe's feet were

perfect. I want to say you that there are many ways to do the casts

and your baby can get different results and improvements from

different doctors. If the doctor is a good doctor (who use correctly

Ponseti's method) your baby's feet will be fine, they can grow into

the casts (few casts). Giuseppe's feet were very severe and atypical

but, after Ponseti's treatment, they are perfect. Now he is in the

's brace. Please go to a good Ponseti's doctor and your baby

will be very well. Excuse me for my English.

Good luck.

Titty

Giuseppe (born 07/07/05 - severe bilateral atypical clubfoot)

-- In nosurgery4clubfoot , " "

wrote:

>

> Awww Amber, glad that you were able to get a little sleep!

Whatever

> you do tomorrow, DO NOT let them recast your son!! I have a

feeling

> that your current doc is going to spout a lot of stuff (crap IMO)

> about your son having stubborn or severe feet. Rest ASSURED that

Dr.

> Dobbs or another good Ponseti dr for that matter WILL FIX his feet

in

> a matter of weeks!!!!!!!! I can't stress this enough Amber, don't

let

> them touch his feet again!!!

>

> I will give you a quick short story to give you some

motivation...a

> good recent friend of mine came online to find out if the

suffering

> that her son was going through - multiple casts (like 18 counting

> slippage) was 'normal' and if all the pain he was going through -

> (like skin bruising and breaking down and peeling off was normal)

and

> that he screamed and had to be held down for casting (I put a

> frowny face here cuz this caused and still causes me to get

> emotional) and we said NO it is NOT normal for a baby to go

through

> at all at all.

> His feet showed marginal improvment and she was told that his feet

> were extremely severe and thus all the casts (which were applied

> while he screamed the whole time btw).

> Well after joining this group and getting her son to a Ponseti

doctor

> in our city, her son has PERFECT feet now - this was achieved with

> only a few casts!

> Dr. Pirani, who treated my daughter and eventually treated her son

is

> Ponseti certified thus has our babies WHOLE well being in mind. We

> also had a horrid first casting experience and came to him for her

> second cast with me preparing for 'the worst' sobbing and crying -

> both of us Grace and me, I will never forget him putting his hand

on

> my arm and telling me that it was going to be just fine, that he

> would be able to fix Grace's foot and then went into the logistics

of

> how he was going to do just that, sooooo different from our first

> experience!

> I will NEVER forget his kindness and his gentle way. I have since

> found out through others and some innocent sleuthing (hehe) that

he

> really does try to immulate Dr. Ponseti and has spoken with him

> numerous times about how he (Dr. Ponseti) keeps his babies so

happy

> He let me nurse her first (he always wanted her calm and let me

nurse

> if needed) and then did her cast and guess what...she NEVER cried

for

> him =)

>

> Well this post turned out to be sooooo long winded but Amber, I

just

> really want you to know that there is a better way and a better

> treatment available for your son and Dr. Dobbs will be able to

> provide him this! I can't wait for you to see the results after

his

> first casts!!! You will be amazed, I promise!

>

> Hugs,

>

> And let us know how the appt goes ok!

>

> & Grace

>

>

>

> > > >

> > > > just wanted to let yall know i didnt get a chance to call Dr

> > Dobbs

> > > nuse

> > > > or the shrinir's but did email DR Dobbs. Have not heard

> anything

> > > back

> > > > just yet. goin to try and call tomorrow about the shrinir's.

> also

> > > > already have an spplication just never got around to sending

it

> > in

> > > > because of previous Dr. but i now know that was a mistake.

this

> > > looks

> > > > to be a long night right now the only way my littl eboy will

> > sleep

> > > is

> > > > layin on some one.. he is screaming if if he isnt. He does

not

> > > Sleep in

> > > > the bed with us. But tonight i might have to make an

exception

> > > because

> > > > that looks to be the only way we are goin to get any sleep.

You

> > all

> > > > have been great just to let yall know. oh yeah with these

last

> > set

> > > of

> > > > cast there were put on him he could no get comfortable on

his

> > back

> > > > where he was used to sleeping so now he is sleeping on his

> > stomach

> > > the

> > > > only way he will. well all i will report any new information

i

> > find

> > > out

> > > > asap

> > > >

> > > > thanks a again yall have been wonderful

> > > >

> > > > tired and worn out

> > > > Amber

> > > >

> > >

> >

>

[Guest guest]

Have you tried putting a blanket under his knees? seemed to like this

when he was in casts, and we still do it in the brace if he can't get comfy one

night.

Amber wrote:

just wanted to let yall know i didnt get a chance to call Dr Dobbs nuse

or the shrinir's but did email DR Dobbs. Have not heard anything back

just yet. goin to try and call tomorrow about the shrinir's. also

already have an spplication just never got around to sending it in

because of previous Dr. but i now know that was a mistake. this looks

to be a long night right now the only way my littl eboy will sleep is

layin on some one.. he is screaming if if he isnt. He does not Sleep in

the bed with us. But tonight i might have to make an exception because

that looks to be the only way we are goin to get any sleep. You all

have been great just to let yall know. oh yeah with these last set of

cast there were put on him he could no get comfortable on his back

where he was used to sleeping so now he is sleeping on his stomach the

only way he will. well all i will report any new information i find out

asap

thanks a again yall have been wonderful

tired and worn out

Amber