Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 , what a great idea! I love that you have something that allows you to keep reading. I know that is one of the biggest fears for me- to not be able to read would be a really big bummer. I have to laugh that the keyboard is so small that it takes a pointer to operate. Kind of an oxymoron, a reading device for people with low vision, and a keyboard to small to see. LOL! I will be keeping the info-- that is a promise. Hugs, Tracie To: Neurosarcoidosis Sent: Wednesday, September 23, 2009 5:10:40 PMSubject: Re: Too tired to post-- S Tracie, Kindle is a electronic/digital reading device. This particular one is through Amazon.com. I can enlarge the print and it can even read to me out loud. I got the latest, bigger one cuz it will hold up to 3,500 books. That should last me!....lol. There is a Kindle store right on it and i go there and type in what I'm looking for. The downside is the the keyboard is really small so I sometimes use a pencil eraser. I bought a pink protector for it that has a thingy in the back(like a picture frame has) to hold it up all by itself. I mostly read while laying down in bed so now all I have to do is reach up to push a button to turn the page. I am sensitive to ink and was running out of room for all the books I've accumulated through the years. I hate getting rid of a book! lol I wish I hadn't waited so long to get one. I love it. There is a Kindle, a Kindle 2 and now the Kindle DX. You can download a book in less than 60 seconds and can get many free ones, too. It's a reader's dream....lol. I've been on Nopalea in addition to MSM and Milk thisle. It's helped in the energy department. I also just started Sublungual B-12. hugs! S. 29:11, For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future. "If anyone would come after Me, he must deny himself" ( 16:24 NIV)."No one whose hope is in You will ever be put to shame….Show me Yourways, O LORD, teach me Your paths; guide me in Your truth and teachme, for You are God my Savior, and My hope is in You all day long."Psalm 25:3,4,5 NIV> From: tracie feldhaus <tiodaat2001@ yahoo.com>> Subject: Tracie Update> To: neurosarcoidosis@ yahoogroups. com, nsmods (AT) yahoogroups (DOT) com, NSMods-owner@ yahoogroups. com> Date: Wednesday, September 23, 2009, 9:20 PM> > > Ok> gang, I post and you all disapear. All 600 of> you. What's up? I> know I can come on strong, and these days the sarc> advancement has me being sometimes less than tackfull. > > I have always told it like it is-- straight and> direct. i'm also at a place where for me, I'm> frustrated that so many people will chose to do all the> stuff they know is not healthy for themself, and puts others> at risk. Living on immunosuppressants can make all of> us a bit more crazy-- do you go to the grocery store or> shopping and risk serious infection? I don't want> to live in fear of what if-- so i try to be pro-active in> what I do to take care of me. Washing my hands after> shopping so that if the kid in the cart has a cold, I'm> not in as much danger of getting it. Keeping my hands> away from my face-- using my arms to push open a door rather> than use the handle, etc. Common sense stuff. > That is as good as I can do.> I am watching my mom lose her sight to diabetes, and> if you go over after 3pm each day, she's on her 3rd or> 4th highball, and breakfast and lunch was half a sweetroll> and a cup of coffee with hot chocolate added. But, she> did give herself her insulin injection-- morning and> night. She's never learned to see what is going on> and adjust her dose-- she doesn't want to.> My dad has advanced Parkinsons, and he doesn't> feel well enough to cook for them now, and he took that over> when he retired-- so mom's lost the memory to do it---> and lacks the vision to be safe. > I watch myself tryiing to learn to manage my diabetes,> and it is overwhelming. It's part of this years> changes, and yes-- it has made me understand a little bit of> where my mom's coming from. I try to be patient> with it-- but i'm not very good at it. > I'm struggling with 3 heart valves not> working right-- and I have been sick for this whole> year. The pulmonary stuff is advancing, because of the> combo. My docs want me to get back to LA to see Dr.> Sharma, and finally went back to full-time work on> Monday. At least for the next 6 wks-- we hope that we> don't have any more cuts.. > I am only able to stick my head in here a couple of> times each week, and generally haven't been well enough> to respond. When I do it's because I see that> something needs to be addressed right away.> I care so much for all of you, and want you to be able> to be as healthful as you can be even with> sarcoidosis. It isn't a death sentence, and so> many of the problems associated with it can be handled using> common sense approaches. I know it can effect our> personalities, and I've seen alot of change in mine this> last year. I try to remind myself that if I'm> experiencing this-- then all of you might also be in some of> the same place with your sarcoidosis. > It is important that we communicate, and that we reach> out to those in need. If someone can email me a sense> of humor-- I'd appreciate it. Right now, life is> hard.> Take care,> Tracie> NS> Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Tracie...Well, technically it's just a reading device to read books, newspapers, magazines, blogs, etc.... not necessarily for those with poor vision. But you can change the font size and i choose the largest font....lol. And it's lightweight, too. S.> From: tracie feldhaus <tiodaat2001@ yahoo.com>> Subject: Tracie Update> To: neurosarcoidosis@ yahoogroups. com, nsmods (AT) yahoogroups (DOT) com, NSMods-owner@ yahoogroups. com> Date: Wednesday, September 23, 2009, 9:20 PM> > > Ok> gang, I post and you all disapear. All 600 of> you. What's up? I> know I can come on strong, and these days the sarc> advancement has me being sometimes less than tackfull. > > I have always told it like it is-- straight and> direct. i'm also at a place where for me, I'm> frustrated that so many people will chose to do all the> stuff they know is not healthy for themself, and puts others> at risk. Living on immunosuppressants can make all of> us a bit more crazy-- do you go to the grocery store or> shopping and risk serious infection? I don't want> to live in fear of what if-- so i try to be pro-active in> what I do to take care of me. Washing my hands after> shopping so that if the kid in the cart has a cold, I'm> not in as much danger of getting it. Keeping my hands> away from my face-- using my arms to push open a door rather> than use the handle, etc. Common sense stuff. > That is as good as I can do.> I am watching my mom lose her sight to diabetes, and> if you go over after 3pm each day, she's on her 3rd or> 4th highball, and breakfast and lunch was half a sweetroll> and a cup of coffee with hot chocolate added. But, she> did give herself her insulin injection-- morning and> night. She's never learned to see what is going on> and adjust her dose-- she doesn't want to.> My dad has advanced Parkinsons, and he doesn't> feel well enough to cook for them now, and he took that over> when he retired-- so mom's lost the memory to do it---> and lacks the vision to be safe. > I watch myself tryiing to learn to manage my diabetes,> and it is overwhelming. It's part of this years> changes, and yes-- it has made me understand a little bit of> where my mom's coming from. I try to be patient> with it-- but i'm not very good at it. > I'm struggling with 3 heart valves not> working right-- and I have been sick for this whole> year. The pulmonary stuff is advancing, because of the> combo. My docs want me to get back to LA to see Dr.> Sharma, and finally went back to full-time work on> Monday. At least for the next 6 wks-- we hope that we> don't have any more cuts.. > I am only able to stick my head in here a couple of> times each week, and generally haven't been well enough> to respond. When I do it's because I see that> something needs to be addressed right away.> I care so much for all of you, and want you to be able> to be as healthful as you can be even with> sarcoidosis. It isn't a death sentence, and so> many of the problems associated with it can be handled using> common sense approaches. I know it can effect our> personalities, and I've seen alot of change in mine this> last year. I try to remind myself that if I'm> experiencing this-- then all of you might also be in some of> the same place with your sarcoidosis. > It is important that we communicate, and that we reach> out to those in need. If someone can email me a sense> of humor-- I'd appreciate it. Right now, life is> hard.> Take care,> Tracie> NS> Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
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