Re: He cried all night. . .

[Guest guest]

I am sorry to hear that Aidan is having a rough go. Please make sure

you go to the files section and check out the tips/tricks document-its

a pdf file with pictures and very helpful. It did take my son some

time to get used to the shoes. For us, it helped him to teach him how

to move his legs together. He is going from having independent

movement with his feet to again being confined together. Is there a

reason it was set to 55 degrees? Typical protocal is 70 degrees-

however, my son was prescribed 55 degrees after 6 months of 70 degrees

due to his extreme flexibility.

take care,

kathleen

mom to david bcf fab 12/7

>

> My son Aidan (8 1/2 mos, bcf post second tenotomy DBB FT) just went

> back in to the DBB after having his second percutaneous tenotomy one

> month ago. They adjusted his shoes to 55 degrees and the guy at the

> orthotics place thought this was extreme but reassured me not to

worry

> that the doc knew what he was doing. Well, he cried all night. I

> didn't give him tylenol because I didn't think of it until this

> morning. It seemed to help.

>

> Does anyone has experience with your child's discomfort or what

> might help to make him comfortable?. Is this going to be the first

> few days or is just that he's mad at being back in the shoes? He

> tolerated the shoes pretty well the first time around.

>

[Guest guest]

I've read the tips and tricks doc before, since this is my second

go around with the DBB. I'm wondering if he is having muscle

stiffness and discomfort. I do think he forgot how to move with the

bar and shoes on again so I'm going to have to show him how

to " play " again.

Thank you.

> >

> > My son Aidan (8 1/2 mos, bcf post second tenotomy DBB FT) just

went

> > back in to the DBB after having his second percutaneous tenotomy

one

> > month ago. They adjusted his shoes to 55 degrees and the guy at

the

> > orthotics place thought this was extreme but reassured me not to

> worry

> > that the doc knew what he was doing. Well, he cried all night.

I

> > didn't give him tylenol because I didn't think of it until this

> > morning. It seemed to help.

> >

> > Does anyone has experience with your child's discomfort or what

> > might help to make him comfortable?. Is this going to be the

first

> > few days or is just that he's mad at being back in the shoes?

He

> > tolerated the shoes pretty well the first time around.

> >

>

[Guest guest]

BTW, his feet looked awesome after this second tenotomy. I couldn't

get over the range he got with both feet and how much bigger they

looked. I think the grew in this last month in those casts.

I hope this was it for invasive procedures.

> >

> > My son Aidan (8 1/2 mos, bcf post second tenotomy DBB FT) just

went

> > back in to the DBB after having his second percutaneous tenotomy

one

> > month ago. They adjusted his shoes to 55 degrees and the guy at

the

> > orthotics place thought this was extreme but reassured me not to

> worry

> > that the doc knew what he was doing. Well, he cried all night.

I

> > didn't give him tylenol because I didn't think of it until this

> > morning. It seemed to help.

> >

> > Does anyone has experience with your child's discomfort or what

> > might help to make him comfortable?. Is this going to be the

first

> > few days or is just that he's mad at being back in the shoes?

He

> > tolerated the shoes pretty well the first time around.

> >

>

[Guest guest]

more than likely its the uncomfortable, immobility that is causing

problems. what a great cmas present to be cast free!!

tylenol is a great thing!!

kathleen

> > >

> > > My son Aidan (8 1/2 mos, bcf post second tenotomy DBB FT) just

> went

> > > back in to the DBB after having his second percutaneous

tenotomy

> one

> > > month ago. They adjusted his shoes to 55 degrees and the guy

at

> the

> > > orthotics place thought this was extreme but reassured me not

to

> > worry

> > > that the doc knew what he was doing. Well, he cried all

night.

> I

> > > didn't give him tylenol because I didn't think of it until

this

> > > morning. It seemed to help.

> > >

> > > Does anyone has experience with your child's discomfort or

what

> > > might help to make him comfortable?. Is this going to be the

> first

> > > few days or is just that he's mad at being back in the

shoes?

> He

> > > tolerated the shoes pretty well the first time around.

> > >

> >

>

[Guest guest]

Lynne,

Why did they think that 55 was extreme? Was he ever at 70°?

Do you think the width of the shoes is correct?

I hope that he's just experiencing some muscle tenderness and that

he'll be happy again for you soon!

>

> My son Aidan (8 1/2 mos, bcf post second tenotomy DBB FT) just went

> back in to the DBB after having his second percutaneous tenotomy one

> month ago. They adjusted his shoes to 55 degrees and the guy at the

> orthotics place thought this was extreme but reassured me not to

worry

> that the doc knew what he was doing. Well, he cried all night. I

> didn't give him tylenol because I didn't think of it until this

> morning. It seemed to help.

>

> Does anyone has experience with your child's discomfort or what

> might help to make him comfortable?. Is this going to be the first

> few days or is just that he's mad at being back in the shoes? He

> tolerated the shoes pretty well the first time around.

>

[Guest guest]

I don't know why he thought it was extreme, but I didn't worry about

it too much. No he was set a 45 degrees before the second tenotomy.

He didn't sleep well again last night. He cried whenever he tries

to get comfortable. I hope it gets better too. He's always been a

good sleeper and these last two night have been the worst.

Thanks.

Lynn

> >

> > My son Aidan (8 1/2 mos, bcf post second tenotomy DBB FT) just

went

> > back in to the DBB after having his second percutaneous tenotomy

one

> > month ago. They adjusted his shoes to 55 degrees and the guy at

the

> > orthotics place thought this was extreme but reassured me not to

> worry

> > that the doc knew what he was doing. Well, he cried all night.

I

> > didn't give him tylenol because I didn't think of it until this

> > morning. It seemed to help.

> >

> > Does anyone has experience with your child's discomfort or what

> > might help to make him comfortable?. Is this going to be the

first

> > few days or is just that he's mad at being back in the shoes?

He

> > tolerated the shoes pretty well the first time around.

> >

>

[Guest guest]

Hi Lynn,

I really agree with Kori here, your son relapsed when he was set at

45 degrees with this doctor and now he is at 55??? Honestly, I don't

really get that, the feet are supposed to be set at 70 degrees so

that they don't relapse. Except for a very small %age of rare cases,

they need to be out that far to keep that tendon stretched!

If I were you, I would take my child for a second opinion pronto to a

Ponseti doctor to make sure that a. the feet are fully corrected and

b. that the brace is set up right.

Where abouts do you live, there may well be a GREAT Ponseti doctor

near you that can see him and make Sure that all is well with his

feet =)

& Grace

> > > >

> > > > My son Aidan (8 1/2 mos, bcf post second tenotomy DBB FT) just

> >went

> > > > back in to the DBB after having his second percutaneous

tenotomy

> >one

> > > > month ago. They adjusted his shoes to 55 degrees and the guy

at

> >the

> > > > orthotics place thought this was extreme but reassured me not

to

> > > worry

> > > > that the doc knew what he was doing. Well, he cried all

night.

> >I

> > > > didn't give him tylenol because I didn't think of it until

this

> > > > morning. It seemed to help.

> > > >

> > > > Does anyone has experience with your child's discomfort or

what

> > > > might help to make him comfortable?. Is this going to be the

> >first

> > > > few days or is just that he's mad at being back in the shoes?

> >He

> > > > tolerated the shoes pretty well the first time around.

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I wonder what degree his feet were set at in his healing-cast. It should have

been 70 degrees but if not, there's a problem.

s.

Re: He cried all night. . .

I don't know why he thought it was extreme, but I didn't worry about

it too much. No he was set a 45 degrees before the second tenotomy.

He didn't sleep well again last night. He cried whenever he tries

to get comfortable. I hope it gets better too. He's always been a

good sleeper and these last two night have been the worst.

Thanks.

Lynn

> >

> > My son Aidan (8 1/2 mos, bcf post second tenotomy DBB FT) just

went

> > back in to the DBB after having his second percutaneous tenotomy

one

> > month ago. They adjusted his shoes to 55 degrees and the guy at

the

> > orthotics place thought this was extreme but reassured me not to

> worry

> > that the doc knew what he was doing. Well, he cried all night.

I

> > didn't give him tylenol because I didn't think of it until this

> > morning. It seemed to help.

> >

> > Does anyone has experience with your child's discomfort or what

> > might help to make him comfortable?. Is this going to be the

first

> > few days or is just that he's mad at being back in the shoes?

He

> > tolerated the shoes pretty well the first time around.

> >

>