Re: Calcium and Vit D

[Guest guest]

Tracie,

Great info Tracie and thanks for sharing. I have been taking MSM powder

for some time now and noticed a measurable decrease in my joint pain, wish it

would help with the headaches ;-}. Now my Doc told me to limit my intake of V-D

due to according to him that it supports sarcoidosis. I have Neurosarcoidosis

and I have granulomas around the brain and brain stem. I am willing try anything

and I am going to try a good calcium/magnesium combo. Any suggestion starting

dosage.

Thank once again for such a wonderful site.

Greg aka Krumdawg

>

> Hi guys,

>  

> It amazes me that so many of us have Vit D insuffiency when Vit D is supposed

to be a problem-- but one of facts is that we don't get enough Vit D--- at least

the one we need. 

>  

> Vit D cannot be processed by the body until we get out in the sunlight-- it is

that little component that turns on the V-D absorbtion.  Now, the second part of

that is that we can assimilate Vit D without calcium.-- So you have to both.

>  

> What I " ve found is that if I take a GOOD Calcium/magnesium combo, and get a

FEW-- 10 min is all that is needed, of sunlight daily-- my V- D level is fine. 

>  

> For so many of us, we have lost the calcium from our bones because of the

prednisone, and without enough replacement, then our bodies go into panic and

think that we're going to starve it of this mineral.  So, it leaches the calcium

from our bones and puts it where it doesn't belong.  (liver, kidneys, joints,

ligaments, gallbladder) and guess what-- without the proper calcium level-- you

hurt!!!

>  

> What is interesting is that the granulomas are partly calcium!  I know that

when I have to take pred for even a couple of days, that I get the " inside " the

bone pain immediately-- my body is now saying no more--- stop leaching my

bones-- and it tells me by sending my pain levels through the roof!  If I go in

and take a couple of Calcium/magnesium tablets (another MUST HAVE COMBO to be

able to synergize the calcium)-- I'll be relieved of the pain very quickly.

>  

> The other component is that Plaquenil-- Hydroxychloroquine (quinine) is very

helpful for that bone pain.  Quinine was used for scurvy-- Vit C defiency.  Vit

C is also a necessary component of  Calcium assimilation. 

>  

> So, if we are not getting enough Vit C, enough Calcium (or are taking pred

where the calcium is being leached from the bones) and our bodies response is

one of " starvation " mode-- hmmm, I'm not getting enough of these vit and

minerals-- so I'll stock pile these important nutrients so that I'm not going

without (via granulomas in our lungs, etc) then it makes sense to me that when

we get the levels up to standards-- by diet and mineral supplementation-- then

our pain levels will go down.

>  

> Now-- think about this-- Vit C is a natural anti-inflammatory.  Calcium is a

natural muscle relaxant.  Vit D is absolutely necessary for stopping depression,

as is the sunlight necessary to get our bodies to absorb the D the way we

should. 

>  

> I've been experimenting on myself-- and by adding addl Vit C to my diet and

Cal/Mag-- I'm in alot less pain.  If I go without these vitamins and minerals--

then I pay for it.  I also use the MSM powder religiously, and even with the

advanced sarcoidoisis- I'm not in tremendous pain.  I'm not breathing worth

shit, but that is because  of the severe scarring in my lungs. 

>  

> How much of our pain is being caused by Vit and mineral defiencies, -- I

suspect alot of it is.  So for me, by getting a small amount of control back

over my diet-- has meant that I'm more comfortable.

>  

> It'd be interesting, for all of us to take a serious inventory of our diets,

and if we aren't getting the vitamins and minerals ( a diet journal would be

good to do) and see if you are eating healthy, and then make some changes-- and

see what happens.  We may not be able to stop all the problems, but if we can be

in less pain-- that would be a good thing!

>  

> Share your insights,

> Tracie

> NS Co-owner/moderator

>

[Guest guest]

Greg, read Dr. Sharma's info on calcium and Vit D. There is only one part of Vit D that is a problem with sarc, and only a few people have the issue. His site is www.sarcoidosissharma.com.

Also, FSR www.stopsarcoidosis.org has a great brochure on Calcium with info about the need for it for those who have inflammatory diseases that force us to take high dose long term steroids. The lack of this essential nutrient and it being leached from the bones causes more problems than what occurs if we do supplement.

I know this is a double edged sword-- and we should all be checked for hypercaluria (high urine calcium) and hypercalemia (high blood calcium). If you have these issues, then follow the docs instruction-- and you may have to stay away from it.

I'll try to find the booklet I have on dosage-- and get that info to you.

It's taken me 18 yrs of living with sarcoidosis to figure out what works for me, and about the time I think I've got it in balance, another challenge pops up-- so it's a constant learning to adjust, again and again..

I am totally convinced that diet and nutrition have a tremendous amount to do with the fact that our parents generation, and there parents,- actually had a better quality of life than we have. Our sedentary jobs, social life, fast food eating, processed foods-- all in the name of progress-- has more to do with the fact that the baby boomer generation will die sooner than our parents. Instead of the 80-85 yo life span now, we're looking at knocking off 10-15yrs sooner-- and diet and exercise and jobs that require physical labor seems to be the key change.

Take care,

Tracie

NS Co-owner/moderator

Subject: Re: Calcium and Vit DTo: Neurosarcoidosis Date: Saturday, March 28, 2009, 7:42 PM

Tracie, Great info Tracie and thanks for sharing. I have been taking MSM powder for some time now and noticed a measurable decrease in my joint pain, wish it would help with the headaches ;-}. Now my Doc told me to limit my intake of V-D due to according to him that it supports sarcoidosis. I have Neurosarcoidosis and I have granulomas around the brain and brain stem. I am willing try anything and I am going to try a good calcium/magnesium combo. Any suggestion starting dosage. Thank once again for such a wonderful site.Greg aka Krumdawg>> Hi guys,> > It amazes me that so many of us have Vit D insuffiency when Vit D is supposed to be a problem-- but one of facts is that we don't get enough Vit D--- at least the one we

need. > > Vit D cannot be processed by the body until we get out in the sunlight-- it is that little component that turns on the V-D absorbtion. Now, the second part of that is that we can assimilate Vit D without calcium.-- So you have to both.> > What I"ve found is that if I take a GOOD Calcium/magnesium combo, and get a FEW-- 10 min is all that is needed, of sunlight daily-- my V- D level is fine. > > For so many of us, we have lost the calcium from our bones because of the prednisone, and without enough replacement, then our bodies go into panic and think that we're going to starve it of this mineral. So, it leaches the calcium from our bones and puts it where it doesn't belong. (liver, kidneys, joints, ligaments, gallbladder) and guess what-- without the proper calcium level-- you hurt!!!> > What is interesting is that the granulomas are

partly calcium! I know that when I have to take pred for even a couple of days, that I get the "inside" the bone pain immediately- - my body is now saying no more--- stop leaching my bones-- and it tells me by sending my pain levels through the roof! If I go in and take a couple of Calcium/magnesium tablets (another MUST HAVE COMBO to be able to synergize the calcium)-- I'll be relieved of the pain very quickly.> > The other component is that Plaquenil-- Hydroxychloroquine (quinine) is very helpful for that bone pain. Quinine was used for scurvy-- Vit C defiency. Vit C is also a necessary component of Calcium assimilation. > > So, if we are not getting enough Vit C, enough Calcium (or are taking pred where the calcium is being leached from the bones) and our bodies response is one of "starvation" mode-- hmmm, I'm not getting enough of these vit and minerals-- so I'll stock pile

these important nutrients so that I'm not going without (via granulomas in our lungs, etc) then it makes sense to me that when we get the levels up to standards-- by diet and mineral supplementation- - then our pain levels will go down.> > Now-- think about this-- Vit C is a natural anti-inflammatory. Calcium is a natural muscle relaxant. Vit D is absolutely necessary for stopping depression, as is the sunlight necessary to get our bodies to absorb the D the way we should. > > I've been experimenting on myself-- and by adding addl Vit C to my diet and Cal/Mag-- I'm in alot less pain. If I go without these vitamins and minerals-- then I pay for it. I also use the MSM powder religiously, and even with the advanced sarcoidoisis- I'm not in tremendous pain. I'm not breathing worth shit, but that is because of the severe scarring in my lungs. > > How

much of our pain is being caused by Vit and mineral defiencies, -- I suspect alot of it is. So for me, by getting a small amount of control back over my diet-- has meant that I'm more comfortable.> > It'd be interesting, for all of us to take a serious inventory of our diets, and if we aren't getting the vitamins and minerals ( a diet journal would be good to do) and see if you are eating healthy, and then make some changes-- and see what happens. We may not be able to stop all the problems, but if we can be in less pain-- that would be a good thing!> > Share your insights,> Tracie> NS Co-owner/moderator>

[Guest guest]

Thanks for the information tracie, I hadn't thought about adding vit c, and calcium and mag to my diet. I'm a milk freak is why I think I don't get in anymore trouble than I do with my bones sometime. I reversed my osteoporosis to osteopena, and I can't take any of the bone meds like fosamax, and such; (my liver goes crazy). I think your headed in the right direction. Connie

Subject: Calcium and Vit DTo: neurosarcoidosis Date: Saturday, March 28, 2009, 10:05 PM

Hi guys,

It amazes me that so many of us have Vit D insuffiency when Vit D is supposed to be a problem-- but one of facts is that we don't get enough Vit D--- at least the one we need.

Vit D cannot be processed by the body until we get out in the sunlight-- it is that little component that turns on the V-D absorbtion. Now, the second part of that is that we can assimilate Vit D without calcium.-- So you have to both.

What I"ve found is that if I take a GOOD Calcium/magnesium combo, and get a FEW-- 10 min is all that is needed, of sunlight daily-- my V- D level is fine.

For so many of us, we have lost the calcium from our bones because of the prednisone, and without enough replacement, then our bodies go into panic and think that we're going to starve it of this mineral. So, it leaches the calcium from our bones and puts it where it doesn't belong. (liver, kidneys, joints, ligaments, gallbladder) and guess what-- without the proper calcium level-- you hurt!!!

What is interesting is that the granulomas are partly calcium! I know that when I have to take pred for even a couple of days, that I get the "inside" the bone pain immediately- - my body is now saying no more--- stop leaching my bones-- and it tells me by sending my pain levels through the roof! If I go in and take a couple of Calcium/magnesium tablets (another MUST HAVE COMBO to be able to synergize the calcium)-- I'll be relieved of the pain very quickly.

The other component is that Plaquenil-- Hydroxychloroquine (quinine) is very helpful for that bone pain. Quinine was used for scurvy-- Vit C defiency. Vit C is also a necessary component of Calcium assimilation.

So, if we are not getting enough Vit C, enough Calcium (or are taking pred where the calcium is being leached from the bones) and our bodies response is one of "starvation" mode-- hmmm, I'm not getting enough of these vit and minerals-- so I'll stock pile these important nutrients so that I'm not going without (via granulomas in our lungs, etc) then it makes sense to me that when we get the levels up to standards-- by diet and mineral supplementation- - then our pain levels will go down.

Now-- think about this-- Vit C is a natural anti-inflammatory. Calcium is a natural muscle relaxant. Vit D is absolutely necessary for stopping depression, as is the sunlight necessary to get our bodies to absorb the D the way we should.

I've been experimenting on myself-- and by adding addl Vit C to my diet and Cal/Mag-- I'm in alot less pain. If I go without these vitamins and minerals-- then I pay for it. I also use the MSM powder religiously, and even with the advanced sarcoidoisis- I'm not in tremendous pain. I'm not breathing worth shit, but that is because of the severe scarring in my lungs.

How much of our pain is being caused by Vit and mineral defiencies, -- I suspect alot of it is. So for me, by getting a small amount of control back over my diet-- has meant that I'm more comfortable.

It'd be interesting, for all of us to take a serious inventory of our diets, and if we aren't getting the vitamins and minerals ( a diet journal would be good to do) and see if you are eating healthy, and then make some changes-- and see what happens. We may not be able to stop all the problems, but if we can be in less pain-- that would be a good thing!

Share your insights,

Tracie

NS Co-owner/moderator