RE: Thank You

[Guest guest]

thanks Jackie...you made me laugh out loud and thats a rare occasion these days.

Its amazing how much better I feel just knowing that I am not the only one.

Thank you for the encouragement and the blessings my new friend!

>

> You go girl. Fight like hell and beat this monster. We are all in this

> together. We find strength in laughing together, crying together and

> praying for each other.

> I hope you find a Dr. who will work with you to control this NS thing we all

> have.

> God Bless and Keep you.

> If this doesn't make the sense I mint it is because my sig. other is

> talking to me at this time.

> Jackie from Wisconsin

>

> Thank you

>

>

> > Today is Thanksgiving Day in Canada and I just found this site and am

> > truly thankful. After reading all the posts, it still amazes me how vast

> > and unknown this disease is. The tricky part here in Canada is to find

> > someone who can help with neuro sarc. Pulmonary sarc seems to be well

> > taken care of but we have no specialists strictly dedicated to neurosarc.

> > I am in the process of being referred to s Hopkins because I am

> > nearing the end of my rope. I am not sure who said this, in one of the

> > posts on here...but she said something like.. " sarcoidosis is a battle and

> > sometimes it wins but mostly I win " and those words helped me immensely.

> > I do not want to lay in bed, in pain, and feel sorry for myself. I want

> > to get out there and kick some neuro sarc butt! Well...maybe I will have

> > my wonderful husband do the kickin but you get the idea!

> > Life is a blessing, and for that I am truly thankful. Take care mes ami

> > (my friends)

> > from the Centre of Canada

> >

> >

> >

> > ------------------------------------

> >

> > ~~~~ *** ~~~ *** ~~~ *** ~~~~

> > The Neurosarcoidosis Community

> >

> >

> > CHATROOM LINK: http://www.sarcbuddies.com -- Open all the time.....

> >

> > Message Archives:-

> > http://groups.yahoo.com/group/Neurosarcoidosis/messages

> >

> > Members Database:-

> > Listings of locations, phone numbers, and instant messengers.

> > http://groups.yahoo.com/group/Neurosarcoidosis/database

> >

> >

[Guest guest]

Sherry,

Please let your son know that myself, and everyone on this board

will be here to answer any questions he may have about the SCD if and when he

chooses to embrace this way of eating so his gut can heal. We are here!

I agree with PJ’s advice – feed him healthy meals at

home. Plus, *you* could still eat SCD – you don’t have to

have a bowel disorder to eat this way. It is above & beyond a healthy, well

balanced diet. The SCD yogurt is worth its weight in gold!

Anyway, hang in there. Oh, and please let your son know that

Alyssa, who is 15 and years beyond her age, is on this board and would welcome

some younger company! (hope ya don’t mind me speaking for you Alyssa!).

Regards,

Carol

CD 22 yrs SCD 5 yrs

From: BTVC-SCD

[mailto:BTVC-SCD ] On Behalf Of dontlikemeds

Just to update on my son's decision to do the SCDiet...he's still not on board.

So what I've been doing is trying to be a lot more conscious of what I am

feeding him here at home. I know that what I give him is better for him and yet

I've become discouraged by his response to the food. I am seeing that because he

is not on the diet and openly accepting it that he's also not open to trying

new things. I think it'll be a long process of changing the palette as well as

convincing him that this is the best choice for managing his disease. I feel

like I want to cry. I want this so much for him and he's not having it. I guess

I'm the one that needs to let it go-for now. :-)

So, I just had to vent for a bit and say thank you for your help and Maybe I'll

be back to ask some more questions when we're actually doing the diet. :-)