Re: dose anyone know

[Guest guest]

Bri,

There is a symposium, both in MD and one in Iowa every year and one

in St. Louis although I don't know if it's annual yet. That's the

best chance of a yearly national meet up right now. But there's got

to be people near you somewhere who would like to meet. hopefully

soon you'll find them, posting here is a good start though. Where

are you located?

as far as posing pics, there is little or no room at this group

sometimes so we have an email list dedicated to accepting attachments

that we use for this purpose, as well as to share pics of our

families and baby faces so come join up and send your pics. go to

http://health.groups.yahoo.com/group/CFPics/

Please remember to check the email you subscribed under and read the

info file that is attached. A short survey is included which must be

returned before membership is approved. It's quick and easy, and

weeds out the wackos so please make sure you do this. you will be

approved as soon as one of the moderators sees it returned. Then,

just send an email to the group address and attach you pictures. If

his feet are turning in and your doc says it's fine... well I'm sure

a second opinion wouldn't be a bad idea. And send pics to Dr.

P. make sure you send one each of him standing, bearing weight from

the front and back. Also, one of the soles and one each with you

pushing his feet as far up as possible towards his head with your

palm, a profile view so he can see how far past " L " the foot goes.

Can you tell us more about Noah's treatment so far? What Doc. are

you seeing and where are you located? We can help you find a doc in

your area to try for a second opinion from.

Take care, and I hope to see your submission request at the CFPics

list soon. There is hope, I promise you. If you think something is

wrong, then it very likely is. We moms are usually right about

these things. Kudos to you for being so proactive about this, you're

in the right place for the best possible care for your child. Post

any time about anything, that's what we're here for.

Kori

Darb's mama

Rt CF - FAB 12-14hr/d

At 11:16 PM 12/7/2005, you wrote:

>I was wondering if there was a clubfoot group that met once a year in

>person. So we got to meet each other and our kids. I have yet to meet

>onther couple with a child who has cf and thought it would be net to

>beable to meet once a year and get to talk face to face.

>

>Also I have put some pics up of noah's foot. His tose are turning in

>bad to the point that he is walikn on his toenails. His doctor is not

>concerend about it. Please look at them and let me know. I am also

>goin to try to send them to Dr. P.

>

>

>Bri

>

>

>

>

>

>

>

[Guest guest]

Ok I think I have gotten it! I have signed up now. But there are a few things I

still am not understanding. ( not good with computers or big words lol ) How do

I get a webpage for my son? I would love to post his life on here. Also what

dose symposium mean? I'm sure it will come to me, but I have just finished a 12

hour shift and the sun is about to come up tellin me it's bed time and Buffy is

just about over. I will write more about my son later. Thanks for all the help

you all have given me and my son.

frogabog wrote: Bri,

There is a symposium, both in MD and one in Iowa every year and one

in St. Louis although I don't know if it's annual yet. That's the

best chance of a yearly national meet up right now. But there's got

to be people near you somewhere who would like to meet. hopefully

soon you'll find them, posting here is a good start though. Where

are you located?

as far as posing pics, there is little or no room at this group

sometimes so we have an email list dedicated to accepting attachments

that we use for this purpose, as well as to share pics of our

families and baby faces so come join up and send your pics. go to

http://health.groups.yahoo.com/group/CFPics/

Please remember to check the email you subscribed under and read the

info file that is attached. A short survey is included which must be

returned before membership is approved. It's quick and easy, and

weeds out the wackos so please make sure you do this. you will be

approved as soon as one of the moderators sees it returned. Then,

just send an email to the group address and attach you pictures. If

his feet are turning in and your doc says it's fine... well I'm sure

a second opinion wouldn't be a bad idea. And send pics to Dr.

P. make sure you send one each of him standing, bearing weight from

the front and back. Also, one of the soles and one each with you

pushing his feet as far up as possible towards his head with your

palm, a profile view so he can see how far past " L " the foot goes.

Can you tell us more about Noah's treatment so far? What Doc. are

you seeing and where are you located? We can help you find a doc in

your area to try for a second opinion from.

Take care, and I hope to see your submission request at the CFPics

list soon. There is hope, I promise you. If you think something is

wrong, then it very likely is. We moms are usually right about

these things. Kudos to you for being so proactive about this, you're

in the right place for the best possible care for your child. Post

any time about anything, that's what we're here for.

Kori

Darb's mama

Rt CF - FAB 12-14hr/d

At 11:16 PM 12/7/2005, you wrote:

>I was wondering if there was a clubfoot group that met once a year in

>person. So we got to meet each other and our kids. I have yet to meet

>onther couple with a child who has cf and thought it would be net to

>beable to meet once a year and get to talk face to face.

>

>Also I have put some pics up of noah's foot. His tose are turning in

>bad to the point that he is walikn on his toenails. His doctor is not

>concerend about it. Please look at them and let me know. I am also

>goin to try to send them to Dr. P.

>

>

>Bri

>

>

>

>

>

>

>