Re: Salivary glands

[Guest guest]

Darrin, I have Salivary Gland sarcoidosis.. not of the upper lip but of both sides on the lower..Like any other symptom, it can be misserable.. but thankfully there products that help.. My mouth can get so dry I can't talks it feels like your tounge swells.. and the rest of your mouth feels like leather.. So you can keep a glass of water with you..

I do take Pilocarpine 2 tablets three times a day, which helps tremendously, if I take my meds like I am suppose to I do fine, but if I'm late you can tell a big difference.. That medication is by perscription... Of course there are mouth washes, I can't think of its name right off the bat..

Hope this helps,

Salivary glands

Anyone have sarcoid in the salivary gland of the upper lip, just above the cornerof their mouth? If so, what is that like? Thanks,Darrin

[Guest guest]

Thanks Theresa,

I'm still undiagnosed, having thought I had ms and Sjogrens.

Dry eyes and dry mouth have been a big part of my life for a long time and

I'm slowly realizing neurosarc explains all my sx where ms only explains some.

I can't remember when my eyelids didn't periodically stick to my eyes. yuck

Having a dry mouth when it's raining is just silly.

A salivary gland in my upper lip is suddenly enlarged and tender. I think I'll

call the neuro I'm going to see in two days and see whether she wants to

schedule a biopsy. I've heard of people with sarc being dxed this way so if

it turns out to be sarc the timing is actually convenient.

I keep telling myself not to set expectations for resolution of dx on my next

appt but hope is so tempting an emotion.

Cheers,

Darrin

To: Neurosarcoidosis From: topdat1@...Date: Sun, 28 Mar 2010 04:36:07 -0500Subject: Re: Salivary glands

Darrin, I have Salivary Gland sarcoidosis.. not of the upper lip but of both sides on the lower..Like any other symptom, it can be misserable.. but thankfully there products that help.. My mouth can get so dry I can't talks it feels like your tounge swells.. and the rest of your mouth feels like leather.. So you can keep a glass of water with you..

I do take Pilocarpine 2 tablets three times a day, which helps tremendously, if I take my meds like I am suppose to I do fine, but if I'm late you can tell a big difference.. That medication is by perscription... Of course there are mouth washes, I can't think of its name right off the bat..

Hope this helps,

Salivary glands

Anyone have sarcoid in the salivary gland of the upper lip, just above the cornerof their mouth? If so, what is that like? Thanks,Darrin

[Guest guest]

Darrin,

It is awful. My mouth is very dry

Joan

Salivary glands

Anyone have sarcoid in the salivary gland of the upper lip, just above the corner

of their mouth? If so, what is that like?

Thanks,

Darrin

[Guest guest]

..

Sarcoidosis of the Salivary Gland

Definition

Sarcoidosis is a chronic inflammatory condition of unknown origin,

which may involve salivary glands. It has some characteristic clinical

features and histological findings but in essence is a diagnosis of

exclusion.

Incidence/Age

A rare condition found mostly in adults, with only occasional cases

described in children. Clinically, salivary gland involvement occurs in

6% of cases, but 33% of patients are said to have some histological

involvement. It is most common in the 30-40 year old age group.

Anatomy & Physiology

The parotid gland consists of a superficial (outer) and a deep

(inner) part, which are separated by the tree-like terminal branches of

the facial nerve, responsible for facial movement. Lymph nodes are

present within the gland.

Saliva leaves the gland through Stensen's duct, which pierces the

facial muscles and enters the mouth through the cheek opposite the

second upper molar tooth. Saliva flow is stimulated by chewing and the

presence of food in the mouth, particularly sour substances. The

stimulus is mediated via parasympathetic nerve fibres carried on the

auriculotemporal nerve to the parotid gland.

The submandibular gland consists of superficial and deep parts

separated by the myelohyoid muscle. The duct leaves the deep part of

the gland and enters the floor of the mouth, meeting its opposite

partner. The deep part of the gland is intimately related to the

hypoglossal nerve, which moves the tongue, and the lingual nerve, which

provides sensation to the front half of the tongue.

Saliva flow is stimulated by the parasympathetic (chorda tympani) nerve fibres, carried along the lingual nerve.

Causes

The cause is unknown.

Symptoms/Signs

Swelling of some or all salivary glands, as well as tear glands,

causing dry mouth and dry eyes. Sarcoidosis is the commonest cause of

bilateral parotid swelling. Salivary gland swelling may last for months

or years but eventually resolves spontaneously.

Complications of Disorder

Uveoparotid fever (Heerfordt's disease), a flu-like illness

preceeding salivary swelling lasting for days to several weeks. It may

also be associated inflammation of the eyes (uveitis). This may occur

with or without systemic manifestations of sarcoid.Transient facial palsy.Uveitis may progress to glaucoma.

Tests

Chest X-ray to look for features of systemic sarcoid.Minor salivary gland biopsy from the lip or palate this can be done under local anaesthetic.Kweim test. This involves injecting material isolated from guinea

pigs suffering from sarcoidosis under human skin and identifying a

typical skin response, which can then be biopsied to identify

characteristic non-caesiating granulomata.

Treatment

Medical

There are no specific medical treatments and symptoms eventually

resolve spontaneously. Complications in particular facial palsy is said

to respond more rapidly if oral steroids are given.

Surgical

There is no active role for surgical treatment except in providing tissue for histological diagnosis.

Outcome/Prognosis

Usually good with complete resolution of symptoms over time.

Recommended Further Reading

Head & Neck Surgery - Otolaryngology, edited by Byron J.

, second edition, Vol. 1, chap 37. Diseases of the Salivary

glands non neoplastic by Dale H. Rice p475- 483.

Subject: Salivary glandsTo: "neurosarcoidosis " <neurosarcoidosis >Date: Sunday, March 28, 2010, 4:02 AM

Anyone have sarcoid in the salivary gland of the upper lip, just above the corner

of their mouth? If so, what is that like?

Thanks,

Darrin

[Guest guest]

I have had problems with my salivary glands under my tongue. They will swell up and I am unable to talk. I had to go to a oral surgeon when it first happened and he drained them. He show me how to do it and told me to eat lemon heads and drink plenty of lemon aid. So I keep plenty of both on hand. I was told it was part of sarcoidosis.

To: "neurosarcoidosis " <neurosarcoidosis >Sent: Sat, March 27, 2010 11:02:19 PMSubject: Salivary glands

Anyone have sarcoid in the salivary gland of the upper lip, just above the cornerof their mouth? If so, what is that like? Thanks,Darrin

[Guest guest]

Darrin, I have sarcoid lesions in my mouth, lining, lips under the tongue, I know they're there, and don't have too much trouble unless I bit one, then it's sore for days, I have this one that's a little bigger then the others on the lining in my mouth, and bite it a lot,

then I keep biting it, it seems to be sore more then not, not sure what to do with/or for them?  But yes I have them. Marla

 

Anyone have sarcoid in the salivary gland of the upper lip, just above the corner

of their mouth? If so, what is that like?

 

Thanks,

Darrin