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Re: Re: celiacs

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At 08:42 PM 8/30/2001 -0500, you wrote:

>I have been telling her that this sounds like her, since I've learned a

>little about it. But this intestinal lymphoma- does this produce tumors in

>the intestines?

That is exactly what it is.

>My grandmother had tumors in her intestines, but because of

>her condition (they had caused bleeding, and she was weakened) nothing was

>done to investigate or get rid of them. She had also had diarrhea and

>bloating all her life, as well as my aunt.

>I will push my mother harder. She knows she can't eat much wheat before it

>causes stomach upset, and she did tell me she'll watch eating wheat more

>since I expressed my concern.

If she is celiac, eating " less " wheat might as well be eating only wheat. A

little does as much damage as a lot. It's important to note that while

symptoms such as bloating and diarrhea may be lessened on a reduce gluten

diet, the damage is still being done.

From the Lancet...the 3rd paragraph is the important one.

" Death Rates Double Among Celiac Patients

Aug. 3, 2001 (Ivanhoe Newswire) — A new study shows people with celiac

disease have twice the death rate of those in the general population.

People with celiac disease are sensitive to a component of the protein

gluten, a substance found in wheat. This disease is a disorder of the small

intestine affecting about 1 in 200 people in developed countries. The

disease leads to abnormalities in the cells of the intestine, which cannot

digest or absorb food normally. A gluten-free diet is essential for someone

with the condition.

Previous studies have shown increased mortality in patients with celiac

disease, but no data are available on how death rates relate to different

forms of the disease. Researchers from Milano, Italy, assessed mortality

rates in about 1,000 patients with celiac disease and nearly 3,400 of their

first-degree relatives. They compared the number of deaths in a 25 year

period with the number of deaths expected based on general mortality rates.

Researchers found 53 celiac patients died compared with 25.9 expected deaths.

>>>>>>>A significant increase in the number of deaths was seen during the

first three years after diagnosis. Death was also more common in patients

who had malabsorption symptoms, but not in those diagnosed with minor

symptoms. In addition, the longer the delay, the higher the mortality rate.

The death rate also increased in patients who did not adhere to a

gluten-free diet. <<<<<<

Researchers stress the need for prompt and strict dietary treatment of

patients with celiac disease. They say more studies are needed to clarify

the progression of mild or symptomless celiac disease and its relation to

intestinal lymphoma. They conclude early detection and treatment are

critical in reducing the death rates.

>I'm beginning to think my family is rampant with celiac

I'd agree. PLEASE investigate further. CD is a very serious condition and

potentially fatal if left untreated. A simple blood screening test can be

done for almost no cost,. If you can find a celiac support group doing a

blood screening workshop, it can be as little as $10.

Is this You????

From an excellent article on CD by HAROLD T. PRUESSNER, M.D.,

http://www.aafp.org/afp/980301ap/pruessn.html

TABLE 2

Symptoms, Physical Findings and Illnesses Associated with Celiac Disease

Body system Presentation

General systemic

------------------------------------------------------------

Adults: lassitude, inanition, depression, fatigue, irritability, general

malnutrition with or without weight loss

Children: irritability, fretfulness, emotional withdrawal or excessive

dependence, nausea, anorexia, malnutrition with protruberant abdomen,

muscle wasting of buttocks, thighs and proximal arms; with or without

vomiting and diarrhea

Skin and mucous membranes

------------------------------------------------------------

Aphthous stomatitis (recurrent)

Angular cheilitis

Atopic dermatitis (persistent or recurrent)

Dermatitis herpetiformis (in 5 percent of patients with celiac disease)

Alopecia areata (especially alopecia universalis)

Melanosis (chloasma bronzium)

Erythema nodosum

Skeletal system

------------------------------------------------------------

Osteoporosis/osteopenia (in 100 percent of patients with celiac disease)

Dental enamel defects

Short stature

Arthritis or arthralgia (central arthritis-sacroiliitis in 63 percent of

patients with celiac disease)

Bone pain, especially nocturnal

Hematologic system

------------------------------------------------------------

Anemia (iron deficiency is the most common cause), folic acid deficiency in

10 to 40 percent of children and 90 percent of adults; B12 deficiency (rare)

Leukopenia, coagulopathy and thrombocytosis.

Gastrointestinal system

------------------------------------------------------------

Diarrhea in 60 percent of patients (small intestinal type), early diarrhea

occurs with infrequent, large, watery, foul stools; later diarrhea occurs

more frequently

Constipation in 20 percent of patients, with occasional obstipation and

pseudo-obstruction

Lactose intolerance in 50 percent of patients with gastrointestinal symptoms

Anorexia, nausea, vomiting, abdominal pain and bloating

Pancreatitis, hepatitis, lymphoma

Immune system

------------------------------------------------------------

Associated autoimmune diseases:

Diabetes mellitus type 1

Thyroid disease

Sjögren's syndrome

Collagen disorders

Rheumatoid arthritis

Liver disease

Selective IgA deficiency

Reproductive system

------------------------------------------------------------

Delayed puberty

Infertility

Neurologic system

------------------------------------------------------------

Seizures, with or without occipital calcification

Unexplained neuropathic illnesses, including ataxia and peripheral

neuropathies

Dementia

Other associated conditions

------------------------------------------------------------

Down syndrome

IgA nephropathy

Fibrosing alveolitis of the lung

Hyposplenism, with atrophy of the spleen

Based in part on information from Alessio Fasano, M.D., Ivor D. Hill. M.B.,

Ch.B., M.D., at the University of land, and ph A. Murray, M.D., at

the University of Iowa.

----------------------------------------------

Jay Bigam

Marketing and Information Technology Manager

Kinnikinnick Foods Inc.

www.kinnikinnick.com

Toll Free: 1-

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