Re: Frustrated Beyond Belief

January 12, 2006

Hang in there girl the end is in sight!!! You really have had a rough

go of it but at least you KNOW that you have the right doctor now and

that Hayden will have beautiful feet in the end =) Hope your

's get here soon so that you can get him out of these casts

for good!! Loved your blog, we are thinking of you guys and I will

give ya a shout soon!

& Grace

>

> On Tuesday Hayden had his tenotomy casts removed and we had to put

him

> back into holding casts while we get the s done up because

we

> forgot to take the forms of his feet the day he had the tenotomies

> done. For anyone who is curious, you can have a gander at how his

> feet look on my blog at:

>

> http://boyhamham.blogspot.com/

>

> Well, last night as I was getting him ready for bed, I took off his

> socks and discovered that his left cast had slipped (which also

> happens to be his " worse " foot. I know for sure that it was not

like

> this in the morning because I put fresh socks on him and it was

fine,

> but I have no idea when it might have slipped. It was quite far

back

> but he seemed to be okay so hubby and I decided not to remove it

> unless instructed by Dr. Pirani the next morning. Around midnight

he

> shifted his foot forward again and started screaming. It took

awhile

> to get him calm again but he settled and seemed okay for the

remainder

> of the night. I called Dr. Pirani's office this morning and was

told

> he was in surgery until 1:00 this afternoon, but that his secretary

> would contact me when he could see Hayden or if someone else was

> available. I drove out to where the hospital is to hang around

until

> he could see me and I got in around 2:00 at Dr. Pirani's office. He

> informed me that we had lost some correction due to the slippage and

> that the tendon was already tightening. He has recasted it and we

> made an appointment to get a new cast next Tuesday to re-correct the

> foot again. He DID confirm that the reason Hayden has Atypical (or

> Complex) clubfoot is because of all the slipped casts from

Children's

> because he showed me how in such few hours the crease was already

back

> across the bottom of the sole of his foot.

>

> I'm just so frustrated with all of this. It feels like FOREVER that

> we have been doing this and I feel like this is one step forward and

> two steps back. AARRGH!

>

> Thanks for letting me vent.

>

January 12, 2006

Vent all you want. Some day you WILL wake up and realize that you can handle

this whole clubfoot thing. The brace will be old stuff, the casts will be gone

and it won't seem so bad. It may seem like a million years away, but it will

come. In the mean time vent, scream, cry, but hang in there.

Frustrated Beyond Belief

On Tuesday Hayden had his tenotomy casts removed and we had to put him

back into holding casts while we get the s done up because we

forgot to take the forms of his feet the day he had the tenotomies

done. For anyone who is curious, you can have a gander at how his

feet look on my blog at:

http://boyhamham.blogspot.com/

Well, last night as I was getting him ready for bed, I took off his

socks and discovered that his left cast had slipped (which also

happens to be his " worse " foot. I know for sure that it was not like

this in the morning because I put fresh socks on him and it was fine,

but I have no idea when it might have slipped. It was quite far back

but he seemed to be okay so hubby and I decided not to remove it

unless instructed by Dr. Pirani the next morning. Around midnight he

shifted his foot forward again and started screaming. It took awhile

to get him calm again but he settled and seemed okay for the remainder

of the night. I called Dr. Pirani's office this morning and was told

he was in surgery until 1:00 this afternoon, but that his secretary

would contact me when he could see Hayden or if someone else was

available. I drove out to where the hospital is to hang around until

he could see me and I got in around 2:00 at Dr. Pirani's office. He

informed me that we had lost some correction due to the slippage and

that the tendon was already tightening. He has recasted it and we

made an appointment to get a new cast next Tuesday to re-correct the

foot again. He DID confirm that the reason Hayden has Atypical (or

Complex) clubfoot is because of all the slipped casts from Children's

because he showed me how in such few hours the crease was already back

across the bottom of the sole of his foot.

I'm just so frustrated with all of this. It feels like FOREVER that

we have been doing this and I feel like this is one step forward and

two steps back. AARRGH!

Thanks for letting me vent.

January 13, 2006

,

I totally feel for you, to be so close to cast freedom, only to have

this setback. But it is a minor one, I'm sure Dr. Pirani will have

his foot back to looking great right away. I also read your blog, I

have to say I just love the way you write, and you are funny to boot!

Give that little Hamster Boy a smooch for me!

>

> On Tuesday Hayden had his tenotomy casts removed and we had to put him

> back into holding casts while we get the s done up because we

> forgot to take the forms of his feet the day he had the tenotomies

> done. For anyone who is curious, you can have a gander at how his

> feet look on my blog at:

>

> http://boyhamham.blogspot.com/

>

> Well, last night as I was getting him ready for bed, I took off his

> socks and discovered that his left cast had slipped (which also

> happens to be his " worse " foot. I know for sure that it was not like

> this in the morning because I put fresh socks on him and it was fine,

> but I have no idea when it might have slipped. It was quite far back

> but he seemed to be okay so hubby and I decided not to remove it

> unless instructed by Dr. Pirani the next morning. Around midnight he

> shifted his foot forward again and started screaming. It took awhile

> to get him calm again but he settled and seemed okay for the remainder

> of the night. I called Dr. Pirani's office this morning and was told

> he was in surgery until 1:00 this afternoon, but that his secretary

> would contact me when he could see Hayden or if someone else was

> available. I drove out to where the hospital is to hang around until

> he could see me and I got in around 2:00 at Dr. Pirani's office. He

> informed me that we had lost some correction due to the slippage and

> that the tendon was already tightening. He has recasted it and we

> made an appointment to get a new cast next Tuesday to re-correct the

> foot again. He DID confirm that the reason Hayden has Atypical (or

> Complex) clubfoot is because of all the slipped casts from Children's

> because he showed me how in such few hours the crease was already back

> across the bottom of the sole of his foot.

>

> I'm just so frustrated with all of this. It feels like FOREVER that

> we have been doing this and I feel like this is one step forward and

> two steps back. AARRGH!

>

> Thanks for letting me vent.

>

January 13, 2006

Thanks, , for the compliment! I enjoy updating it and tracking Hayden's

progress. I know this part will be over before it and all too soon a distant

memory! I just want the poor guy to have some freedom - the skin on his legs

basically has not seen the light of day for six out of his seven months.

Enough already! I know I can't beat myself up for not seeing Dr. Pirani right

from the beginning (had I known about him I would), but I can't help feeling so

MAD that the hospital doesn't give you the option.

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