Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 You don't fight her on treatment, , you politely say " No Thank you " and take your baby home. Later on you can send her a post card with a photo of those perfect feet This is YOUR child, no doctor has a right to start a treatment or insist upon a certain form of treatment except in really extreme and rare circumstances involving life & death. Don't be bullied. On my 1st u/s with my current baby it was questionable and myself, I thought the feet were OK although dh said he suspected the cf. On the Level II u/s a few weeks later, it was pretty clear and boy did I come crashing down pretty hard that day. The dr. used a ruler and measurements to point out all the indicators to us. With Everett, both u/s scans were clear as a bell...and also correct. s. Re: New and confused! Thanks for all your replies! I guess I was just caught off guard that my ped wasn't more up to date on the cf issue. Now I'm hoping I won't have to fight her on treatment. I looked up the false positive rate for bilateral cf, and it is only like seven per cent or so. Given the ractions of my OB/GYNS, I get the feeling they know exactly what they saw! I have already e-mailed Dr. Ponseti twice, and he has been wonderful! DH and I both agree the only way we're NOT going this route is if the baby is born with absolutely, perfectly normal feet. Otherwise, we're off to Iowa after this little guys is born. I just wish my ped was a bit more supportive (and informed!). I sent my family info on the UofI clinic and the Ponsetti Method, and even they seem to think we're jumping the gun. Sigh. Guess that's what all you guys are for! > > > > Hello all! > > > > I have been lurking for a couple of weeks now, and chatting with > > ee via e-mail. But now it's time to " de-lurk " with a question! > > > > At my 21 week ultrasound, they discovered that our baby has bilateral > > clubfeet. We had three docs in our office look at the results, and had > > a subsequent u/s, all with the same conclussion. > > > > Well, today at my son's two year checkup, we mentioned our diagnosis > > to his ped, and told her our intent to go to the UofI and Dr. Ponseti > > for treatment. > > > > She told us she thinks in utero diagnosis is faulty, and that she has > > known people whose babies have been born with no problems at all, or > > with positional cf instead of " true " cf. > > > > She urged us to wait until he was born...and she said even then it can > > take up to a month to be able to tell for sure!!!! > > > > She also said she would send us to Oklahoma City (we're in Tulsa) to > > an ortho ped there. She says they are " very conservative " in treating > > cf, and that they rarely perform surgery after casting. When I > > described the DB bar to her, she told us it was an old-fashioned form > > of brace. > > > > This goes against everything I have read so far! > > > > Our ped had never heard of the Ponseti Method, so couldn't comment on > > this treatment, but was certainly encouraging a wait and see attitude. > > > > While I understand we won't know the severity of his cf until he is > > born, aren't ultrasound diagnosis pretty accurate? > > > > Does anyone know of any cases where a pg mom has gotten a false reading? > > > > Our ped seemed so nonchalant, it was almost getting my hopes up that > > my ob/gyns are wrong. > > > > HELP!!!! > > > > Jennfier > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 , Okay, save that note you typed. When ever you get guff from the doctor or family, pull it out and read it. You are the mommy and you are the one to make the decision, not extended family. They might mean well and might be trying to help, but don't let them change you mind. We spent five long months with traditional serial casting before we discovered Ponseti. Five months of painful casting with few results versus five weeks of Ponset casting and a tenotomy for perfect feet. It's overwhelming right now. Sooner than you think your baby will be walking and running and climbing. And you will wonder why he/she won't slow down and let you catch up. Good luck and keep us posted. Mom to Tenny rt. cf. 7/15/04 FAB 14/7 Re: New and confused! Thanks for all your replies! I guess I was just caught off guard that my ped wasn't more up to date on the cf issue. Now I'm hoping I won't have to fight her on treatment. I looked up the false positive rate for bilateral cf, and it is only like seven per cent or so. Given the ractions of my OB/GYNS, I get the feeling they know exactly what they saw! I have already e-mailed Dr. Ponseti twice, and he has been wonderful! DH and I both agree the only way we're NOT going this route is if the baby is born with absolutely, perfectly normal feet. Otherwise, we're off to Iowa after this little guys is born. I just wish my ped was a bit more supportive (and informed!). I sent my family info on the UofI clinic and the Ponsetti Method, and even they seem to think we're jumping the gun. Sigh. Guess that's what all you guys are for! > > > > Hello all! > > > > I have been lurking for a couple of weeks now, and chatting with > > ee via e-mail. But now it's time to " de-lurk " with a question! > > > > At my 21 week ultrasound, they discovered that our baby has bilateral > > clubfeet. We had three docs in our office look at the results, and had > > a subsequent u/s, all with the same conclussion. > > > > Well, today at my son's two year checkup, we mentioned our diagnosis > > to his ped, and told her our intent to go to the UofI and Dr. Ponseti > > for treatment. > > > > She told us she thinks in utero diagnosis is faulty, and that she has > > known people whose babies have been born with no problems at all, or > > with positional cf instead of " true " cf. > > > > She urged us to wait until he was born...and she said even then it can > > take up to a month to be able to tell for sure!!!! > > > > She also said she would send us to Oklahoma City (we're in Tulsa) to > > an ortho ped there. She says they are " very conservative " in treating > > cf, and that they rarely perform surgery after casting. When I > > described the DB bar to her, she told us it was an old-fashioned form > > of brace. > > > > This goes against everything I have read so far! > > > > Our ped had never heard of the Ponseti Method, so couldn't comment on > > this treatment, but was certainly encouraging a wait and see attitude. > > > > While I understand we won't know the severity of his cf until he is > > born, aren't ultrasound diagnosis pretty accurate? > > > > Does anyone know of any cases where a pg mom has gotten a false reading? > > > > Our ped seemed so nonchalant, it was almost getting my hopes up that > > my ob/gyns are wrong. > > > > HELP!!!! > > > > Jennfier > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Your family is just going with the best news to keep you positive, I am sure. Our family's did this as well because they were worried about our feelings. Once you know what you are doing and where you are going, I am sure they will support you. You are very lucky to have the opportunity to go to Iowa. I only wish were had that chance! 11/19 jennlinmcl39 wrote: Thanks for all your replies! I guess I was just caught off guard that my ped wasn't more up to date on the cf issue. Now I'm hoping I won't have to fight her on treatment. I looked up the false positive rate for bilateral cf, and it is only like seven per cent or so. Given the ractions of my OB/GYNS, I get the feeling they know exactly what they saw! I have already e-mailed Dr. Ponseti twice, and he has been wonderful! DH and I both agree the only way we're NOT going this route is if the baby is born with absolutely, perfectly normal feet. Otherwise, we're off to Iowa after this little guys is born. I just wish my ped was a bit more supportive (and informed!). I sent my family info on the UofI clinic and the Ponsetti Method, and even they seem to think we're jumping the gun. Sigh. Guess that's what all you guys are for! > > > > Hello all! > > > > I have been lurking for a couple of weeks now, and chatting with > > ee via e-mail. But now it's time to " de-lurk " with a question! > > > > At my 21 week ultrasound, they discovered that our baby has bilateral > > clubfeet. We had three docs in our office look at the results, and had > > a subsequent u/s, all with the same conclussion. > > > > Well, today at my son's two year checkup, we mentioned our diagnosis > > to his ped, and told her our intent to go to the UofI and Dr. Ponseti > > for treatment. > > > > She told us she thinks in utero diagnosis is faulty, and that she has > > known people whose babies have been born with no problems at all, or > > with positional cf instead of " true " cf. > > > > She urged us to wait until he was born...and she said even then it can > > take up to a month to be able to tell for sure!!!! > > > > She also said she would send us to Oklahoma City (we're in Tulsa) to > > an ortho ped there. She says they are " very conservative " in treating > > cf, and that they rarely perform surgery after casting. When I > > described the DB bar to her, she told us it was an old-fashioned form > > of brace. > > > > This goes against everything I have read so far! > > > > Our ped had never heard of the Ponseti Method, so couldn't comment on > > this treatment, but was certainly encouraging a wait and see attitude. > > > > While I understand we won't know the severity of his cf until he is > > born, aren't ultrasound diagnosis pretty accurate? > > > > Does anyone know of any cases where a pg mom has gotten a false reading? > > > > Our ped seemed so nonchalant, it was almost getting my hopes up that > > my ob/gyns are wrong. > > > > HELP!!!! > > > > Jennfier > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 I agree with this completely. With Kelsey's foot and her kidney issues, we were referred to Doctors at the Childrens Hospital here in Dayton. Accepting the referrals and since there isn't really anyone else here in town, I went. Within a matter of time however, all of her care was switched to the Children's Hospital in Cincinnati and I cannot be happier with that decision. She gets much better care there and if ever my children need specialists, we will go to Cincinnati. I am fortunate that our insurance does not require a referral for specialized care so I will take them to Cincinnati. Jenni wrote: I couldn't agree more. In every case with my children where they have needed to be seen by a specialist, I have done my research and found the doctor I wanted to have my children seen by. I then politely told my Ped. that this is the doctor I would be seeing, not who he had suggested. I am somewhat biased because I work for Washington University School of Medicine so each time it has turned out that the doc I wanted to see was a Wash U doc, but especially in the case of Sammy's foot, I am SO glad that I went with my choice of doctor and saw Dr. Dobbs instead of the ortho my ped. 1st referred me to. When you need to see a specialist I think it pays to be sure you are really going to a SPECIALIST in whatever particular " ailment " is involved. Oh and my pediatrician now asks me " who do you want to see at Wash U? " instead of just referring me to some random person, and I think he is also referring all his clubfoot patients to Dr. Dobbs, yippee! > > > > > > Hello all! > > > > > > I have been lurking for a couple of weeks now, and chatting with > > > ee via e-mail. But now it's time to " de-lurk " with a question! > > > > > > At my 21 week ultrasound, they discovered that our baby has bilateral > > > clubfeet. We had three docs in our office look at the results, and had > > > a subsequent u/s, all with the same conclussion. > > > > > > Well, today at my son's two year checkup, we mentioned our diagnosis > > > to his ped, and told her our intent to go to the UofI and Dr. Ponseti > > > for treatment. > > > > > > She told us she thinks in utero diagnosis is faulty, and that she has > > > known people whose babies have been born with no problems at all, or > > > with positional cf instead of " true " cf. > > > > > > She urged us to wait until he was born...and she said even then it can > > > take up to a month to be able to tell for sure!!!! > > > > > > She also said she would send us to Oklahoma City (we're in Tulsa) to > > > an ortho ped there. She says they are " very conservative " in treating > > > cf, and that they rarely perform surgery after casting. When I > > > described the DB bar to her, she told us it was an old-fashioned form > > > of brace. > > > > > > This goes against everything I have read so far! > > > > > > Our ped had never heard of the Ponseti Method, so couldn't comment on > > > this treatment, but was certainly encouraging a wait and see attitude. > > > > > > While I understand we won't know the severity of his cf until he is > > > born, aren't ultrasound diagnosis pretty accurate? > > > > > > Does anyone know of any cases where a pg mom has gotten a false > reading? > > > > > > Our ped seemed so nonchalant, it was almost getting my hopes up that > > > my ob/gyns are wrong. > > > > > > HELP!!!! > > > > > > Jennfier > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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