Re: Relapse

[Guest guest]

My oldest son had the ATTT when he was 25 months old. I wouldn't set my mind to

that yet though. Dr. P often has excellent results with re-casting at this

age, and I've been seeing it more and more since the 5 years ago when we had the

ATTT.

The ATTT in general though is " minor " compared to most cf surgeries. My son

had very bad feet, and back then " atypical " and " complex " just weren't terms we

heard much about but looking back now I realize there were probably on the

extreme end of atypical. The surgery was successful in allowing him to walk

normally although for whatever reason he does continue to have tightness in his

ankle area that is probably more due to tightness in his heel.

I will note that he did not start with a Ponseti Method treatment and we didn't

switch to Dr. Ponseti until he was nearly 2 years old and much damage had been

done by his previous doctor.

Best of luck, (PS did Ponseti suggest a shoe to perhaps help avoid

more problems?)

s.

Relapse

Hi, I am new to this group, but a HUGE supporter no less! Our story

started with an ultrsound done at around the sixth month on our

pregnancy. We had many ultrasounds because we have twins. They

noticed during this ultrasound that one child had bi-lateral

clubfoot. At the time we were told that there were couple doctors in

the area (Des Moines, Iowa) that would be able to help us and that

with a couple of surgeries Macie would be just fine. As soon as we

got home I started to collect all of the information that I could

regarding clubfoot and we decided that we would travel anywhere that

we had to find the best care for our daughter. After only a couple

of sites it became apparent to me that there were lots of other

options to surgery, mainly the Ponseti Method.

Three weeks after birth and many months of fighting the insurance

company to allow us to save them thousands of dollars and get the

best care for Macie we were clear to go see Ponseti. Macie's feet

were quite severe with deep creases on both feet. After 8 casts we

followed on with the shoes and felt that she was doing great. On

Wednesday we had a follow up appointment with Dr. Ponseti and learned

that at 20 months of age Macie's left foot is relapsing. We have

been very consistant with her brace and she wears it every night so

this came as a shock to us. He said that most likely they will need

to do a tendon transfer between 2 1/2 and 3 years. I am hoping to

get any information that I can from any parents who have went through

this or are going through this. I know that we are in the very best

hands but just need as much information as I can get. I have looked

online and haven't had much luck. Any help would be much

appreciated. Thanks -