Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Ok if it's that quiet I'll ask a question. I have been in so much pain over the last few weeks I'm losing it. Does anyone have a good Pain guy near NE PA that understands Sarcoid? Hope everyone is enjoying the beautiful day outside. Mitch Check in time Wow-- the group is really quiet! Really quiet! What is going on out there-- are you all as wiped out as I am? This last week, I've had something to do everyday, and I'm enjoying my Saturday hanging out in my jammies. I hope that when gets home, he decides that we don't have t go anywhere. I know we've gotten quite a few new members this last couple of weeks, so I hope you've found the MESSAGE ARCHIVES AND LINKS section of our wonderful site-- so that if you've got some questions- you are finding answers. We do have alot of information there, that you can use and take to your doctors. For some reason, the moderators and Darlene and I are all exhausted-- from flares of our sarcoidosis-- and that makes it hard on all of us. Please, if you've got questions or concerns ---ask. If we post publically on this site, your questions are the same ones that everyone else has-- so we are able to use this forum to reach alot of people at once. (More than 600 now!) Don't be shy, we're here and the mods and owners are checking multiple times a day-- so that you aren't overlooked. Take care, Tracie = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 as for me I have been tied to face book farms My hubby is going crazy. well I can't go anywhere right now because of a flare what else is there. lol prayers for all of you. And I am ok. Jackie Check in time Wow-- the group is really quiet! Really quiet! What is going on out there-- are you all as wiped out as I am? This last week, I've had something to do everyday, and I'm enjoying my Saturday hanging out in my jammies. I hope that when gets home, he decides that we don't have t go anywhere. I know we've gotten quite a few new members this last couple of weeks, so I hope you've found the MESSAGE ARCHIVES AND LINKS section of our wonderful site-- so that if you've got some questions- you are finding answers. We do have alot of information there, that you can use and take to your doctors. For some reason, the moderators and Darlene and I are all exhausted-- from flares of our sarcoidosis-- and that makes it hard on all of us. Please, if you've got questions or concerns ---ask. If we post publically on this site, your questions are the same ones that everyone else has-- so we are able to use this forum to reach alot of people at once. (More than 600 now!) Don't be shy, we're here and the mods and owners are checking multiple times a day-- so that you aren't overlooked. Take care, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Tracie, Been really exhausted and wiped out so sorry I will try and update yall soon. These new meds are messing with my system. Greg aka Krumdawg From: tracie feldhaus Sent: Saturday, November 07, 2009 2:48 PM To: neurosarcoidosis Subject: Check in time Wow-- the group is really quiet! Really quiet! What is going on out there-- are you all as wiped out as I am? This last week, I've had something to do everyday, and I'm enjoying my Saturday hanging out in my jammies. I hope that when gets home, he decides that we don't have t go anywhere. I know we've gotten quite a few new members this last couple of weeks, so I hope you've found the MESSAGE ARCHIVES AND LINKS section of our wonderful site-- so that if you've got some questions- you are finding answers. We do have alot of information there, that you can use and take to your doctors. For some reason, the moderators and Darlene and I are all exhausted-- from flares of our sarcoidosis-- and that makes it hard on all of us. Please, if you've got questions or concerns ---ask. If we post publically on this site, your questions are the same ones that everyone else has-- so we are able to use this forum to reach alot of people at once. (More than 600 now!) Don't be shy, we're here and the mods and owners are checking multiple times a day-- so that you aren't overlooked. Take care, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2009 Report Share Posted November 7, 2009 Hello all Just trying to get adjusted to this cold weather its really causing alot of pain otherwise all is well. Wishing all of you pain free days in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Checking in!.....I've been dealing with some dizziness and facial pain again. Guess I'll be calling the doc again tomorrow. I'm also dealing with a bone spur on my heel and some plantar fascilitis(sp?). ...very painful. Had a shot from hell into my foot...OMGosh that hurt! Last week I wrote and printed out a Pain Check list for myself. i printed it up and posted it where i lay down a lot. That way when the pain hits and I can't think straight i have the list to make sure I've done everything possible to make myself better and more comfortable. I thought I'd print it here for anyone who might need to do something like that. Of course, what you would put down may differ than mine. *****PAIN CHECK 1. Have you taken all pain meds? 2. Drink more fluids 3. Taken regular morning meds? 4. Need acetaminophen or ibuprofen(depending on time of day)? 5. Have you taken MSM and Milk Thistle? 6. Taken Sublingual B-12? 7. Taken Nopalea? 8. Need some quiet, dark, alone time? 9. Drink even more fluids.... 10. Saline nose spray as needed....? 11. Had a snack or meal within last three hours that includes some protein? 12. Back massage? 13. Journal out feelings/Vent? 14. Pain cream? 15. More fluids? 16. Hot shower/bath 17. Listen to relaxing music 18. Life is short...live it to the fullest...to your last living breath. > > Subject: Check in time > To: neurosarcoidosis > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis-- > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once.  (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Mitch. I am in NE PA-Easton area. I take to Lehigh Valley Hospital cedar crest Campus. She sees Dr. Ross. He is a Rheumatologist. He takes care of her prednisone at the moment and conferences with her Neurologist. He might be able to help you. We find him to be very good for . If he can't then possibly he could direct you to who will be able to assisit, I hope this helps and that you feel better soon.MattSubject: Re: Check in timeTo: Neurosarcoidosis Date: Saturday, November 7, 2009, 3:57 PM Ok if it's that quiet I'll ask a question. I have been in so much pain over the last few weeks I'm losing it. Does anyone have a good Pain guy near NE PA that understands Sarcoid? Hope everyone is enjoying the beautiful day outside. Mitch Check in time Wow-- the group is really quiet! Really quiet! What is going on out there-- are you all as wiped out as I am? This last week, I've had something to do everyday, and I'm enjoying my Saturday hanging out in my jammies. I hope that when gets home, he decides that we don't have t go anywhere. I know we've gotten quite a few new members this last couple of weeks, so I hope you've found the MESSAGE ARCHIVES AND LINKS section of our wonderful site-- so that if you've got some questions- you are finding answers. We do have alot of information there, that you can use and take to your doctors. For some reason, the moderators and Darlene and I are all exhausted-- from flares of our sarcoidosis- - and that makes it hard on all of us. Please, if you've got questions or concerns ---ask. If we post publically on this site, your questions are the same ones that everyone else has-- so we are able to use this forum to reach alot of people at once. (More than 600 now!) Don't be shy, we're here and the mods and owners are checking multiple times a day-- so that you aren't overlooked. Take care, Tracie = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Hey, , I can relate!! (smile) We're having some cold weather here also, and my back, shoulders, fingers, feet and cold are reminding me that I have sarcoidosis! Through it all, though, I am going to make it in the name of our Lord! Be blessed! -Maye, Baltimore To: Neurosarcoidosis Sent: Sun, November 8, 2009 1:48:25 AMSubject: Re: Check in time Hello all Just trying to get adjusted to this cold weather its really causing alot of pain otherwise all is well. Wishing all of you pain free days in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 you have cold weather? It is beautiful here in Wisconsin. hope you stay warm this winter. Re: Check in time Hello all Just trying to get adjusted to this cold weather its really causing alot of pain otherwise all is well. Wishing all of you pain free days in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 Wonderfull weather during the day but down to the 40s and 30s at night.. Subject: Re: Check in timeTo: Neurosarcoidosis Date: Sunday, November 8, 2009, 11:34 AM you have cold weather? It is beautiful here in Wisconsin. hope you stay warm this winter. Re: Check in time Hello all Just trying to get adjusted to this cold weather its really causing alot of pain otherwise all is well. Wishing all of you pain free days in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 mARY, THANK YOU! THIS IS WONDERFUL. i COPIED IT ONTO ANOTHER EMAIL SO THAT IT CAN BE PRINTED OUT AND KEPT IN SIGHT! Hugs, Tracie NS Co-owner/moderator To: Neurosarcoidosis Sent: Sun, November 8, 2009 8:44:35 AMSubject: Re: Check in time Checking in!.....I've been dealing with some dizziness and facial pain again. Guess I'll be calling the doc again tomorrow. I'm also dealing with a bone spur on my heel and some plantar fascilitis(sp? ). ...very painful. Had a shot from hell into my foot...OMGosh that hurt! Last week I wrote and printed out a Pain Check list for myself. i printed it up and posted it where i lay down a lot. That way when the pain hits and I can't think straight i have the list to make sure I've done everything possible to make myself better and more comfortable. I thought I'd print it here for anyone who might need to do something like that. Of course, what you would put down may differ than mine. *****PAIN CHECK1. Have you taken all pain meds?2. Drink more fluids3. Taken regular morning meds?4. Need acetaminophen or ibuprofen(depending on time of day)? 5. Have you taken MSM and Milk Thistle?6. Taken Sublingual B-12?7. Taken Nopalea?8. Need some quiet, dark, alone time?9. Drink even more fluids....10. Saline nose spray as needed....?11. Had a snack or meal within last three hours that includes some protein?12. Back massage?13. Journal out feelings/Vent?14. Pain cream?15. More fluids?16. Hot shower/bath17. Listen to relaxing music18.Life is short...live it to the fullest...to your last living breath.> From: tracie feldhaus <tiodaat2001@ yahoo.com>> Subject: Check in time> To: neurosarcoidosis@ yahoogroups. com> Date: Saturday, November 7, 2009, 8:48 PM> > > Wow--> the group is really quiet! Really quiet! What is> going on out there--> are you all as wiped out as I am? This last week,> I've had something to do everyday, and I'm enjoying> my Saturday hanging out in my jammies. I hope that> when gets home, he decides that we don't have t go> anywhere. > I know we've gotten quite a few new members this> last couple of weeks, so I hope you've found the MESSAGE> ARCHIVES AND LINKS section of our wonderful site-- so that> if you've got some questions- you are finding> answers. We do have alot of information there, that> you can use and take to your doctors.> For some reason, the moderators and Darlene and> I are all exhausted-- from flares of our sarcoidosis- -> and that makes it hard on all of us. > Please, if you've got questions or concerns> ---ask. If we post publically on this site, your> questions are the same ones that everyone else has-- so> we are able to use this forum to reach alot of people> at once. (More than 600 now!) Don't be> shy, we're here and the mods and owners are checking> multiple times a day-- so that you aren't> overlooked. > Take care, > Tracie> NS> Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 And we thought Grandma's "barometer" was a figment of her imagination... To: Neurosarcoidosis Sent: Sat, November 7, 2009 10:48:25 PMSubject: Re: Check in time Hello all Just trying to get adjusted to this cold weather its really causing alot of pain otherwise all is well. Wishing all of you pain free days in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2009 Report Share Posted November 8, 2009 I saw that you put down pain creams. There are only two that really work the way their supposed to. Actually only one works and the other if used with the first increases the other exponentially. The first is Biofreeze (or anything that has Ilex), It can't be bought over the counter only through a Health care Practictioneer All over the counter pain creams are what we call "Anti-irritants" They irritate the superficial layer of the skin and make it feel like it's doing something and the menthol tricks your mind. Ilex is the only chemical that penetrates the skin and goes into the muscles and joints. If used with MSM/Glucosomine Cream first, this cream penetrates into the skin but not into the muscle or joints but all we need for it to do is to be absorbed in the skin. Then you use Biofreeze or Ilex on top of it and when it goes through the skin it takes the other two with it and you get a triple anti-informatory response similar to ice causing a tremendous amount of vasoconstriction (which reduces spasms and inflammation) If anyone is interested in the exact way to do or use this just let me know and I'll send it to you. If you cant get it just let me know and I'll send it to you (at my cost which is half of what you can get it anywhere else even with shipping) I carry it in my office and it works great for that type of pain. Just let me know if you need more info. Mitch Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Thanks for the info! I use Trivita's Quick Relief gel which has MSM and glucosomine(and a whole lot of other stuff) in it. The second one I've never heard of. I do have to take cost into account. How much is the Biofreeze? I'm interested! thanls S.Life is short...live it to the fullest...to your last living breath. > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 I also wanted to share something that helps me with my diet. I order Fit N Free pizzas online. They have no fat and are only 248 calories. They can be doctored up with whatever you want to put on them. I use Morningstar crumbles...a non-meat alternative. www.pizzafree.com It's my way of having pizza...which I love...and still watching my waistline....large as it is....lol. If i keep my diet lower in sugar and calories I feel better. When i want something ice-cream-like I put a Sugar-free chocolate pudding in the freezer for about an hour and a half(depends on your freezer...) and it's icy and creamy and satisfying for only 60-65 calories. I eat a big salad everyday with my favorite veggies with low-fat dressing. You can eat more raw veggies than cooked...it fillls you up...and you are hitting a lot of the bases nutrition-wise. At least for me...i have to watch what I eat and it greatly affects how I feel. Sugar makes my pain worse. Not drinking enough water(I also put Crystal Lite...watered down in it) can also make me feel sicker. My health is like a puzzle and with each little piece I can improve the quality of my life...I will try. What works for me may not work for you. But that's why I like people sharing what works for them. It may be another puzzle piece for me. I listen occasionally to a cd called Delta sleep system with sounds of space and the ocean on it. I never fall asleep to it....lol...but it puts me in to a very peaceful state of mind and almost always makes me smile. I get happy listening to it and that is a big puzzle piece cuz i tend to get stressed easily. If anyone else has anything they do that helps them in any way....I'd love to hear it! hugs! S.Life is short...live it to the fullest...to your last living breath.> From: tracie feldhaus <tiodaat2001@ yahoo.com>> Subject: Check in time> To: neurosarcoidosis@ yahoogroups. com> Date: Saturday, November 7, 2009, 8:48 PM> > > Wow--> the group is really quiet! Really quiet! What is> going on out there--> are you all as wiped out as I am? This last week,> I've had something to do everyday, and I'm enjoying> my Saturday hanging out in my jammies. I hope that> when gets home, he decides that we don't have t go> anywhere. > I know we've gotten quite a few new members this> last couple of weeks, so I hope you've found the MESSAGE> ARCHIVES AND LINKS section of our wonderful site-- so that> if you've got some questions- you are finding> answers. We do have alot of information there, that> you can use and take to your doctors.> For some reason, the moderators and Darlene and> I are all exhausted-- from flares of our sarcoidosis- -> and that makes it hard on all of us. > Please, if you've got questions or concerns> ---ask. If we post publically on this site, your> questions are the same ones that everyone else has-- so> we are able to use this forum to reach alot of people> at once. (More than 600 now!) Don't be> shy, we're here and the mods and owners are checking> multiple times a day-- so that you aren't> overlooked. > Take care, > Tracie> NS> Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Ok it does get cold at night. My hubby sleeps with the windows open. I sleep in another room with an electric blanket. lol Hey it works. Re: Check in time Hello all Just trying to get adjusted to this cold weather its really causing alot of pain otherwise all is well. Wishing all of you pain free days in Iowa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 I'm sure I missed an email, but where do you find this topical pain meds? Thanks,Marla  Thanks for the info!  I use Trivita's Quick Relief gel which has MSM and glucosomine(and a whole lot of other stuff) in it. The second one I've never heard of. I do have to take cost into account. How much is the Biofreeze? I'm interested!   thanls  S. Life is short...live it to the fullest...to your last living breath. > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once.  (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 The stuff I use can be found at www.trivita.comLife is short...live it to the fullest...to your last living breath. > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 , This is very interesting, the Nopalea that I sent you for pain back in July of this year, is a TriVita product. You are right they have a lot of nutraceuticals that have no side effects and work to relieve many things. I am a believer of their products and attempted several time to let this user group know of them. I was met with some resistance. It is interesting because many of the posts and emails in this user group is related to whether individuals should take the H1N1 flu shots. Trivita has several supplement that when taken together will fight of the H1N1 virus, without any concerns of side effects or contracting the virus. If anyone wants to know about this they can go to www.h1n1-safe.info and find out all about them. Bob To: Neurosarcoidosis Sent: Mon, November 9, 2009 11:52:31 AMSubject: Re: Check in time The stuff I use can be found at www.trivita. comLife is short...live it to the fullest...to your last living breath. > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 I've been taking it ever since. i usually order the four-packs. I have noticed an increase in energy since taking it. Thanks so much for recommending it. Theirs is the Sublingual B-12 I started taking, too. A bit pricey but they work unlike some of the cheaper stuff. Life is short...live it to the fullest...to your last living breath. > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 It's only sold in Doctor's office's. The normal cost that I sell it for is $11 my cost when I buy about 100 of them is somewhere between $5-6 maybe less I have to check. As i said MSM/Glucosomine does not penetrate the skin or go into muscles but when you use it with this you will be knocked out by what you feel. Anyone who wants it just let me know and you will get it at my cost. The perks you get for having a Chiropractor with the same problems as you. I also get ever other supplement you all talk about much cheaper then you would in any health food store and I only keep the top quality vitamins here. I am a bit of an expert on nutrition and would be glad to help anyone with any questions or getting you anything at cost and shipping. I have great Glucosomine/Chondrotin patches that you only need to put on once a day instead of taking 3 tabs a day. The retail for those are $39.95 I think I pay $20 or so. So everybody let me know what you want or need and I'll get started. I'll be out of town for two days taking my Mom to a surgeon because she has a mass in her lung and they screwed up on the needle biopsy last week and gave her a Pnuemothorax, put her in pain for 3 days then we find out they didnt get enough tissue for a conclusive diagnosis. So I have to wait another two weeks to see if my Mother has Cancer 3 years after my Dad passed of it. Isn't life fun sometimes lol. I will have my computer with me and my cell is if anyone wants to talk. It's nice having an extended family that knows what I'm going through G-d Bless, Mitch Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 So are there any others in our group now taking the Nopalea, it would be nice to know. There are two of us taking it consistently andare finding good relief from the product. I am wondering who brought you into Trivita five years ago, or did you sign up from a TV ad. Just wondering, because I was the one that told you about Nopalea by Trivita and am not sure who is your up line, it would be nice to know. Please let me know if there are others, because I want to use their testimonies if they would allow me as this is huge!!! It is great for the individuals that are experiencing this relieve, but the big news is that Trivita has a home run. Because people like you and me who suffer all of the time can get relief with out taking narcotics that cause terrible side effects and this is big news. I take 2 to 4 ounces daily. If other neursarcoidosis suffers can get the same or similar relief, we need to help them out. I am willing to gift them just like I gifted you. The company has a procedure to do this and I can send out 2 for the price off one now, meaning that I can help twice as many people. Even if they only see 50% relief that will improve their quality of life. The more people that I talk to that are taking this that have real long lasting pain, the more I am convinced that this will help 9 out of 10 people who decide to consume it regularly. It is not cheap, but neither are narcotics or any drug that really works. If you are seeing the relief that I am, it would be nice to let others know so that they too can gain some of the benefits if they so desire. Bob To: Neurosarcoidosis Sent: Mon, November 9, 2009 2:02:33 PMSubject: Re: Check in time I've been taking it ever since. i usually order the four-packs. I have noticed an increase in energy since taking it. Thanks so much for recommending it. Theirs is the Sublingual B-12 I started taking, too. A bit pricey but they work unlike some of the cheaper stuff. Life is short...live it to the fullest...to your last living breath. > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 Hang in there Mitch & everyone else. I will send up a few extra prayers for everyone that they be well & stay as well as they can. Matt > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2009 Report Share Posted November 9, 2009 I think i just found it online when i first started out buying products. I saw the Sublingual B-12 commercials and checked it out. I also tried Nerve Formula a while back but that's also expensive to take the amount i needed to find relief...maybe someday again in the future. When you offered to send out something that helped you... i just thought...Why not, what could it hurt? When I called in I found out i was still a member and bought it just like I used to buy the other products. I am not having the tremendous pain-relief results that some people have but I have found some relief and added energy. I don't drink a whole bottle a day like some do cuz at $40 a day.....yikes. I use two bottles a month...using one-fourth cup twice a day. So it's $80 a month for that supplement alone. I'd probably really see how it's helping if I stopped taking it....lol. But I'm not going to do that. I think it has also helped balance my moods a bit. I'd have to say I've noticed about a 25-30% increase in better days. I have no idea if anyone else has tried it. Thanks you for sending me that first bottle. I was really surprised you would do that considering the cost. I haven't followed up finding out who is above me but i have had other problems as of late and I still have some memory problems....lol. I'll be calling in an order tomorrow and i'll see what I can find out. Thanks again. S.Life is short...live it to the fullest...to your last living breath. > From: tracie feldhaus <tiodaat2001@ yahoo.com> > Subject: Check in time > To: neurosarcoidosis@ yahoogroups. com > Date: Saturday, November 7, 2009, 8:48 PM > > > Wow-- > the group is really quiet! Really quiet! What is > going on out there-- > are you all as wiped out as I am? This last week, > I've had something to do everyday, and I'm enjoying > my Saturday hanging out in my jammies. I hope that > when gets home, he decides that we don't have t go > anywhere. > I know we've gotten quite a few new members this > last couple of weeks, so I hope you've found the MESSAGE > ARCHIVES AND LINKS section of our wonderful site-- so that > if you've got some questions- you are finding > answers. We do have alot of information there, that > you can use and take to your doctors. > For some reason, the moderators and Darlene and > I are all exhausted-- from flares of our sarcoidosis- - > and that makes it hard on all of us. > Please, if you've got questions or concerns > ---ask. If we post publically on this site, your > questions are the same ones that everyone else has-- so > we are able to use this forum to reach alot of people > at once. (More than 600 now!) Don't be > shy, we're here and the mods and owners are checking > multiple times a day-- so that you aren't > overlooked. > Take care, > Tracie > NS > Co-owner/moderator > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 Is the flare up that seems to be affecting us all related to the seasonal change?...is there something that can be done to lessen this?Subject: Check in timeTo: neurosarcoidosis Date: Saturday, November 7, 2009, 8:48 PM Wow-- the group is really quiet! Really quiet! What is going on out there-- are you all as wiped out as I am? This last week, I've had something to do everyday, and I'm enjoying my Saturday hanging out in my jammies. I hope that when gets home, he decides that we don't have t go anywhere. I know we've gotten quite a few new members this last couple of weeks, so I hope you've found the MESSAGE ARCHIVES AND LINKS section of our wonderful site-- so that if you've got some questions- you are finding answers. We do have alot of information there, that you can use and take to your doctors. For some reason, the moderators and Darlene and I are all exhausted-- from flares of our sarcoidosis-- and that makes it hard on all of us. Please, if you've got questions or concerns ---ask. If we post publically on this site, your questions are the same ones that everyone else has-- so we are able to use this forum to reach alot of people at once. (More than 600 now!) Don't be shy, we're here and the mods and owners are checking multiple times a day-- so that you aren't overlooked. Take care, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2009 Report Share Posted November 11, 2009 I don't know if there is or not . For me it is just a slow process of adjusting to the cold snap making sure I dress warm enough for the weather outside. If I don't dress warm enough it's like my body is in a vise everything freezes up my foot drop gets worse and my whole body gets stiff as a board... in Iowa Subject: Check in timeTo: neurosarcoidosis Date: Saturday, November 7, 2009, 8:48 PM Wow-- the group is really quiet! Really quiet! What is going on out there-- are you all as wiped out as I am? This last week, I've had something to do everyday, and I'm enjoying my Saturday hanging out in my jammies. I hope that when gets home, he decides that we don't have t go anywhere. I know we've gotten quite a few new members this last couple of weeks, so I hope you've found the MESSAGE ARCHIVES AND LINKS section of our wonderful site-- so that if you've got some questions- you are finding answers. We do have alot of information there, that you can use and take to your doctors. For some reason, the moderators and Darlene and I are all exhausted-- from flares of our sarcoidosis-- and that makes it hard on all of us. Please, if you've got questions or concerns ---ask. If we post publicly on this site, your questions are the same ones that everyone else has-- so we are able to use this forum to reach alot of people at once. (More than 600 now!) Don't be shy, we're here and the mods and owners are checking multiple times a day-- so that you aren't overlooked. Take care, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
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