RE: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

March 14, 2010

Mara,Colazol is something I am planning on looking into, not sure if it contains sulfa or not but I wanted to ask the doc about it because it has the 2 pronged attack with keeping bacteria under control as well as anti-inflamatory like the asacol. Also going to ask about sulfasaline and see if I can get past the allergy reaction by following the directions from some scd site I found where you start with 1/4 pill and work your way up. Apparently a lot of people can get over the reaction this way.-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: alcibiades@...Date: Sun, 14 Mar 2010 13:09:10 -0400Subject: Re: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.

Can you ask your doctor about whether colazal would work for you or not

viz. the sulpha?

I have a ton I would be happy to donate to you from when I stopped it

last year.

And PJ is right that the doctor may have some asacol samples - I know my

doctor gave me a bunch of colazal samples on a few occasions - they

may certainly have some lying around.

>

> Hi ,

> It doesn't look to me like you are doing anything wrong food-wise. I'm concerned about you weaning off the meds. I know people have done that, but to me, the time to try that is when you are stable, not when you are getting worse.

>

> It hate that you have to decrease the Asacol, which seems to have worked. I know of drug companies that have made arrangements for people who have had difficulty buying meds. The recent recession has left a lot of people without health insurance. I know that doctors are aware of this and don't want their patients to stop their medication. Maybe your doctor has some drug samples or can switch you to another medication? Is there a free clinic in your area or relatives that can help? I know in the past that you have responded to prednisone, which is not very expensive.I hope you can get some medication. I'm concerned that by saving money on Asacol while you are not doing well, that you may end up feeling worse which is a lot more expensive ( and miserable ) to fix in the long run.

>

> Staying on SCD in the long run will help, but losing weight and blood will not help you heal at the moment. Yes, cutting back to soups and bland foods help, but you have tried this and may need some more help to get this under control.

>

> Feel better,

>

> PJ

>

>>

>> I've been on SCD since for about 9 months so far and with my most recent flare I started looking at what i've been doing. Since the past 4 months before this flare I was doing fine and then with the need to take antibiotics which killed my insides, I think I have to start over. I'm having alot of trouble identifying what foods I am reacting to right now. I think the problem is that I am weening off my medicine too quickyl, but I have no choice in that matter. So, as i'm weening off the meds i'm also trying to introduce new foods one at a time. It seems like i'm reacting to everything because i'm getting progressively worse and not better no matter what I take out or add in as far as new foods. I'm eating plain beef and plain chicken from the crock pot with pepper and salt. Sometimes I add marjoram but very little. I am also eating ripe avocado and just yesterday tried eating some well cooked beets with plain hamburger for iron. In the time I was doing good on SCD and was tak!

> ing only a little but of medicine I could tolerate almond flour well, steamed carrots, juices, apple cider, raisins, and a bunch of other things. I have cut all that out because I don't want to make things worse than they already are. I'm worried about losing too much weight. I'm already at a lower weight than I was when I wrestled in high school, and I had to run around with a plastic bag around my body to lose that weight!

>>

>> Should I eat the foods I could tolerate before to try and gain some weight back?

>>

>> my biggest concerns right now are blood loss since i'm starting to get pale, and weight.

>>

>> Suggestions for moving forward from here? I don't have the option of increasing my meds right now because of health insurance.

>>

>> -

>> UC - 1+ years

>> SCD - 7 months 100% strict and 4 months restricted diet.

>> Asacol - 5 pills a day

>>

>> __________________________________________________________

>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>>

>

> ------------------------------------

>

March 14, 2010

Mara,Colazol is something I am planning on looking into, not sure if it contains sulfa or not but I wanted to ask the doc about it because it has the 2 pronged attack with keeping bacteria under control as well as anti-inflamatory like the asacol. Also going to ask about sulfasaline and see if I can get past the allergy reaction by following the directions from some scd site I found where you start with 1/4 pill and work your way up. Apparently a lot of people can get over the reaction this way.http://en.wikipedia.org/wiki/Colazalhttp://en.wikipedia.org/wiki/MesalazineMara

March 14, 2010

and anyone else without insurance, www.needymeds.com is a good

resource for low-,no-cost patient assistance programs.

Merck has a discount card and so does TogetherRX for different types

of medicine.

If you don't find the medicine you need, look at the manufacturer and

google them. For instance, Shire is the only company for Pentasa so

you would have to contact them directly via an 800 number. Even

though it says they do not have patient assistance at this time, they

do and I think a Crohn's Disease or UC diagnosis is required but it's

been awhile since I've done that so it could have changed. They also

have to go through your doctor and it's required you pick it up from

your doctor. You just have to read the different requirements for

each medicine.

Sorry if this is OT.

Debbie houston cd

>

> Mara,

>

> Colazol is something I am planning on looking into, not sure if it contains

> sulfa or not but I wanted to ask the doc about it because it has the 2

> pronged attack with keeping bacteria under control as well as

> anti-inflamatory like the asacol. Also going to ask about sulfasaline and

> see if I can get past the allergy reaction by following the directions from

> some scd site I found where you start with 1/4 pill and work your way up.

> Apparently a lot of people can get over the reaction this way.

>

> -

> UC - 1+ years

> SCD - 7 months 100% strict and 4 months restricted diet.

> Asacol - 5 pills a day

>

> To: BTVC-SCD

> From: alcibiades@...

> Date: Sun, 14 Mar 2010 13:09:10 -0400

> Subject: Re: Re: After almost a year I notice how much i've been

> doing wrong. So, back to basics but need advice.

>

> Can you ask your doctor about whether colazal would work for you or

> not

>

> viz. the sulpha?

>

> I have a ton I would be happy to donate to you from when I stopped it

>

> last year.

>

> And PJ is right that the doctor may have some asacol samples - I know my

>

> doctor gave me a bunch of colazal samples on a few occasions - they

>

> may certainly have some lying around.

>

>>

>

>> Hi ,

>

>> It doesn't look to me like you are doing anything wrong food-wise. I'm

>> concerned about you weaning off the meds. I know people have done that,

>> but to me, the time to try that is when you are stable, not when you are

>> getting worse.

>

>>

>

>> It hate that you have to decrease the Asacol, which seems to have worked.

>> I know of drug companies that have made arrangements for people who have

>> had difficulty buying meds. The recent recession has left a lot of people

>> without health insurance. I know that doctors are aware of this and don't

>> want their patients to stop their medication. Maybe your doctor has some

>> drug samples or can switch you to another medication? Is there a free

>> clinic in your area or relatives that can help? I know in the past that

>> you have responded to prednisone, which is not very expensive.I hope you

>> can get some medication. I'm concerned that by saving money on Asacol

>> while you are not doing well, that you may end up feeling worse which is a

>> lot more expensive ( and miserable ) to fix in the long run.

>

>>

>

>> Staying on SCD in the long run will help, but losing weight and blood will

>> not help you heal at the moment. Yes, cutting back to soups and bland

>> foods help, but you have tried this and may need some more help to get

>> this under control.

>

>>

>

>> Feel better,

>

>>

>

>> PJ

>

>>

>

>>

>

>>

>

>>>

>

>>>

>

>>> I've been on SCD since for about 9 months so far and with my most recent

>>> flare I started looking at what i've been doing. Since the past 4 months

>>> before this flare I was doing fine and then with the need to take

>>> antibiotics which killed my insides, I think I have to start over. I'm

>>> having alot of trouble identifying what foods I am reacting to right now.

>>> I think the problem is that I am weening off my medicine too quickyl, but

>>> I have no choice in that matter. So, as i'm weening off the meds i'm also

>>> trying to introduce new foods one at a time. It seems like i'm reacting

>>> to everything because i'm getting progressively worse and not better no

>>> matter what I take out or add in as far as new foods. I'm eating plain

>>> beef and plain chicken from the crock pot with pepper and salt. Sometimes

>>> I add marjoram but very little. I am also eating ripe avocado and just

>>> yesterday tried eating some well cooked beets with plain hamburger for

>>> iron. In the time I was doing good on SCD and was tak!

>

>> ing only a little but of medicine I could tolerate almond flour well,

>> steamed carrots, juices, apple cider, raisins, and a bunch of other

>> things. I have cut all that out because I don't want to make things worse

>> than they already are. I'm worried about losing too much weight. I'm

>> already at a lower weight than I was when I wrestled in high school, and I

>> had to run around with a plastic bag around my body to lose that weight!

>

>>>

>

>>> Should I eat the foods I could tolerate before to try and gain some

>>> weight back?

>

>>>

>

>>> my biggest concerns right now are blood loss since i'm starting to get

>>> pale, and weight.

>

>>>

>

>>> Suggestions for moving forward from here? I don't have the option of

>>> increasing my meds right now because of health insurance.

>

>>>

>

>>> -

>

>>> UC - 1+ years

>

>>> SCD - 7 months 100% strict and 4 months restricted diet.

>

>>> Asacol - 5 pills a day

>

>>>

>

>>>

>

>>>

>

>>>

>

>>>

>

>>> __________________________________________________________

>

>>> Hotmail: Trusted email with Microsoft's powerful SPAM protection.

>

>>> http://clk.atdmt.com/GBL/go/210850552/direct/01/

>

>>>

>

>>

>

>>

>

>>

>

>>

>

>> ------------------------------------

>

>>

>

>>

March 14, 2010

awesome, thanks!-UC - 1+ yearsSCD - 7 months 100% strict and 4 months restricted diet.Asacol - 5 pills a dayTo: BTVC-SCD From: texdebl@...Date: Sun, 14 Mar 2010 12:32:11 -0500Subject: Re: Re: After almost a year I notice how much i've been doing wrong. So, back to basics but need advice.