Re: New GI who knows about SCD!

[Guest guest]

Kathy,What happened in April that you had to go back on meds? Where are you located? maybe i'll switch docs!-UC - 1+ yearsSCD - 8 months 100% strict and 4 months restricted diet.Asacol - 12 pills a day Prednisone 40mg entocort With vit E mixed inBack to intro/stage 1 for now.To: BTVC-SCD From: s2kredhead@...Date: Wed, 24 Mar 2010 17:47:21 +0000Subject: New GI who knows about SCD!

I went to see a new GI yesterday (luckily my primary GI wasn't able to see me this week so I got her by "accident"). She told me about a patient of hers that was ready for a colectomy and found SCD. Her words, "SCD literally saved her life."

I'm so thrilled to find a doctor who believes that diet DOES make a difference. She scheduled me for a flex sig scope on Friday to see what's going on with my stubborn rectal inflammation/irritation.

Thought I'd share the good news that there ARE doctors out there who "believe."

Kathy

UC since 12/05

SCD since 7/07

Symptom-free and med-free from 7/08 to 4/09

Back on sulfasalazine and various rectal meds since 4/09

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[Guest guest]

>

> Kathy,

>

> What happened in April that you had to go back on meds? Where are you

located? maybe i'll switch docs!

>

Hi ,

I had outpatient surgery for carpal tunnel syndrome and they gave me one

dose of IV antibiotics. Two weeks later, I started bleeding and about a

week after that, I got pinkeye. In other words - two major flags for

inflammation! I had not had one spec of bleeding since being first

diagnosed in May 2006, so it was a major bummer. I went back to intro,

tried eliminating all kinds of things (dairy, fruit, coffee, alcohol,

various veggies, nuts) and nothing changed the bleeding. It never got

really bad. Canasa got rid of it for several months, but it didn't work

as well the next time. I'm going in for a flex sig tomorrow to see

what's going on.

Kathy

[Guest guest]

>

Where are you located? maybe i'll switch docs!

Oh, and I meant to say that I'm in Southern California, which probably won't

help you (aren't you on the East Coast?) - but Gay emailed me a link to a list

of SCD-friendly doctors. Maybe you can find one near you:

http://www.scdiet.net/medical.htm

Kathy