Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 Thanks Guys, I think I will try to have someone evaluate her for Tort. I am just not sure what my pediatrician will say. I will probably need some recommendations of people in the Charlotte area to talk to. She doesn't do it all the time, but I have noticed that occasionally she will tilt her head to the side. Kind of like some of our dogs do when they get their picture taken. LOL Kim, We saw Kathy when we were at CT. I think you are right, it does look like we had the same person. I am very disappointed that they did not give us the measurements. I will have to ask for them, just so I can have a copy for myself. They gave us a sheet that says " Clinical Evaluation Report " but it does not have any measurements on it. That is all we received from her evaluation. Amy, I am glad that all went well for you today. Looks like we will just be missing each other again. We pick up the band on the 27th. Kim, I hope Mia does ok when she goes for the DSi. You will have to let us know how it goes. I know that has to add to the stress for you. Mackenzie is such a ham. She loved all of the attention. They could hardly keep her from turning toward the camera and smiling when they did the photo study. Luckily, the DSi does not look like a camera or we would have had a time trying to keep her from looking at each different camera lens. haha Amy Mackenzie (9 months) > > > > > > > > > > > > > > Hi everyone. I have been " lurking " on this group for the past > > > > > > couple of weeks. I have really enjoyed reading the posts and have > > > > > > already learned a lot along with having more questions/concerns. > > > > My > > > > > > daughter, Mackenzie is 9 mo and has Brachycephaly and right > > > > Plagio. > > > > > > According to the clinician, she is in the " high moderate to low > > > > > > severe " range. I will post her Photo Study soon. We are going to > > > > CT > > > > > > in Charlotte. Today, we went for the DSi and paid for the > > > > treatment, > > > > > > so I guess we are committed to it now. She did fine with the DSi. > > > > > > She was even fine with the stocking they put over her face, > > > > although > > > > > > mommy was a little nervous about that one. > > > > > > > > > > > > > > After reading a lot of the posts with everyone talking about > > > > their > > > > > > " measurements " , I started getting a little concerned because CT > > > > > > never gave us any measurements. Today, I asked about them. She > > > > > > showed us the measurements but did mention that they only take > > > > them > > > > > > for insurance purposes. She said that they are basically measuring > > > > > > from one bone point to another and that the severe areas may not > > > > > > always show up in the particular areas they are measuring. That is > > > > > > why they don't pay a lot of attention to the measurements. I would > > > > > > like to thank for explaining the measurements. That > > > > helped me > > > > > > to understand it a LITTLE better. I don't remember exactly what > > > > each > > > > > > number represented, because I did not get a copy, but what I could > > > > > > remember of her numbers, I wrote down when I got to the car. The > > > > > > Cephalic Index was 91.00 underneath that was a +2 (not sure what > > > > > > that meant) The next number she gave was a 7. I think this was the > > > > > > Cranial Vault Assym. The last number was a 6. I think I remember > > > > her > > > > > > telling me that this was the measurements from ear to nose > > > > (maybe?). > > > > > > Does this make sense to anyone? I am not sure where the Cephalic > > > > > > Index " should be " either. All I really know is that these were the > > > > > > numbers in this order, if anyone knows what CT typically measures > > > > > > first, second, so forth please explain this to me. I would love > > > > > > anyone's advice or input on Mackenzie, just please don't tell me > > > > > > that you don't think her measurements are severe enough to do the > > > > > > treatment, since we just forked out all the money today. :-) > > > > > > > > > > > > > > Thanks. > > > > > > > > > > > > > > Amy > > > > > > > Mackenzie - 9 months (receiving DOC band on April 29th) > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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