Re: I'm telling, ceep on anecdotal concerns

[Guest guest]

>> the " sore tongue' syndrome...

** I just got a new vitamin/mineral book and under B12 and folate deficiency

it actually says sore tongue. folate deficiencies are becoming more common

from some discussion I heard at the ASBS conf. last month.

sue

[Guest guest]

And Dearest Brave Soul:

Would you consider uploading it to the files section so we can all read it

as well? I'm sure there will be huge interest on this list.

S.

Lap RNY 7/8/02

-132 lbs.

I'm telling, ceep on anecdotal concerns

> Dear Brave Souls:

> I wasn't sure this was the right thing to do, so have been praying about

it

> for several weeks now. Currently I think it may be the right thing to do

and I

> would like your help if you can. I'll tell you how you can help many

others in

> a minute.

>

> You might recall sometime back I asked a short list of questions about

> people's post op experience and many many people answered. Those who

answered

> privately I kept in a file, and as I looked over the many emails, I

realized that

> there are ongoing REPETITIVE VERY serious concerns and needs that are not

> addressed uniformly and some cases, not at all, by docs nationwide. Some

have to do

> with late regain, others have to do with supplementation, others have to

do

> with anemia, bowel obstruction, excessive weight loss, weight regain in

excess

> of the mean, atonic stomas, ulceration, volume consumption, concerns about

how

> to evaluate the health of the transected floating stomach, the " sore

tongue'

> syndrome, constipation, excessive gas, and so on.

>

> I have decided, (although I am currently trying to force myself to get

more

> than 5 hours sleep a night--grin) that I am going to compile " a letter of

> concern " (The postage has already been underwritten for the most part) in

order to

> send it to every bariatric doc from ASBS. I am going to send it as

anecdotal

> evidence from a professional (moi) being on several OSSG lists for going

on

> five years now, and I am going to ask for further research in certain

areas, and

> more clear disclosure in other areas. I am also going to ask that new

> oversight attention be given to some of the new docs who are offering NO

follow-up

> care, who appear to be jumping on the GB bandwagon for bucks alone. (We

have

> three cases where I live (all with the same surgeon) which are truly

shocking with

> regard to the seeming post-surgical lack of professional concern and

> response. )

>

> If you have a concern that is especial to you about any of these areas,

> please email me privately and I will see that at the end of the letter

(which will

> likely be about five pages, mostly bulleted) your concern is listed in an

> attachment at the end. The thing is, your concern needs to be stated *in

one

> sentence* only, if you can manage.

>

> My goal is to give information in a professional language and manner, to

> alert docs to some what seem increasingly to me ethical and organic issues

that

> ahve reached critical mass, need attention, to stir thinking about

aftercare,

> and to gather altogether in one place, a general anecdotal report by the

people,

> for the people, and of the people who are living with this plethora of gb

> surgeries.

>

> love,

> ceep

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

--On Monday, July 21, 2003 3:40 PM +0000 Graduate-OSSG

wrote:

> folate deficiencies are becoming more common

> from some discussion I heard at the ASBS conf. last month.

Where do we get folate from? My levels are actually quite high right now

(have climbed since my last test at 3 months out). Is this one of those

deficiencies like iron that might not show up until a few years out?

Sally

298 (BMI 49)/-130/168

Goal: 150

lap RNY 7/10/02

Dr. Quinlin/Pittsburgh

[Guest guest]

There should be enough in your two multi vites, if they are complete.

Thanks,

Vitalady, Inc. T

www.vitalady.com

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Re: I'm telling, ceep on anecdotal concerns

> --On Monday, July 21, 2003 3:40 PM +0000 Graduate-OSSG

> wrote:

>

> > folate deficiencies are becoming more common

> > from some discussion I heard at the ASBS conf. last month.

>

> Where do we get folate from? My levels are actually quite high right now

> (have climbed since my last test at 3 months out). Is this one of those

> deficiencies like iron that might not show up until a few years out?

>

> Sally

> 298 (BMI 49)/-130/168

> Goal: 150

> lap RNY 7/10/02

> Dr. Quinlin/Pittsburgh

>

> Homepage: http://groups.yahoo.com/group/Graduate-OSSG

>

> Unsubscribe: mailto:Graduate-OSSG-unsubscribe

>

>

>

>

>

[Guest guest]

--On Tuesday, July 22, 2003 5:41 AM +0000 Graduate-OSSG

wrote:

> There should be enough in your two multi vites, if they are complete.

I use the Kirkland chewables - 2/day. But, I also eat a lot of green leafy

vegees so I may be getting some extra from that. Apparently my problem

isn't getting enough, it may be that I have too much. I can't find

anything that says it's a problem, but I wanted to see if the experts here

knew of any reason I should try and bring my level down to normal.

Sally

298 (BMI 49)/-130/168

Goal: 150

lap RNY 7/10/02

Dr. Quinlin/Pittsburgh

[Guest guest]

Forwarded to the board at Alice's request:

In a message dated 7/23/2003 11:16:12 AM Central Daylight Time,

looneybird@... writes:

>

> And what really tees me off is that one of the surgeons in my group

> told us at a support group meeting that ALL stomas open up at some

> point after surgery and becomes a straight " pipe " - mouth to guts.

> Was that told at the mandatory pre-op meeting? Hell, NO! Do I

> believe it? I don't think so.

> Alice

> The Loon

> RNY 12/28/00

>

> ....no one is telling us about failed stoma prior to this

> surgery.............

> >

> >Carol A

> >

> >